Sleep in! #MS #mspain #nervepain #fatigue

Mini sleep in tomorrow! Love it when DebbieRahRah is off! This is our weekend!
Plans for tomorrow…
•MS exercise class with the lovely and slightly scarey Hannah Bailey
•Rest loads during afternoon
•Fight Klub 7pm with scarey Hannah Bailey 👊💥


Journey to a fitter, better me to handle my MS

Ok so, I started my fitness kick by going to Aqua Fit!
A brilliant way to exercise if you can’t do much on dry land because the water aids by taking away the stress of gravity!

Once I gained confidence with Aqua Fit and felt the need to go on to something else my Physiotherapist referred me to the gym for a set program.
I loved it! I was going every morning for 5 days a week! After a few months I realised that going all those days without a break in between was a little adventurous! I started going less because I wanted to continue going to Aqua Fit! 

I then went on to try Pilates (for the 2nd time, a different type of pilates! 1st time was Pilates for Pregnancy which I didn’t realise until I arrived in the class and so didn’t need it! 😱😂)
As most know I have been going to 3 classes a week for nearly a year now. It would be easy to say that it’s my passion!
Last week I even had my first 1-1 private Pilates at home, it was completely different to a group class because it was tailored especially for me! I even thought it was better than an appointment with my Neuro Physiotherapist! I was that impressed that I booked another 1-1 and i intend to continue with it!
I loved Pilates that much that I stopped going to Aqua Fit and reduced the amount of time in spent in the gym.

At the beginning of this year I started going to another class with my partner called ‘Fight Klub’

“FIGHT KLUB® is the high intensity fun workout that makes getting in shape an addiction. Set to music, the program is a combination of boxing, kick boxing and dance.
FIGHT KLUB® is a workout built around a freestanding professional grade punch bag using simple combinations of kicks and punches whilst keeping time with the high energy beat.” (Taken from the Fight Klub website)

Yes Fight Klub is high intensity which is why I don’t go as often as I’d like to! It’s hard work but it’s seriously exhilarating! As soon as my adrenaline kicks in I forget about the Chronic pain I suffer 24/7!
I might not be able to do all of the exercises the same as everyone else but I still do them, just in a different way!
I have to start my cool down before everyone else because my body doesn’t cool my core temperature down quick enough! I’m not sure if this is to do with my MS or my Fibromyalgia. Maybe it’s just an anomaly, who knows! All I know is that if I don’t cool my self down quickly by pouring cold water down my neck then I pass out!
Yes that part scares me but I love the class that much, I still go back! Just not too often!

This next video is something else that I really want to try! I haven’t the strength yet, well, I don’t think I do!
I don’t know anyone at my local leisure centre that offers guidance with this alone and I’m too nervous to just have a go!

It still surprises me every day how much I am loving this new me!

Click here to see what else I want to try!

Catching up with my pilates journey…

Catching up with my pilates journey…

On the 17th February 2016 I will have been practicing pilates for a whole year!

Heres a few things I have learnt in that year:

* To perform my best I had to position myself at the front of the class close to the instructor.
* Being at the front not only meant I couldn’t hide from the instructor, it also meant I would be seeing all of my reflection in the mirror!
* Acceptance of the image looking back at me in the mirror and not being able to hide from it!
* I need to have more patience with myself
* To trust myself more! That might not make sense unless you’ve taken Pilates before! Let me explain… trusting yourself is key when it comes to balancing in Pilates, trusting myself just a little bit more and I might be able to push myself more.
* I am now more aware of my muscles and using them correctly especially when walking!
* See my abdominal muscles take form! Something I had never dreamt of!
* It’s all about the core!
* Core muscles are key for anyone with MS
* Contracting the core muscles protects the spine
* It hurts my back A LOT if I forget to use my core muscles correctly when doing back work!
* I have found my passion!


Today’s class was so different to any I have been in before. I felt totally on form which I wasn’t expecting, especially after forgetting to take my Modafinil yesterday afternoon!

Information from MS Trust

A lovely thing from today’s class was what the instructor wrote on my Facebook post I shared about forgetting to take my medication last night and how it effected me.


It’s great to know that all my hard work is paying off!

The other thing about today’s class was that it was recorded! Yes, recorded!
A member of staff from the leisure centre asked before the class started if she could record parts of the class. Everyone was asked if they were happy to be in the recording, as if I would say no to that!
Thinking about it now, I really hope I don’t look terrible! It will be interesting to see how well I executed the moves! I’m staying optimistic with that comment, surly Lisa would have corrected me if I’d have been awful!

Here’s some visuals of how I’m sure I looked today, after all, I was on form and I am getting stronger day by day!


Image from Pinterest
Image from Pinterest

Okay, maybe not that strong but I gave it my upmost!

Found on from Google

When I heard that Lisa also does 1-1 Pilates classes I was really intrigued, then when Lisa told me that she comes to your home I booked straight away!
My 1-1 class is tomorrow! I think Lisa knows me well enough now to know that I’m feeling slightly nervous! No point hiding it… I couldn’t even if I tried!
I’ve either done something very crazy or very clever here with this!
I’ll let you know!


