That’s why I feel naked!..
Lost my sparkle
That’s why I feel naked!..
Lost my sparkle
What I learnt today:
*Doing a good deed doesn’t always pay off
*I should have gone to Fight Klub
*A punch bag bites back
*Joking about something happening might not be as funny if it happens and chances are it will
*Jaxon will always save his toys
*Ollie will always look out for her little brother
okay, now let me explain…
Deb has really taken to Fight Klub and decided to order an inflatable punch bag to use on days when she isn’t going to Fight Klub.
It arrived today! She also ordered some half mitts which unfortunately aren’t expected to arrive for a while longer yet.
Jokingly I told her to inflate it before she left for Fight Klub tonight, I think she was that excited she may not have realise the time because she went ahead and started to fill the base with water!
Our friend Adam arrived, he was going with Deb to Fight Klub as I had decided to stay at home and rest after having my infusion of ‘Tysabri’ (medication for my MS)
They didn’t have much time to drink their hot drinks before they had to leave to make sure they arrived in plenty of time.
I told Deb I would finish the punch bag for her so it would be ready for when they returned, not that she would have the energy to do anything afterwards. That’s of course if lasts weeks class was anything to go by!
I continued with the foot pump after they left, it seemed to take a very long time before I noticed any change in the very large limp phallic looking object lying on our kitchen floor! Eventually it started to look more like a punch bag, I guessed that it must have enough air in it by hoping it didn’t explode every time I pumped more air into it.
So now I had either an inflatable punch bag or a one balled phallic object in the centre of our kitchen. It was then that I had the genius idea of trying to move it out of the kitchen towards the dinning area by sliding it on the floor! This was not just a bad idea but an absolutely, ridiculously awful idea!
So imagine, actually, here it is…
The one balled phallic object or ‘punch bag’ pictured here as it did after I 1st finished with it!
I, with all my ‘MegaSpecial’ wisdom, decided the best way to get it from one room to the next was to push it!
Ok, the water is in the base to stabilise it. The plug for this is underneath and it isn’t quite sitting flush with the base. You know the room dividers you get on the floor when there is a change in floor types, yep, are you with me yet?
I pushed the punch bag from the tiled flooring of the kitchen to the Karndean flooring of the dining area when I heard a funny sound! When I looked down there was water gushing out from underneath the punch bag!
I then needed to figure out how I could fix this situation! From this moment on I wish I had it recorded just to prove how speshul I can be sometimes!
I thought I would be able to control the water gushing out if I tilted the base to one side, this just made it worse! I ended up plugging the hole with my finger until I figured out what to do! Of course it’s simple, put the stopped part of the plug into the hole!
Next I had to decide what to do with the rug that was slowly soaking up the water, I carried it into the bathroom where I left it in the bath! (The bathroom is close to the dining area)
Next was to get all the water up! Who in their right mind would try getting up such a high volume of water with just kitchen roll!
It wasn’t long before I changed my way and quickly up graded from Kitchen roll to hang towels! Still too much water, I needed so much more! The bath towels came out!
Finally I managed to clean/mop up my manic 20 minutes!
Needle point, one of my favourite things to do!
Threading A needle is fun when there’s TWO of them (thank you double vision)
Sewing a seam is joyous when you need the cloth and the thread to be identical in colour. This means with my MS vision I can’t tell where I have sewn and where I need to sew (thank you loss of contrast)
It’s no wonder I always end up with a pile of items waiting to be repaired!
When something joyful becomes dreadful!
40 minutes later and I’m still trying to thread the needle!
Obviously the danger is this, having a disease that drains my energy so rapidly means that I do tend to fall asleep at the drop of a hat! This always happens if I’m stationary for a long time. If you weren’t aware, sewing requires you to sit on the same place for a certain amount of time. It really wouldn’t take much for me to nod off & poke myself in the eye with the needle!
Thats why we’re MegaSpecial! Because we do really silly things, the great thing is, we train ourselves to laugh at the silly things! It gets us through!
#MyInvisibleFight #invisibleillness #invisiblefight #iiwk15
*THIS IS IN NO WAY A ‘PITY PLEA’ I JUST WANT PEOPLE TO BE AWARE OF HOW HARD IT CAN BE FOR PEOPLE WITH INVISIBLE ILLNESSES*
After seeing the post on Facebook (shown above) I have decided I shall take part & so every time I see a photo opportunity of #MyInvisibleFight I shall post the picture on instagram & here on my blog site which will then share to Facebook & twitter!
