Todays flare comes from my MS, in the form of TREMORS!Β 

Shake it baby! 

My body has an internal tremor today and my head is going for it too! 

Not the nicest but a good reason to be a sofa surfer! 

Something I always found hard to do, but not anymore! 

The trick is, listening to your body, a way that my body tells me it needs rest, is a flare of my symptoms. 

Today’s flare is from my MS and I have Tremors! 

Yesterday it was quite possibly my Fibromyalgia with extreme pain (hard for me to tell fibro pain from MS pain)
I understand everyone leads busy lives in different ways, and it is extremely hard for people to find the time to just stop, to rest, to breathe. 

BUT, we have one body for our lifetime!
Preach over! πŸ™ŠπŸ‘ŒπŸ’― 

11th July 2017 Oxygen Therapy #9

Another great session, although it is painful on my sinuses! So if you have any sinus issues, and are thinking of trying this, just be aware that its a slight issue for me!
I’m soooooo tired! Yes it helps my MS fatigue but that’s soooo different to being worn out! 
In this video, I ask the wonderful public for your help in funding my own oxygen mask. This is so that the mask will be fitted for me, and won’t need to be adjusted every time I come, causing issues with air escaping as I breathe, and also meaning I won’t have to hold the mask on for the whole hour!
It would appear that I will need funding to be able to complete this course as well! I still need to find the money for 3 more sessions! Β£16 a session!
Unfortunately I haven’t been able to complete my Go Fund me page just yet but as soon as I do I shall share it!
Thank you all for taking time to read/watch! As always, please leave any questions or comments & I’ll be glad to get back to you.

Much love, Vix

21st June 2017 – Hyperbaric Oxygen therapy, first vlog, session 2

Soooooo, I’ve been writing a blog about the intensive HBO (Hyperbaric Oxygen) therapy I have just started, thing is, its so much easier to just chat about it!
πŸ¦„ here’s my first VLOG! πŸ¦„ 

I’m so excited about this! πŸ™

Making a down day happier…

​Having a pretty shitty day today tbh, so fatigued its unreal! Every day lately seems like I have to push myself harder, just to move my body and that’s without actually thinking about what I want my body to do! That takes even more effort! Long gone are those days that I can do things without thinking!
Right now, MS sucks but guess what, I was looking through my pictures on my phone, to find something that reflects my current mood…
That’s when I saw this photo and everything changed! 

This photo was taken last Sunday when I yes me, drove the furthest I have ever driven (90 miles to South Yorkshire) to see my MS sister & the rest of our faaaamily! Of course I had my DebbieRahRah as SatDeb & navigator. What makes me feel more proud, was that I drove without feeling nervous!
This beautiful lady is my Kindred Spirit, she has helped me through my MS more than she’ll take credit for! I only need to see her smiley face and my mood lifts! 

Thank you Sarah Hickman for making my day cheerier! 

(And I know exactly what she’s saying when she reads this… Either “oh behave” or “stoppppp”)

πŸ™ŠπŸ˜‚πŸ’‹πŸ’–πŸ’ž
 

Heata maker me wanna sleepa

​Soooooo sleepy! 

I find it so odd how some people’s MS likes dry heat, helping with their pain levels & then there’s some whom like me, it makes their pain worse! 

Humidity has to be the worst for all MS’rs! I’ve never met an MSr who likes humidity! 

For too long i haven’t been able to visit my friend @emilytexasbaran in her (was then) new home in Texas because of the humidity there! 

Now she has moved to Pittsburgh, Pennsylvania I’m going to have to start saving hard for flight tickets! #notsohumidthere

Tooooooo hot man!

‘Just’

​’Just’ a cold!

‘Just’ sinus pain!

‘Just’ a sore throat!

‘Just’ a headache!

‘Just’ a slight temperature! 
‘JUST’ is ‘JUST’ too much for an MSr or me specifically to much to function! 
I thought i was ‘just’ the temperature yesterday (over 18Β°c is ‘just’ too much for my MS to handle!)

Turns out it wasn’t ‘just’ the temperature after all! It was this cold as well, hidden underneath how tired I was feeling!
Exercise classes cancelled, body resting, fluid intake increased & Ultra chloraseptic anaesthetic throat spray to hand! 
I’ll soon be back on it! For now, rest rest rest!

Meme shared via pinterest

MS awareness week 2016, day 6!

This is an emotional, heart string pulling post but is such a good reminder for me and an excellent peace of advice for everyone!…

No matter what you are going through right now, remember, you are never alone!
Find yourself people that are in the same situation as you! This post explains how I did just that and by doing it I realised I wasn’t alone & by being with these amazing people I found that I could feel normal! I was no longer the odd one out!
I found people that spoke the same MeSsy language as me!

Find yourself a person or find your people!
I found mine!

