Another wonderful post from the page I follow on Facebook ‘Positive living with MS’
Post continues on website
http://positivelivingwithms.com/2015/11/30/its-my-party-and-ill-have-fun-if-i-want-to/#.Vlx01qdFDqB
megaspecial.co.uk
Tag: MS
Funny old day! It must be Monday!
So far today…
*I have had the worst Xmas shopping experience ever, where I nearly got down on the floor in Argos to do some pilates stretches hoping they would relieve my back pain even if just a little! Decided against that, only because I couldn’t get down to the floor & it was filthy anyway! (Sorry Lisa Perry, thanks for the reminder but I did them when I got home!)
*I’ve been given a sample of snail gel, or ‘snail slime’ as the lovely assistant in Holland & Barrett called it! Im not even nearly tempted to try it & will gladly pass it on to abyone that would like to try it if DebbieRahRah doesn’t want to!
*The H&B assistant also gave me some lozenges to try as well as the snail slime! I very politely asked if they were made from the snails shell! Good job she knows me & my humour 🙊🙈
*I nearly broke down in tears whilst on the phone to the pain clinic, just because the secretary said she would try her best to speed up my appointment for treatment. Skipping the consultation in January as I’ve seen the consultant plenty of times now for him to know me!
*I nearly stabbed myself in the foot whilst trying to make sure my delicate and mahoosive bougainvillea (plant) is wrapped up & warm ready for winter!
AND
*My phone decided it no longer wanted to have the Facebook app on it any where, even though ‘Google Play’ said it was installed! After a mini meltdown, restarting my phone several times, taking the battery out, taking the sim card & SD card out the Facebook app has reappeared! I have no idea why I thought taking the sim & SD card out was a good idea but something worked!
Glad to be home! Not moving from this sofa except when performing the triangle manoeuvre… Toilet, Kettle & back to the sofa! 👍👏
megaspecial.co.uk
Pain medication
Will I ever change!? I went to get my fatigue meds this afternoon like I do everyday and my morning meds were still in the medicine wallet!
Well that explains why I’ve been in extreme pain today then!
I’m happy to report it wasn’t my visit to the gym last night that has made my pain worse but the fact that I didn’t take my nerve meds until 2pm!
What a numpty!
I’m now no longer in as much pain as I was this morning/afternoon! The way I was feeling I really didn’t think I would be ok to go out to the cinema for our friends belated birthday present! That’s where I am now, sitting waiting for the film to start. We’ve come to watch the final part of ‘The Hunger Games’
*I hope I don’t fall asleep, it’s been know to happen!*
ROLL TITLES 😉
megaspecial.co.uk
Multiple Sclerosis fact #5, vision problems
Needle point, one of my favourite things to do!
Threading A needle is fun when there’s TWO of them (thank you double vision)
Sewing a seam is joyous when you need the cloth and the thread to be identical in colour. This means with my MS vision I can’t tell where I have sewn and where I need to sew (thank you loss of contrast)
It’s no wonder I always end up with a pile of items waiting to be repaired!
When something joyful becomes dreadful!
40 minutes later and I’m still trying to thread the needle!
Obviously the danger is this, having a disease that drains my energy so rapidly means that I do tend to fall asleep at the drop of a hat! This always happens if I’m stationary for a long time. If you weren’t aware, sewing requires you to sit on the same place for a certain amount of time. It really wouldn’t take much for me to nod off & poke myself in the eye with the needle!
Thats why we’re MegaSpecial! Because we do really silly things, the great thing is, we train ourselves to laugh at the silly things! It gets us through!
megaspecial.co.uk
I’m cold, it hurts if I get too hot but can’t feel heat to touch!
Gotta love my Debbie for switching the electric blanket on last night for when I went to bed!
Gotta hate my MS for me not even realising it was on (I couldn’t feel the difference in temperature!)
I’d done myself a hot water bottle as well & took it to bed with me warming my back to ease the pain!
Oh my days! Can u imagine!
megaspecial.co.uk
Can I learn a new skill?
Arghhhh! I’m so frustrated!
Learning new skills when you have MS is like trying to ride a bike backwards!
