MS awareness week 2016, day 6!

This is an emotional, heart string pulling post but is such a good reminder for me and an excellent peace of advice for everyone!…

No matter what you are going through right now, remember, you are never alone!
Find yourself people that are in the same situation as you! This post explains how I did just that and by doing it I realised I wasn’t alone & by being with these amazing people I found that I could feel normal! I was no longer the odd one out!
I found people that spoke the same MeSsy language as me!

Find yourself a person or find your people!
I found mine!

This picture popped up on my facebook memories! Gulp! Deep breath!

Facebook is great for helping me remember past events, even when they have a massive effect on the current day! This photo was taken 4 years ago at my 2nd Ladies with Lesions meet.
How sad that a lady in this picture is no longer with us ๐Ÿ˜

๐Ÿ˜ฅ Tanya (in the middle at the back) founder member of the group for women with MS ‘Ladies with Lesions’
Being a member of this group brought me my incredible friends & showed me I wasn’t the only person with MS, it’s a very lonely time when u find out you have a life long illness (disease)
I honestly believe that being a member of this group (LWL) helped to shape the person I am today!

For this I will be forever thankful to Tanya! Forever missed and never forgotten! Rest in peace lovely! 😭

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MS awareness week 2016

Today marks the start of MS awareness week in the UK!
I started it at the weekend though!

What an amazing day I had on Saturday! 2 hrs Fight Klub workshop! Non stop punching, kicking, squatting, bopping & fun fun fun!
I would never have believed you if you’d have told me 2 years ago that I would be doing the things I do now!

ANYTHING IS POSSIBLE! YOU JUST HAVE TO BELIEVE TO ACHIEVE!

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Denervation Recovery Day One and Two

Understanding

It’s hard to remember the days when I first had to take time off work because of my MS. I have come such a long way from that person that used to sit feeling sorry for herself, not doing anything to change the way she felt, just feeling more and more depressed!

Those days are real, they did exist, I was that person! So easily I could become her again! This procedure I have had done on my lower spine is to help ease my pain I feel, to gain this relief I have to endure a multitude of pains. The physical pain which comes in so many different ways, from moving incorrectly to even just standing. Then there is the emotional pain, some of this pain I feel may be hard for you to understand.ย Although you can’t see the physical pain itself, you can in fact see the physical effect of it in my face, in my eyes. The emotional pain will at times be so much easier to know when I feel it, you see I suffer from terrible mood swings. Almost like a teenager unable to get their own way, when I can’t do something that I have been used to doing its painful!

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Yesterday

It was an easier day than I expect yesterday! The first day of recovery, unable to take part in my usual Pilates class at 11am. Even though I missed it, I was ok with it, that made me feel proud. The rest of the day I slept on and off.

The evening wasn’t too bad either. Deb came home from work, she sorted the dinner, homemade spaghetti bolognase that I had lifted out of the freezer and some pasta to go with. This made it easier for me as I wasn’t able to stand for more than a few minutes and therefore unable to cook the evening meal.

The exercise class I couldn’t attend last night was ‘Clubbercise’ I have only been to this class twice and, if I’m honest it’s a bit fast for me with a lot of side ways moving, which I have a major issue with. The class has also changed rooms, it used to be in an area that had direct access to outside, which was ideal for me to cool down quickly. The class is now in the ‘Dance studio’ the same room that I do Pilates in. Excellent because it has air-conditioning which means I keep cooler whilst exercising, the downside is that when I walk out of the room the temperature difference is too extreme for me, especially if my core temperature is high from cardio exercises.

This is a constraint of my MS, I can’t adjust to differences in temperature like my partner does. I can’t cool down quick enough when needed and vice versa, I don’t warm up quick enough! For these reasons I am apprehensive about going to Clubbercise again and didn’t mind that I couldn’t go!

 

Today

A harder day today, missed out on a class called ‘PiYo’ a mix of Pilates and Yoga. A class that I wanted to try from the moment I heard about it and also a class that I was very nervous about trying! When my friend told me he had been to a class a few weeks ago, I was really sad that I hadn’t gone with him. He came around to my home to tell me all about the class and how hard it was, when he told me he thought it would be to hard for me, I booked in for the next available class straight away.

I wasn’t well enough to go to the class last week because of my MS. It hadn’t occurred to me then that I wouldn’t be able to go today, but I have to be good especially after all the work I had done on Thursday.

After my first PiYo class I couldn’t stop thinking about it, I practised some of the harder moves that I could remember, until I could no longer remember the easier option that the instructor ‘Hannah Bailey’ had showed me. That’s the thing with my MS, I forget things easily and quickly!

I was so looking forward to going again! I guess I just have to wait a little bit longer. Hopefully I’ll be so much better and stronger when I go to my second class!

 

The evening,

Saturday evenings are my favourite! As much as I love going to all the exercise classes with Deb and our friends, I do miss the us time that we rarely get now. Saturday evening there aren’t any classes so we get to chill together snuggled on the sofa with our 2 dogs ‘our kids’

As far as pain goes and how my back is after the procedure, today I can stand for a little longer, around five minutes. Enough time to wash half of the pots in the bowl, the pain was starting to increase by then so I had to sit down and rest.

Baby steps! I’ll soon be fighting fit again!

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I love Fight Klub!

Brilliant Fight Klub last night with Hannah Bailey!

Had this T-shirt with me so whilst I finished the class early as usual to try my best to get my temperature down, I thought it most appropriate to hold this top up during the gruelling abs section!
Everyone seemed to appreciate it ๐Ÿ˜„

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Btw, I wish I could take part in the abs section but I have to use that time to cool down!
My internal thermometer is fooked thanks to my MS! When I over heat it triggers all of my symptoms, meaning I can hardly walk, balance, see, hear, talk, oh the list goes on!
At least once my temperature is at a safe level my symptoms subside and I just walk and talk like I’m pissed!

I’m so pleased I’ve found something that helps to keep me cool!
*the t-shirt doesn’t keep me cool, just to clear that up! It’s a cloth that is extremely cold when wet! For those that attend fight klub or any other cardio classes I attend, it’s that pink cloth I always have either around my neck or over my head like a nun! ๐Ÿ˜‚๐Ÿ˜œ*

I LOVE FIGHT KLUB!

#fightklub #fk #howmany #strongerthanMS #MegaSpecial #multiplesclerosis #inspiration #proud #pain #ishapeme #ms #fuckms #dontgiveup

It’s not often help is given for free!

Today I hoovered up hundreds of star confetti from my birthday, hoovered dog hair out of the bath & hoovered up all of the tiny stones from the garden that end up in the kitchen!
All of this was after sleeping through half of the day!

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Image courtesy of Stuart Miles at FreeDigitalPhoto.jpg

I once saw a post on Facebook from someone advertising her time. A lady that loves horses and was looking for horse owners to let her help out at their yard. She offered to groom the horse, exercise it and even do the dirty jobs like muck clean the stable!
Basically she was advertising herself to do the same job as a groom who would cost a whole lot more than she was asking because she was offering to do all the work for free!

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Image courtesy of dan at FreeDigitalPhotos.net

Why don’t cleaners offer to work for free!
All I ask is for someone to offer to do all of our housework for absolutely no payment because they love doing it so much and can’t get enough of their own!

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Image courtesy of radnatt at FreeDigitalPhotos.net.jpg

Not going to happen is it!
Didn’t think so!


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