This picture popped up on my facebook memories! Gulp! Deep breath!

Facebook is great for helping me remember past events, even when they have a massive effect on the current day! This photo was taken 4 years ago at my 2nd Ladies with Lesions meet.
How sad that a lady in this picture is no longer with us 😐

πŸ˜₯ Tanya (in the middle at the back) founder member of the group for women with MS ‘Ladies with Lesions’
Being a member of this group brought me my incredible friends & showed me I wasn’t the only person with MS, it’s a very lonely time when u find out you have a life long illness (disease)
I honestly believe that being a member of this group (LWL) helped to shape the person I am today!

For this I will be forever thankful to Tanya! Forever missed and never forgotten! Rest in peace lovely! 😭

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MS awareness week 2016

Today marks the start of MS awareness week in the UK!
I started it at the weekend though!

What an amazing day I had on Saturday! 2 hrs Fight Klub workshop! Non stop punching, kicking, squatting, bopping & fun fun fun!
I would never have believed you if you’d have told me 2 years ago that I would be doing the things I do now!

ANYTHING IS POSSIBLE! YOU JUST HAVE TO BELIEVE TO ACHIEVE!

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Denervation Recovery Day One and Two

Understanding

It’s hard to remember the days when I first had to take time off work because of my MS. I have come such a long way from that person that used to sit feeling sorry for herself, not doing anything to change the way she felt, just feeling more and more depressed!

Those days are real, they did exist, I was that person! So easily I could become her again! This procedure I have had done on my lower spine is to help ease my pain I feel, to gain this relief I have to endure a multitude of pains. The physical pain which comes in so many different ways, from moving incorrectly to even just standing. Then there is the emotional pain, some of this pain I feel may be hard for you to understand.Β Although you can’t see the physical pain itself, you can in fact see the physical effect of it in my face, in my eyes. The emotional pain will at times be so much easier to know when I feel it, you see I suffer from terrible mood swings. Almost like a teenager unable to get their own way, when I can’t do something that I have been used to doing its painful!

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Yesterday

It was an easier day than I expect yesterday! The first day of recovery, unable to take part in my usual Pilates class at 11am. Even though I missed it, I was ok with it, that made me feel proud. The rest of the day I slept on and off.

The evening wasn’t too bad either. Deb came home from work, she sorted the dinner, homemade spaghetti bolognase that I had lifted out of the freezer and some pasta to go with. This made it easier for me as I wasn’t able to stand for more than a few minutes and therefore unable to cook the evening meal.

The exercise class I couldn’t attend last night was ‘Clubbercise’ I have only been to this class twice and, if I’m honest it’s a bit fast for me with a lot of side ways moving, which I have a major issue with. The class has also changed rooms, it used to be in an area that had direct access to outside, which was ideal for me to cool down quickly. The class is now in the ‘Dance studio’ the same room that I do Pilates in. Excellent because it has air-conditioning which means I keep cooler whilst exercising, the downside is that when I walk out of the room the temperature difference is too extreme for me, especially if my core temperature is high from cardio exercises.

This is a constraint of my MS, I can’t adjust to differences in temperature like my partner does. I can’t cool down quick enough when needed and vice versa, I don’t warm up quick enough! For these reasons I am apprehensive about going to Clubbercise again and didn’t mind that I couldn’t go!

 

Today

A harder day today, missed out on a class called ‘PiYo’ a mix of Pilates and Yoga. A class that I wanted to try from the moment I heard about it and also a class that I was very nervous about trying! When my friend told me he had been to a class a few weeks ago, I was really sad that I hadn’t gone with him. He came around to my home to tell me all about the class and how hard it was, when he told me he thought it would be to hard for me, I booked in for the next available class straight away.

I wasn’t well enough to go to the class last week because of my MS. It hadn’t occurred to me then that I wouldn’t be able to go today, but I have to be good especially after all the work I had done on Thursday.

After my first PiYo class I couldn’t stop thinking about it, I practised some of the harder moves that I could remember, until I could no longer remember the easier option that the instructor ‘Hannah Bailey’ had showed me. That’s the thing with my MS, I forget things easily and quickly!

I was so looking forward to going again! I guess I just have to wait a little bit longer. Hopefully I’ll be so much better and stronger when I go to my second class!

 

The evening,

Saturday evenings are my favourite! As much as I love going to all the exercise classes with Deb and our friends, I do miss the us time that we rarely get now. Saturday evening there aren’t any classes so we get to chill together snuggled on the sofa with our 2 dogs ‘our kids’

As far as pain goes and how my back is after the procedure, today I can stand for a little longer, around five minutes. Enough time to wash half of the pots in the bowl, the pain was starting to increase by then so I had to sit down and rest.

Baby steps! I’ll soon be fighting fit again!

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