‘Just’ a slight temperature!
‘JUST’ is ‘JUST’ too much for an MSr or me specifically to much to function!
I thought i was ‘just’ the temperature yesterday (over 18°c is ‘just’ too much for my MS to handle!)
Turns out it wasn’t ‘just’ the temperature after all! It was this cold as well, hidden underneath how tired I was feeling!
Exercise classes cancelled, body resting, fluid intake increased & Ultra chloraseptic anaesthetic throat spray to hand!
I’ll soon be back on it! For now, rest rest rest!
Had a lovely morning today with a spot of hot sweaty Pilates! Might seem odd to some but that statement makes me feel so proud, being able to push myself to exercise in the heat & humidity without any air conditioning!
For anyone that isn’t familiar with heat/humidity & the effects on MSrs: It can & does (for me) bring on all of my MS symptoms I have experienced to date, normally tenfold!
I’ve finally found a way to manage this & continue to exercise.
I’ve just taken all my morning medication instead of my night ones! Ok, so my excuse… It’s morning!
Not the most clever of things to do when my morning meds contain a very strong tablet that I take for MS fatigue! This tablet is also taken by people that have narcolepsy, a sleeping illness where sufferers literally cannot stay awake!
Yeah! I took one of those when I should be sleeping! Oh joy!
Only I could do it! I want to sleep! It doesn’t hurt when I’m asleep
I’ve had Deb at home as it’s Monday, her day off. The Only class I didn’t attend was the MS exercise class. Like I said in yesterday’s blog, even though it’s all seated exercise it would still be too much for me to do!
Because Deb was home that was a good distraction for me to not keep checking the time, although I did have a few cheeky time checks. No comments on facebook about it either, I can’t help but think I wasn’t missed. Silly of me right! I just don’t like to miss out on anything! Right or wrong, that’s who I am!
We had some visitors this afternoon, another good distraction from the pain!
My Dad and Stepmum popped round with their 2 sight hounds, Ava the Saluki & Finly the Lurcher.
They have only had Finly for 6 weeks so him and ours are still getting to know each other. All fun and games! A great distraction from the pain I’m still getting in my legs and spine when I’m standing.
This Evening
A boring hour and half whilst Deb and Adam went off to Fight Klub! I’m not a happy bunny, I’ve got my new boxing gloves and can’t try them out! Humph!
Tomorrow
I have to be prepared for my mood tomorrow! I’ll be missing Pilates with Hannah Bailey and then Body Combat in the evening with Gill Cathcart!
What on earth did I used to do before exercise took over my/our life!
I know I wasn’t as happy when I didn’t go to the gym or all these classes!
Think about this,
If we all just did a little bit more to look after ourselves would we be living in a happier world?
Myles came to support me yesterday for my ‘Denervation & sacroiliac joint facet steroid injections’ at University hospital Coventry but was feeling a little nervous about going into day surgery & wouldn’t get out of my bag!…
Whilst I was getting settled in my hospital bed for the day Myles was checking out his surroundings…
It can get very boring waiting for your turn in theatre so we had a look at what we could do to pass the time…
After having a little read of the book Myles then decided to have a go at a sudoku puzzle!…
Myles wasn’t very happy because he wasn’t allowed in theatre with me but was over the moon when I came out and took the opportunity for some selfies!…
I always try and stay positive & with as ManySmiles as I can! How could I not smile with a cup of tea in my hand and a bear on my arm!…
I had a few things done yesterday, one procidure called denervation (pronounced De-Nerve-Ation) the consultant puts needles deep into my lower spine and attatches a machine that litterally burns the nerves at 80°c! This procedure stops the pain messages travelling from the nerve to the brain!
During the other procedure the consultant injects steroids into both of my sacroiliac joints (where the hips join the spine)
Image courtesy of cooldesign at FreeDigitalPhotos.net
This time he did denervation higher up my spine as well because the pain was stopping me from being backwards!
Phew!
The procedures took just over an hour & I was awake for all of it!
Last 2 times I had it done, I could only stand him doing one side so had to go back another day for the other side to be done!
This time i managed to bare the painful procedures and the consultant did it all in one go!
Image courtesy of Stuart Miles at FreeDigitalPhotos.net
Brilliant Fight Klub last night with Hannah Bailey!
Had this T-shirt with me so whilst I finished the class early as usual to try my best to get my temperature down, I thought it most appropriate to hold this top up during the gruelling abs section!
Everyone seemed to appreciate it 😄
Btw, I wish I could take part in the abs section but I have to use that time to cool down!
My internal thermometer is fooked thanks to my MS! When I over heat it triggers all of my symptoms, meaning I can hardly walk, balance, see, hear, talk, oh the list goes on!
At least once my temperature is at a safe level my symptoms subside and I just walk and talk like I’m pissed!
I’m so pleased I’ve found something that helps to keep me cool!
*the t-shirt doesn’t keep me cool, just to clear that up! It’s a cloth that is extremely cold when wet! For those that attend fight klub or any other cardio classes I attend, it’s that pink cloth I always have either around my neck or over my head like a nun! 😂😜*
Today I hoovered up hundreds of star confetti from my birthday, hoovered dog hair out of the bath & hoovered up all of the tiny stones from the garden that end up in the kitchen!
All of this was after sleeping through half of the day!
Image courtesy of Stuart Miles at FreeDigitalPhoto.jpg
I once saw a post on Facebook from someone advertising her time. A lady that loves horses and was looking for horse owners to let her help out at their yard. She offered to groom the horse, exercise it and even do the dirty jobs like muck clean the stable!
Basically she was advertising herself to do the same job as a groom who would cost a whole lot more than she was asking because she was offering to do all the work for free!
Image courtesy of dan at FreeDigitalPhotos.net
Why don’t cleaners offer to work for free!
All I ask is for someone to offer to do all of our housework for absolutely no payment because they love doing it so much and can’t get enough of their own!
Image courtesy of radnatt at FreeDigitalPhotos.net.jpg
Well what a wonderful day my Birthday has been!
I’ve been completely spoilt as always by DebbieRahRah!
Had over 100 lovely Birthday messages on facebook alone! – thank you!
Been given so many beautiful cards & gifts – thank you again!
I got to spend the morning with my Mummy, DebbieRahRah & the kids!
Then it was lunch with my Daddy, Mummy Ju, MegaSpecial Sistaaah Sare from Yorkshire land, her hubby AndyRoo & their Son Lewis and of course not forgetting DebbieRahRah (can’t function without her!)
Back to ours for giggles with DebbieRahRah, Sare, AndyRoo, Lewis, Mummy & my brother.
WhatsApp call with my SistaBlista SkEmily in Texas because Skype wouldn’t work! Good job she has a brain & knows how to use it and press call on WhatsApp because I was starting to go into melt down mode when Skype wouldn’t work!
Then a quick change, apply more makeup & off out again for meal number 2! (I know 😱)
Like i say, an amazing day!
I only wish I could say that my MS didn’t get in the way but to speak the truth my pain has been so much worse than any other day! Because it’s been so full on & busy I didn’t have time to think about my medication other than thinking ‘all I can have is paracetamol because of allergies & normal MS meds’
It wasn’t until I went to get my night time meds that I realised I hadn’t taken ANY of my medication in the morning!
*WARNING – I may be slower than the norm tomorrow*
Living life the MegaSpecial way! 