What a wonderful afternoon! My first ever proper group Xmas meal with the Pilates peeps! 25+ ladies & 3 gents!

I was so nervous about going because of my MS and how anxious I get about every silly little thing! As always there was no need for me to worry, Hannah Bailey our Pilates instructor made sure of that! Thank you so much for looking after me Hannah! Did I get you when I threw my drink across the table? That ‘was’ an accident I promise, don’t make it a hard pilates class because of it! 😉

It was a lovely meal which I managed to cut by myself becasue I remembered to take my ergonomic cutlery! This may seem odd to people but I feel so proud of myself for doing that, that’s a massive step to acceptance for me.

I loved how people in the group kept coming to our end of the table to mingle as it meant I could stay sitting which wouldn’t add to my fatigue!

Thanks to Kate King (old *not in years* pilates instructor) for making an appearance! I’m amazed I managed to keep that suprise to myself!

Thanks to Hannah (1 of our current pilates instructors) for looking after me! Even though for some reason she was hanging onto me on the way out!
Really Hannah! Not a good idea to hang onto a wobbly MegaSpecial especially one that was as fatigued as me after that busy busy wonderful lunch 😉

Lisa Perry, you were definitely missed girly! I hope u are resting up and not feeling to poorly now 😐

And lastly a huge thanks to Linda Treadwell for organising the whole meal! What an amazing job u did! ❤

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Left to right: Kate, Hannah & me sitting down
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Left to right: Hannah & Kate
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Left to Right: Kate & me
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Left to Right, Top row: Hannah, Colin, me & lovely lady I sat next to! 😨 MeSsy moment... I forgot her name! Oops!
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The Pilates peeps!


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Why does shopping have to be so painful!

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Christmas shopping done & so am I! Done in & in so much pain! Sat in car waiting for DebbieRahRah whilst watching all the crazy people look for parking spaces!
The world goes mad at this time of year! This is when you never forget what month your in!
#Christmas #crazy #shopping #itschristmas


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Funny old day! It must be Monday!

So far today…
*I have had the worst Xmas shopping experience ever, where I nearly got down on the floor in Argos to do some pilates stretches hoping they would relieve my back pain even if just a little! Decided against that, only because I couldn’t get down to the floor & it was filthy anyway! (Sorry Lisa Perry, thanks for the reminder but I did them when I got home!)
*I’ve been given a sample of snail gel, or ‘snail slime’ as the lovely assistant in Holland & Barrett called it! Im not even nearly tempted to try it & will gladly pass it on to abyone that would like to try it if DebbieRahRah doesn’t want to!
*The H&B assistant also gave me some lozenges to try as well as the snail slime! I very politely asked if they were made from the snails shell! Good job she knows me & my humour 🙊🙈
*I nearly broke down in tears whilst on the phone to the pain clinic, just because the secretary said she would try her best to speed up my appointment for treatment. Skipping the consultation in January as I’ve seen the consultant plenty of times now for him to know me!
*I nearly stabbed myself in the foot whilst trying to make sure my delicate and mahoosive bougainvillea (plant) is wrapped up & warm ready for winter!
AND
*My phone decided it no longer wanted to have the Facebook app on it any where, even though ‘Google Play’ said it was installed! After a mini meltdown, restarting my phone several times, taking the battery out, taking the sim card & SD card out the Facebook app has reappeared! I have no idea why I thought taking the sim & SD card out was a good idea but something worked!

Glad to be home! Not moving from this sofa except when performing the triangle manoeuvre… Toilet, Kettle & back to the sofa! 👍👏

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Snail slime! Really! 😨
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Snail shell lozenges! No, not really 🙊
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The sissors that fell so close to my foot but landed perfectly! Couldn't do that again if I tried!


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Multiple Sclerosis fact #5, vision problems

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Needle point, one of my favourite things to do!
Threading A needle is fun when there’s TWO of them (thank you double vision)

Sewing a seam is joyous when you need the cloth and the thread to be identical in colour. This means with my MS vision I can’t tell where I have sewn and where I need to sew (thank you loss of contrast)

It’s no wonder I always end up with a pile of items waiting to be repaired!
When something joyful becomes dreadful!

40 minutes later and I’m still trying to thread the needle!

Obviously the danger is this, having a disease that drains my energy so rapidly means that I do tend to fall asleep at the drop of a hat! This always happens if I’m stationary for a long time. If you weren’t aware, sewing requires you to sit on the same place for a certain amount of time. It really wouldn’t take much for me to nod off & poke myself in the eye with the needle!

Thats why we’re MegaSpecial! Because we do really silly things, the great thing is, we train ourselves to laugh at the silly things! It gets us through!


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Brrrrr! It’s a little chilly!

If there’s one thing I can guarantee with my MS, it hates the slightest change in temperature! Anything between 18.5°C & 20.5°C is fine but lower or gawd forbid higher then there’s trouble!

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Me (right) and my MegaSpecial Sistaaah Sare (left) in Cyprys

2 years ago I went to visit my Mum in Cyprus with my MegaSpecial Sistaaah Sarah (from another mista, aka my best friend!) Her MS just adores dry heat and my is it hot in Cyprus! Unfortunately I spent most of the holiday in so much pain! Luckily I had my Mummy and DdyPaul looking after me whilst my MegaSpecial Sistaaah Sare was keeping me busy with laughter!
Despite the pain I still had a wonderful holiday!

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On the other scale is days like today when the temperature really starts to plummet and winter sets in! Nights like this when I have to increase my ‘Pregabalin’ (nerve pain meds) to help me with my pain through the night!
I’m not sure which is the worst? The pain in the winter when my Spasticity in my legs, arms and hands is worse or the pain in the Summer when my MS Fatigue is worse!


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