You need patience of a saint and do not cry when you fall off! Just pick the bike up and away you go again!
No one said it would be easy!
megaspecial.co.uk
MS Exercise class
Today I went to an exercise class purely for people that have MS. This class is funded and run by the MS Society at my local Leisure Centre. It’s on twice a month and I go to it whenever I possibly can.
I’ve been going to these classes on and off since the summer. They are challenging, tiring and great fun!
The class is taught by Laura, a wonderful fitness instructor I know from a class called ‘Forever fit’. This class is for seniors and is on after the Pilates class I attend on a Wednesday.
All of the exercises in the MS class are done whilst sitting down, which means that everyone can take part, no one is excluded from these classes!
Who’d have thought marching your legs and lifting light weights with opposite arms at the same time would be so confusing!
Who’d have thought lifting your legs whilst tapping your feet forwards, centre, back, opposite leg and repeat would be so confusing!
It’s like patting your head with one hand and rubbing your tummy with the other! The brain has to do two things at the same time with both hands, you have to really concentrate.
So let’s now imagine everyone in the room is tapping the floor with their feet at the same time, great!
But then…
What, what, someone is out of time! Now I’m getting confused because the beat is changing. It was then that I realised the lady wasn’t tapping out of time but her right leg had started to tremor and was tapping uncontrollably. Now everyone had lost their concentration, we all started to laugh as the lady with the tremor tried to control it!
It’s moments like those that are priceless, when a group of people all with the same debilitating disease can laugh at it. When we see the funny side to our ‘uniquely different’ debilitating disease!
This is where my other saying for ‘MS’ comes from, ‘ManySmiles’
If you know anyone with MS (if you have MS yourself you’ll ‘get this’), take notice next time you are in the company of these wonderfully MegaSpecial people. See how much they smile! Hear how much they laugh! Then notice that it’s normally at ourselves!
I had a lovely card off one of the ladies at the exercise class today, unfortunately it’s in the car and with the temperature somewhere near 0°c I’ll leave it there and share it with you tomorrow! All I’ll say is, it’s beautiful! Its so lovely that I needed to hug her directly after reading it!
That was my workout done for the day!
Deb got home from work at 17:45 had a cup of tea and went off to the gym! What a difference in us both!
1: We now exercise regularly
2: We eat healthily
3: I only did one work out today!
Yep! What a difference! I hung up my Wonderwoman suit! I said to myself (and Deb of course) when we got back from our lovely holiday that it was definitely time for me to apply the brakes, so that is exactly what I have been doing! And I feel proud for doing it! I hurt more because the hormones released when exercising help me manage my pain but, I feel proud!
megaspecial.co.uk
Happy Monday smiles!
Always a reason to smile! Happy Monday folks!
megaspecial.co.uk
Sativex
Can I ask a massive favour, please can you sign this petition and share it with others to.
This medication is NOT available in England yet but if it was it would help me and a lot of my friends that have MS!
https://petition.parliament.uk/petitions/111992
megaspecial.co.uk
Brrrrr! It’s a little chilly!
If there’s one thing I can guarantee with my MS, it hates the slightest change in temperature! Anything between 18.5°C & 20.5°C is fine but lower or gawd forbid higher then there’s trouble!
2 years ago I went to visit my Mum in Cyprus with my MegaSpecial Sistaaah Sarah (from another mista, aka my best friend!) Her MS just adores dry heat and my is it hot in Cyprus! Unfortunately I spent most of the holiday in so much pain! Luckily I had my Mummy and DdyPaul looking after me whilst my MegaSpecial Sistaaah Sare was keeping me busy with laughter!
Despite the pain I still had a wonderful holiday!
On the other scale is days like today when the temperature really starts to plummet and winter sets in! Nights like this when I have to increase my ‘Pregabalin’ (nerve pain meds) to help me with my pain through the night!
I’m not sure which is the worst? The pain in the winter when my Spasticity in my legs, arms and hands is worse or the pain in the Summer when my MS Fatigue is worse!
megaspecial.co.uk
Living life the MegaSpecial way! 