I’m not one to enjoy sitting around doing nothing!
When you have MS and an infection, doing nothing really is the best we can do!
What I really want to do though is go to my Yoga class as I normally do with Louise my Yoga teacher!
Tag: warrior woman
MS effecting my speech…
Another referral due to my MS!
Its crazy how much of ‘you’ MS affects!
My voice hasn’t sounded the same for around 4 years!
Nothing major, I just constantly sound as though I have a cold!
The most annoying thing now is the amount of times I get asked to repeat myself!
I can’t tell what volume I should be using so can occasionally speak very loud!
The worst is when my voice becomes a whisper and I slurr my words!
All because MS has affected my swallow!
When I used to get asked if my swallow was okay at routine check ups, I always thought the consultant meant ‘do I choke often’
Answer: “occasionally”
I never linked the question to the problems I have with my voice! And yet it makes total sense!
Doh!!! 👅😝
Breathe!
1-1 Yoga!
Today I will try to remember that where ever I get to in my practice is ok!
I will remember that not only have I completely stopped one of my MS nerve pain meds but I have also halved the main one as well!
Today I will remember not to be hard on myself because this is going to hurt & there’s a reason for it!
I have to overcome the pain and not let it overcome me! I am in charge of own thoughts!
It is with my mind and the breath alone that will get me through this!
As with all my blogs please feel free to share using the options at the end of this blog.
Any comments are also always welcome!
Thanks, Vix
Tysabri (natalizumab)
Monday already and the alarm is set to wake me up in less than five hours!
Its been four weeks since my last infusion so that can only mean one thing… Time for some more of the good stuff when daylight breaks!
This is my super juice! My drug not so much of choice because, come on, really who chooses to pump chemicals like this through their veins without getting a ‘high’ afterwards!
Actually, thinking about it, yes, I choose! I choose this over monthly relapses, over loosing my vision, over being wheelchair bound!
And there is a high, eventually, after the initial feeling like crap! The high is in the knowing that I have been relapse free and steroid free for a whole year now! Knowing that the relapse I know i had last year was minimal in comparison to before I was put on to Tysabri!
So heres to you NHS! I salute you for the service you provide for me & my MS family and anyone else that calls upon you!
Eternally grateful, me!
MS, you took my speech!?
Cog fog! (Cognitive function)
Speech! Say no more!
Major frustration when your constantly asked to repeat yourself because you having a massive sensory overload!
Feel for my Mum, must be upsetting to have to keep asking all the time!
She’s not used to hearing me like this as she lives in a different country to me! 😥
Damn you MS! Give me back my speech!
Busy week!
So heres what happened this morning, yes I know, its only 9am!
Ok, so, I got myself ready for the gym. Thanks to my gawd damn awful chronic pain and having to increase my medication, I have put too much weight on & I’m incredibly unhappy!
I did at least find out that it is the medication that has caused the gain!
So I’ve decided to start going back to the gym & really give myself that push I obviously need!
Anywayyyyy! I arrived at the gym & was just starting to put my disabled parking badge in the window when my phone made a noise (I never know what sound means what!)
As I looked at my phone it reminded me of my physiotherapy appointment at the hospital!
It also reminded me of my Chiropody appointment this afternoon!
OH MAAAAN!
Its appears to be a week of medical appointments!
• Had my Tysabri yesterday (monthly MS meds)
• Physio today
• Chiropody today
• Blood test today
• Yearly MS review tomorrow with Neurologist!
The fun just never stops!
Monday motivation!
Monday motivation!
•Don’t ever say you can’t!
•Don’t ever think MS means the end of sport!
•Don’t ever stop reaching for your dreams!
If you want it as much as you say you do, make it happen!
All these paralympians did AND they have MS!
We are warriors!
Despite what it says, I won’t let it win! Its hard, its MF hard but we are warriors!
Put your hands up if you won’t let Chronic Illness take over your life!
🙌
SHE DID IT! Stephanie Millward YOUR OUR GOLDEN GIRL!
Proud friend moment!
SHE DID IT! Stephanie Millward YOUR OUR GOLDEN GIRL!
Can’t wait to catch up with u when you get home!
Gold at Rio Paralympics!
18 years diagnosed with MS, she never stopped believing, put everything into it & she’s gone and done it!
I’m so proud!
🏅🏅🏅🏅🏅🏅🏅🏅🏅🏅🏅🏅🏅🏅🏅
Proving MS doesn’t stop dreams coming true! 💞
Making a down day happier…
Having a pretty shitty day today tbh, so fatigued its unreal! Every day lately seems like I have to push myself harder, just to move my body and that’s without actually thinking about what I want my body to do! That takes even more effort! Long gone are those days that I can do things without thinking!
Right now, MS sucks but guess what, I was looking through my pictures on my phone, to find something that reflects my current mood…
That’s when I saw this photo and everything changed!
This photo was taken last Sunday when I yes me, drove the furthest I have ever driven (90 miles to South Yorkshire) to see my MS sister & the rest of our faaaamily! Of course I had my DebbieRahRah as SatDeb & navigator. What makes me feel more proud, was that I drove without feeling nervous!
This beautiful lady is my Kindred Spirit, she has helped me through my MS more than she’ll take credit for! I only need to see her smiley face and my mood lifts!
Thank you Sarah Hickman for making my day cheerier!
(And I know exactly what she’s saying when she reads this… Either “oh behave” or “stoppppp”)
🙊😂💋💖💞
Living life the MegaSpecial way! 