Now a shout out to a few people,
thank you…

*Christine Robinson, (AKA Crispie) for letting me come with you to your Pilates class for my first lesson!
*Kate King, my first instructor. Thank you for being so wonderfully understanding and encouraging! Still miss your classes!
* Hannah Bailey, your energy and enthusiasm inspires me! You have such a zest for life!
*Lisa Perry, you truly are one in a million! Only you could bring so much humour to a pilates class!

Reason to be fit #0117

Beat my alarm

Please sleep fairies, make sure I hear my alarm clock in the morning. It’s been such a long time since I have been to the gym and I would really like to go, early, before anyone else!


My alarms are set! The dreaded alarms! I just don’t hear them! Honestly I don’t,  we’ve had people stop before that ask me why I don’t get up when my alarm goes off or at least just turn it off! Well there is a simple reason, I don’t hear them!
I have to rely on my partner to wake me when my alarms go off! That’s no easy task, apparently I can be really nasty & conveniently I don’t have any recollection of it! Some people would think I just say that but I really don’t! 


I believe this is true, which for me means that looking in the mirror at myself must be the hardest thing in the world!
Well it is one of them for sure but I know there is harder for me! I’ll explain more about this in another blog!


I totally intend on waking up & being awesome from the start!
Like I said, it’s been too long since I went to the gym! If I want to continue toning my body then I have to get back to the gym!
The alarm is set! I will hear it! I will get up!


Looking forward to it! It’s late now, only 6 hours until that pesky alarm I’d due to scream!
Let’s do this!


MS, you will never beat me! #thisgirlcan #ishapeme #megaspecialme #MS

Our new favourite class! Fight Klub!
Absolutely amazing!
Photo taken just before I went off and poured half a litre of water over my head to cool down!
MS you can try and stop me from doing things I enjoy, I’ll find a way around it, you will never beat me!


My friend, pilates instructor and now also our fight klub instructor Hannah Bailey at the front.
Me and my partner at the back right, Deb in blue and me to the left of her!

Paingry – when your in so much pain you feel angry!

What to do when your Paingry – when your in so much pain you feel angry!

I want to scream so loud my throat hurts, I want to cry so much that I run out of tears!
Crying makes me angry, I try not to cry! I don’t like to feel angry! I’ve felt enough anger in my teenage years, I don’t want to feel like that again!
I need to get this feeling out of me!

It hurts so much to move though, every twist or turn of my body. Every step I take, one step out, leaning forward on that leg before I put my next leg down. The pain that shoots from my back, into my bottom and down my leg. Repeat that motion as I take one more step, the same pain on the other side now!

It’s too much, I need my appointment! Please let me have my appointment date in the post tomorrow! It’s been 2 weeks, I need that appointment!

I’m angry, this pain makes me angry! I’ve done nothing wrong to deserve this!

I don’t want to be angry! I need to let it out! I need to go to Fight Klub!



What’s that? You think I can’t do Fight Klub because I’m disabled!
Think again! No boundaries!

Adrenalin takes over, the pain is forgotten, I punch the bag! 👊 💥

In this time I know not of this disease inside me that no one can see.
I feel like I’m free!
Don’t stop me!

I need water, pour it over me
I’m too hot, I can’t see
So this is what happens when I want to feel free!
This is what I put my body through just to be me!

I’m dedicated and I’m on it!

I’m wondering how dedicated I actually am to pilates!
I’m so tired, It’s so cold outside, I’m in so much pain and the cold is only going to make that worse! Gahhh!


Ok, thought about it, weighed up the pros & cons!
11am Pilates, Hannah Bailey be ready for me girly!






#MiniBlog There are so many reasons to be happy

I surround myself in positive influences, positive people, proactive people!


I never thought, ever, for one minute, that I would be able to say ‘I accept my life and I like where I am in life right now’


#MS #exercise #smile #laughter #thisgirlcan #ishapeme #megaspecialme #MegaSpecial


She’s a Whirlwind

Just gotta totes love my amazing friend & pilates instructor, Hannah Bailey. Did I mention she’s my ‘Fight Klub’ instructor too!

Photo took last night as she arrived for Fight Klub after she’d just taught ‘Clubbercise’ What a combo!
Yesterday she went from teaching adults with learning difficulties to aqua to pilates to clubbercise to the next class, ‘FIGHT CLUB’
She’s awesome, she’s mean! 👊💥
Then after class, she’s the wonderful Hannah!
Somewhere in all that madness she’s also a Specialist in pregnancy and sports massage! You just can’t imagine it can u!

5 years ago I would never have thought that I would be living this life with these friends and loving it!
I always loved different sports and activities but then MS and life stopped that!
MS will not stop me living my life any longer! Even if it means changing what I do, which I have and do you know what, it’s amazing!

It’s friends like Hannah that inspire me & give me my energy!
Everyone needs a Hannah! 😄


Improved pain scale

Improved pain scale, much better than the one with the faces! I especially like number 9: ‘Mauled by a bear – or ninjas’


The regular pain scale used by the NHS here in the UK


I personally prefer the humour to the first one