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Tag: fatigue
When u forget things work because of #msfatigue
Charging my phone wondering where the USB end of the lead fits into my phone!
I’ve charged my phone millions of times! Where does it go?
The realisation that the USB end goes into a plug or in this case my lap top & the MINI USB goes into the bottom of my phone!
This is MS fatigue! Oh my MegaSpecial life! It’s never dull! 😜
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Practicing Pilates at home can have its downsides #pilates #pilates4ms #pilateslovers #ms #spms #multiplesclerosis #thisgirlcan #ishapeme
Today I did my best ever Pilates ‘100’ (top pic) every time I seem to be getting better especially when I do it ‘Hannah style’ (one of my Pilates instructors)
Beating away trying my best to keep count on my last set & our dog decided she wanted a drink, anyone that knows Ollie will also know that she has got to be the messiest dog when it comes to drinking!
I knew it was going to happen, I don’t know why I didn’t move sooner! There I am lying on the kitchen floor, Ollie has a drink of water, walks over to me a drips it all on my face! 😨
Next was ‘The Plank’ (bottom picture) nothing quite as disgusting as above but really annoying for me!
My most impressive FULL Plank ever, yes… FULL PLANK and neither Deb nor me counted how long I held it for!
I’m not talking a record time or anything like that but surely something in the region of a minute which let me tell u, seriously impressive for me!
NEXT TIME I SET MY WATCH!
*pictures courtesy of google*
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Rock, roll & wide awake!
Well, my wifey fell asleep on the sofa at 8:15pm! I had to sort the kids (🐕🐕) believe me, that’s a mission! Make sure said wife took her meds after I found her catching flies slumped on one of the tub chairs in the kithen! Help her out of her onesie, never an easy mission!
Go round the bungalow making sure it’s all locked up, go around once more… u never know!
Sort myself out, meds, pjs etc. Check the doors where locked, I’d forgotten I’d already done it twice!
In bed before 9pm… BOOM! Rock, roll & wide awake!
Now who’s the one with MS! 😜
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When the right pain comes I smile #MS #multiplesclerosis #nervepain #nervedamage #painforgain #strongerthanMS #thismegaspecialrocks #thisgirlcan #ishapeme #MegaSpecial
I’m sure this is referring to pain for gain because the pain I feel right now is not making me smile!
Check list…
•Heavy lifeless legs ✔
•Extreme relentless pain for no good reason ✔
•deep burning like my thighs are in a furness ✔
Yep, must be MS! 😩
Bring on tomorrow’s Pilates! Pain for a reason! 👌👍👏
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I LOVE THAT CLASS SO MUCH BUT MY MS FREAKING HATES IT!
WOW! I LOVE THAT CLASS SO MUCH BUT MY MS FREAKING HATES IT!
Look at my face MS, do I look as if I care!
Fight Klub is intense & I love it!
So I can hardly breathe after & it takes me over 30 minutes to cool down to a safe temperature when we finish, do I care? Errr, No!
Three little words for you…
This
Girl
Can!
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In honour of Valentine’s day #valentine #love #lifeisgood #loving
#blog — It’s a better day! — #MS #positivevibes #strongerthanMS
It’s a better day!
Thumbs up from eye hospital & discharged! Booyahhh!
Just gotta have my normal vision check next week at normal opticians, possible new prescription for right eye which is the one that I’ve had Optic Neuritis (inflammation to the optic nerve) 3x according to their computers.
Ophthalmologist told me again my vision will never get better in my Right eye, I will always have a loss of contrast in it and would I like some IV (intravenous) steroids? Yes u read that right!!!
NO THANKYOU!
Oh and to the lady that jumped the car park pay machine que, was it really worth it? I mean, how much quicker did it get you? Well it didn’t did it, the rotating door made sure of that for you when u tried to exit the building! Whoops!
Happy Friday!
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You are amazing, remember that!
That’s a first!
Walk into shop to have a browse at some clothes. I don’t normally look at clothes on my own, I’m normally in my wheelchair because clothes shopping in particular can be very draining!
Came over with a feeling of major depression when i saw how tiny the clothes that I used to wear are!
Turned around and walked out!
Need some new make-up so went into Boots, walked towards make-up isles decided actually, I didn’t have the energy so turned around and walked out!
Major bummer!
Hope everyone else is having a better day than me!
Just one appointment this afternoon and then I’m going home to cuddle our furbabies!
Just goes to prove that we can’t always have all good days straight each other and also for me to remember that just coming out to the retail park is far better than what I would have done 2 years ago!
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Catching up with my pilates journey…
Catching up with my pilates journey…
On the 17th February 2016 I will have been practicing pilates for a whole year!
Heres a few things I have learnt in that year:
* To perform my best I had to position myself at the front of the class close to the instructor.
* Being at the front not only meant I couldn’t hide from the instructor, it also meant I would be seeing all of my reflection in the mirror!
* Acceptance of the image looking back at me in the mirror and not being able to hide from it!
* I need to have more patience with myself
* To trust myself more! That might not make sense unless you’ve taken Pilates before! Let me explain… trusting yourself is key when it comes to balancing in Pilates, trusting myself just a little bit more and I might be able to push myself more.
* I am now more aware of my muscles and using them correctly especially when walking!
* See my abdominal muscles take form! Something I had never dreamt of!
* It’s all about the core!
* Core muscles are key for anyone with MS
* Contracting the core muscles protects the spine
* It hurts my back A LOT if I forget to use my core muscles correctly when doing back work!
* I have found my passion!
Today’s class was so different to any I have been in before. I felt totally on form which I wasn’t expecting, especially after forgetting to take my Modafinil yesterday afternoon!

A lovely thing from today’s class was what the instructor wrote on my Facebook post I shared about forgetting to take my medication last night and how it effected me.
It’s great to know that all my hard work is paying off!
The other thing about today’s class was that it was recorded! Yes, recorded!
A member of staff from the leisure centre asked before the class started if she could record parts of the class. Everyone was asked if they were happy to be in the recording, as if I would say no to that!
Thinking about it now, I really hope I don’t look terrible! It will be interesting to see how well I executed the moves! I’m staying optimistic with that comment, surly Lisa would have corrected me if I’d have been awful!
Here’s some visuals of how I’m sure I looked today, after all, I was on form and I am getting stronger day by day!


Okay, maybe not that strong but I gave it my upmost!

When I heard that Lisa also does 1-1 Pilates classes I was really intrigued, then when Lisa told me that she comes to your home I booked straight away!
My 1-1 class is tomorrow! I think Lisa knows me well enough now to know that I’m feeling slightly nervous! No point hiding it… I couldn’t even if I tried!
I’ve either done something very crazy or very clever here with this!
I’ll let you know!
Now a shout out to a few people,
thank you…
*Christine Robinson, (AKA Crispie) for letting me come with you to your Pilates class for my first lesson!
*Kate King, my first instructor. Thank you for being so wonderfully understanding and encouraging! Still miss your classes!
* Hannah Bailey, your energy and enthusiasm inspires me! You have such a zest for life!
*Lisa Perry, you truly are one in a million! Only you could bring so much humour to a pilates class!

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