11th July 2017 Oxygen Therapy #9

Another great session, although it is painful on my sinuses! So if you have any sinus issues, and are thinking of trying this, just be aware that its a slight issue for me!
I’m soooooo tired! Yes it helps my MS fatigue but that’s soooo different to being worn out! 
In this video, I ask the wonderful public for your help in funding my own oxygen mask. This is so that the mask will be fitted for me, and won’t need to be adjusted every time I come, causing issues with air escaping as I breathe, and also meaning I won’t have to hold the mask on for the whole hour!
It would appear that I will need funding to be able to complete this course as well! I still need to find the money for 3 more sessions! Β£16 a session!
Unfortunately I haven’t been able to complete my Go Fund me page just yet but as soon as I do I shall share it!
Thank you all for taking time to read/watch! As always, please leave any questions or comments & I’ll be glad to get back to you.

Much love, Vix

21st June 2017 – Hyperbaric Oxygen therapy, first vlog, session 2

Soooooo, I’ve been writing a blog about the intensive HBO (Hyperbaric Oxygen) therapy I have just started, thing is, its so much easier to just chat about it!
πŸ¦„ here’s my first VLOG! πŸ¦„ 

I’m so excited about this! πŸ™

Making a down day happier…

​Having a pretty shitty day today tbh, so fatigued its unreal! Every day lately seems like I have to push myself harder, just to move my body and that’s without actually thinking about what I want my body to do! That takes even more effort! Long gone are those days that I can do things without thinking!
Right now, MS sucks but guess what, I was looking through my pictures on my phone, to find something that reflects my current mood…
That’s when I saw this photo and everything changed! 

This photo was taken last Sunday when I yes me, drove the furthest I have ever driven (90 miles to South Yorkshire) to see my MS sister & the rest of our faaaamily! Of course I had my DebbieRahRah as SatDeb & navigator. What makes me feel more proud, was that I drove without feeling nervous!
This beautiful lady is my Kindred Spirit, she has helped me through my MS more than she’ll take credit for! I only need to see her smiley face and my mood lifts! 

Thank you Sarah Hickman for making my day cheerier! 

(And I know exactly what she’s saying when she reads this… Either “oh behave” or “stoppppp”)


Heata maker me wanna sleepa

​Soooooo sleepy! 

I find it so odd how some people’s MS likes dry heat, helping with their pain levels & then there’s some whom like me, it makes their pain worse! 

Humidity has to be the worst for all MS’rs! I’ve never met an MSr who likes humidity! 

For too long i haven’t been able to visit my friend @emilytexasbaran in her (was then) new home in Texas because of the humidity there! 

Now she has moved to Pittsburgh, Pennsylvania I’m going to have to start saving hard for flight tickets! #notsohumidthere

Tooooooo hot man!


​’Just’ a cold!

‘Just’ sinus pain!

‘Just’ a sore throat!

‘Just’ a headache!

‘Just’ a slight temperature! 
‘JUST’ is ‘JUST’ too much for an MSr or me specifically to much to function! 
I thought i was ‘just’ the temperature yesterday (over 18Β°c is ‘just’ too much for my MS to handle!)

Turns out it wasn’t ‘just’ the temperature after all! It was this cold as well, hidden underneath how tired I was feeling!
Exercise classes cancelled, body resting, fluid intake increased & Ultra chloraseptic anaesthetic throat spray to hand! 
I’ll soon be back on it! For now, rest rest rest!

Meme shared via pinterest

MS awareness week 2016, day 6!

This is an emotional, heart string pulling post but is such a good reminder for me and an excellent peace of advice for everyone!…

No matter what you are going through right now, remember, you are never alone!
Find yourself people that are in the same situation as you! This post explains how I did just that and by doing it I realised I wasn’t alone & by being with these amazing people I found that I could feel normal! I was no longer the odd one out!
I found people that spoke the same MeSsy language as me!

Find yourself a person or find your people!
I found mine!

This picture popped up on my facebook memories! Gulp! Deep breath!

Facebook is great for helping me remember past events, even when they have a massive effect on the current day! This photo was taken 4 years ago at my 2nd Ladies with Lesions meet.
How sad that a lady in this picture is no longer with us 😐

πŸ˜₯ Tanya (in the middle at the back) founder member of the group for women with MS ‘Ladies with Lesions’
Being a member of this group brought me my incredible friends & showed me I wasn’t the only person with MS, it’s a very lonely time when u find out you have a life long illness (disease)
I honestly believe that being a member of this group (LWL) helped to shape the person I am today!

For this I will be forever thankful to Tanya! Forever missed and never forgotten! Rest in peace lovely! 😭