If you know me, are close to me & think this will be too upsetting for you then stop reading now.
My intention isn’t to upset people, nor is it to make people feel sorry for me or others with Invisible illnesses. We don’t need a ‘Pity party’ we just want people to understand & realise how hard it can be for us! How incredible we are! How strong we have to be!
To be honest, this is quite a good ‘pick me up’ for me as I often forget the challenges I have & still do overcome!
My 2nd photo is something as simple as opening the post!
I love to receive mail! I no longer get bills in the post, come on people, we’re in the age of technology! Everything is now email, text, apps, this is our world!
“Your EE bill is now ready for you to view online”
“Your E Newsletter is now ready to be viewed online“
“Your now due your next eye examination “
How exciting is it to hear the letter box rattle, knowing that someone somewhere has thought of you! Either that or its a flyer from the local takeaway! No thank you! We don’t want those here!
Off I go to collect my mail, I sit down with whatever hot drink I’m partial to that day, post on the table in front of me & then I remember!
Oh no, my hands aren’t working today! I can’t keep a tight grip of the letter & coordinate my other hand to work at the same time! Oh, oh…. no! I’ve torn it! I hope it’s still readable!
Yes there is such a thing as ‘letter openers’ I’m just not sure it’s a good thing on days like these for me to be holding something with a pointy end!
Imagine, gawd forbid if I ended up at A&E with a puncture wound somewhere on my body & having to explain to the nurse how I did it! I’m sure they’ve heard worse!
“It was because of the letter & a letter opener, actually nurse, the letter opener is still in my tummy”
Now please don’t stop sending me good old fashioned snail mail because I may not open it to perfection, where there’s a will there’s a way!
Spasticity is awful and it can be so incredibly painful!
The type of Spasticity I always have is involuntary twitches! The more tired I am and the more I relax then the worse the twitches get! I get twitches in my abdomens which can make me look as though I’m about to start dancing!
My worst time for involuntary
Spastic moments is when I’m joining in with the Pilates class when we have our cool down at the end. I’m just glad we are all lying on our backs with the lights off else people might wonder what on earth is wrong with me!
Tadaaaa! Old & new together!
I’d like to start today again if I may? Could I not have MS though because it’s gotten right on my nerves today! It’s really interfered with a happy occasion, that’s what getting a new car is about right?
I know I always appear happy & smiley, that’s what people want to see & hear. I’ve always wanted to be truthful in this blog, don’t get me wrong, I have been. It’s just today I’m not happy but am still smiley! Hard to do but I know a lot of people that do it!
Why aren’t I happy? I’ve just collected a new car, I should be! I should have been excited about it and I was to begin with but, as the day got closer, I began to feel more & more anxious!
This is part of my MS, I don’t cope well with change! I think the reason for this is because my brain has a very hard time taking in & retaining new information. Going from somebody that was once compared to a sponge *soaks up information* to how I am now is very hard to accept!
That is why I wanna start the day again!
I just collected my new car & everything I was told about it just seemed to go straight through my ears! It was if I could feel it happening!
The first time driving an automatic on my own, I kinda needed to retain that information I was given!
I just can’t think straight today, even during pilates I was struggling!
I’m gong to stop giving myself a hard time & just breathe!
It’s not the end of the world!
I shall enjoy my new car, I’ll practise my pilates a little more & I bet you the next time I post a new blog I’ll be all happy again because I am stronger than my MS!
That moment when realisation hits you!
I suffer such bad anxiety due to my MS & I am now aware how moody I get. Sorry Debbie!
Today at 09:30 I was supposed to exchange my Fiat Panda ‘Po’ of 3 years for my new little Fiat 500 ‘Red’
Yes I have anxiety about it! Not just because I won’t have my Panda any longer but because I am changing from a manual to an automatic! Big deal for me, part of my acceptance of my MS!
I am really looking forward to being able to drive without stalling my car and getting tired because of having to think about so many things at the same time! Part of my anxiety is that I don’t like change!
So at 08:30 I had a phone call from the Fiat garage to say that there was a problem with the ‘motability’ system and I could not collect my car at 09:30
I just called in at the garage as I was on my way to my 11am pilates class. Motability system still not working so no car! 🚗
I shall now be collecting it after my pilates class, at 12:30
I don’t feel as anxious now, just a little nervous about it being an automatic!
Watch this space! 😄