This is Vix.
Vix is disabled.
Vix takes high risk meds.
Vix is exhausted.
Vix has a chronic illness.
Vix has no immune system.
Vix will never be cured.
But that’s ok, Vix looks fine.
Looks can be deceiving.
Vix illnesses are invisible.
But Vix illnesses are still real.
Be kind to Vix.
You could be Vix.
Vix is different to many.
Vix is determined.
Vix won’t be beaten.
Don’t feel sorry for Vix.
Be happy for Vix.
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I love holidays! Didn’t wake until 10am! Brucey Bonus! Especially for my DebbieRahRah who was literally kicked outta bed the night before!
I knew there was something I was supposed to talk with my Dr about! Oopsy!
Poor Deb gets kicked or punched most nights making it impossible for her to sleep next to me! She never complains, she just sleeps on the sofa!
I’m so lucky she is so understanding!
As for me, all that kicking and punching means I wake up in more pain than usual and three times the amount of fatigue as normal!
Luckily I get to go to a wonderful pilates class! The only one this week which is such a shame but if I at to go to ‘Fight Klub’ and have lunch with friends I have to forfeit 2 pilates classes! Eik!
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My to-do list for today:
– Count my blessings
– Practise kindness
– Let go of what I can’t control
– Listen to my heart
– Be productive yet CALM
– Just breathe!
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That moment someone just found what you spent an hour looking for!
Fankchoo DebbieRahRah!
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Please sleep fairies, make sure I hear my alarm clock in the morning. It’s been such a long time since I have been to the gym and I would really like to go, early, before anyone else!
My alarms are set! The dreaded alarms! I just don’t hear them! Honestly I don’t, we’ve had people stop before that ask me why I don’t get up when my alarm goes off or at least just turn it off! Well there is a simple reason, I don’t hear them!
I have to rely on my partner to wake me when my alarms go off! That’s no easy task, apparently I can be really nasty & conveniently I don’t have any recollection of it! Some people would think I just say that but I really don’t!
I believe this is true, which for me means that looking in the mirror at myself must be the hardest thing in the world!
Well it is one of them for sure but I know there is harder for me! I’ll explain more about this in another blog!
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I totally intend on waking up & being awesome from the start!
Like I said, it’s been too long since I went to the gym! If I want to continue toning my body then I have to get back to the gym!
The alarm is set! I will hear it! I will get up!
Looking forward to it! It’s late now, only 6 hours until that pesky alarm I’d due to scream!
Let’s do this!
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Cuddles with the kids whilst watching rubbish on the TV!
I’m going to seriously miss Saturdays like these! Saturdays have turned back into work days for Deb!
Making the most of today! It is the start of her week holiday after all! 💋
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Spot the cheat! It took me a while! Tee hee hee
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Our new favourite class! Fight Klub!
Absolutely amazing!
Photo taken just before I went off and poured half a litre of water over my head to cool down!
MS you can try and stop me from doing things I enjoy, I’ll find a way around it, you will never beat me!
My friend, pilates instructor and now also our fight klub instructor Hannah Bailey at the front.
Me and my partner at the back right, Deb in blue and me to the left of her!
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What to do when your Paingry – when your in so much pain you feel angry!
I want to scream so loud my throat hurts, I want to cry so much that I run out of tears!
Crying makes me angry, I try not to cry! I don’t like to feel angry! I’ve felt enough anger in my teenage years, I don’t want to feel like that again!
I need to get this feeling out of me!
It hurts so much to move though, every twist or turn of my body. Every step I take, one step out, leaning forward on that leg before I put my next leg down. The pain that shoots from my back, into my bottom and down my leg. Repeat that motion as I take one more step, the same pain on the other side now!
It’s too much, I need my appointment! Please let me have my appointment date in the post tomorrow! It’s been 2 weeks, I need that appointment!
I’m angry, this pain makes me angry! I’ve done nothing wrong to deserve this!
I don’t want to be angry! I need to let it out! I need to go to Fight Klub!
What’s that? You think I can’t do Fight Klub because I’m disabled!
Think again! No boundaries!
Adrenalin takes over, the pain is forgotten, I punch the bag! 👊 💥
In this time I know not of this disease inside me that no one can see.
I feel like I’m free!
Don’t stop me!
I need water, pour it over me
I’m too hot, I can’t see
So this is what happens when I want to feel free!
This is what I put my body through just to be me!
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Living life the MegaSpecial way! 