Before the networks jam, before your glass gets to full, I’d just like 2 wish everyone a very happy, prosperous & healthy 2016!
Thank you for your support this year!
Let’s make 2016 a year to remember for only good reasons!
Go make memories!
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I am a strong woman!
I don’t sit around feeling sorry for myself, nor let people mistreat me.
I don’t reaping to people who dictate to me or try to bring me down. If I fall I will rise up even stronger becasue I am a survivor not a victim.
I am in control of my life and there is nothing I can’t achieve!
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Tired tired tired! Pain is so demanding, but look, there’s a little smile there!
I’m trying!
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Improved pain scale, much better than the one with the faces! I especially like number 9: ‘Mauled by a bear – or ninjas’
The regular pain scale used by the NHS here in the UK
I personally prefer the humour to the first one
X
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If there’s one thing I can guarantee with my MS, it hates the slightest change in temperature! Anything between 18.5°C & 20.5°C is fine but lower or gawd forbid higher then there’s trouble!
2 years ago I went to visit my Mum in Cyprus with my MegaSpecial Sistaaah Sarah (from another mista, aka my best friend!) Her MS just adores dry heat and my is it hot in Cyprus! Unfortunately I spent most of the holiday in so much pain! Luckily I had my Mummy and DdyPaul looking after me whilst my MegaSpecial Sistaaah Sare was keeping me busy with laughter!
Despite the pain I still had a wonderful holiday!
On the other scale is days like today when the temperature really starts to plummet and winter sets in! Nights like this when I have to increase my ‘Pregabalin’ (nerve pain meds) to help me with my pain through the night!
I’m not sure which is the worst? The pain in the winter when my Spasticity in my legs, arms and hands is worse or the pain in the Summer when my MS Fatigue is worse!
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Everything about this is true!
Although it should also say…
— you feel like a normie when your with friends that also have Invisible illnesses!
— when with said friends you can guarantee at some point the conversation with turn to your bladder or bowel movements!
Don’t we live the high life hey!
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I know the feeling but it’s so much easier to say your ok than to create pain for someone that loves you when they find out how much your hurting!
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MS is cruel, steroids are evil and I’m feeling fragile!
I’m on my way to the appointment with the Neurologist to find out if this is an MS relapse or not.
Wish me luck!
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This is a great graphic to show how I am feeling today!
A shorter blog today as I’m not very focused on what I’m wanting to do. Concentrating is so hard when you have Methylprednisolone or Steroids pumping through your body! I feel like I’ve been in the wash on a fast spin and thrown in the tumble dryer to dry out!
Perhaps I would make an ideal member of the cast for ‘Walking dead’ becasue thats exactly how I feel! One because that is how my MS makes me feel and two because that is how Steroids make me feel! Double whammy
Tomorrow is my reschedualed appointmnet to see the nurse Neurologist. I was supposed to see my MS nurse today but becasue of my new MS symptoms she cancelled the appointment and booked me in to see one of the Neurologists tomorrow, I’m happy that she will be there as well as I have had issues with the Neurologist in the past!
For anyone to say they are looking forward to an appointment with the Neurologist would be speaking far from the truth! When ever I see this particular Neurologist I always worry ‘what if I can’t communicate how I am feeling properly’ that then leads me to thinking ‘what if I make no sense, will he think I’m a hypochondriac?’
I really dislike this man that I’m seeing tomorrow.
Now I’m starting to get palpitations which could easily be down to the steroids, it could also be because of the anxiety I’m feeling about this appointment tomorrow.
I really hope he doesn’t want me to have an extra day on the steroids which would take me up to the full treatment course. Well tomorrow will soon be here and I hope to have some answers!
The things I have learnt today (but may have already known before and had just forgotten)
1: Steroids are Soul destroying
2: Steroids make everything taste like the worst thing imaginable.
3: Every time my MS plays up like this I feel as though it takes a little bit of me away.
So after the 3 hours cat-napping I had last night I’ve actually had a really good day!
I certainly didn’t expect to feel as awake as I have, which is saying something as I’ve felt as though at some point during the early hours I felt as though I was thwacked across the head with a baseball bat! A bit melodramatic?
Welcome to the world of the MegaSpecial on Prednisone steroids where ANY thing goes! Buckle in, it’s gonna be a bumpy ride.
It’s been our normalish Sunday, we took Ollie our 12 year female Labrador with hip dysplasia to her regular hydrotherapy, then lunch at The Weavers Arms and home for a film. Special thanks to Shelley & Deb for twisting my arm (Shelley mostly) making me indulge in a warm chocolate fudge cake and icecream for desert at The Weavers! A special treat, not that I have it often! What!? Shhh!
Oh wait, I missed the most important thing out… Sunday morning at the gym, well that’s because I didn’t go! Resting my body and all that! I have to remember to be kind to myself whilst I’m on these steroids for a possible MS relapse.
Did I forget to say anything else about today? Of course, my bright red cherry tomatoe hamster pouch steroid face! My check bones have nearly vanished (again) & I look like I’ve done one of Kate Kings hour long fast paced Pilates classes! I wish! But I’m used to this flushed look now so I can handle it.
I’ve been doing so well on my diet, so people keep reminding me! I’m one of those that ‘can surely always do better despite my Chronic illness!’ right? I need to stop being so hard on myself! Two stone lighter and then I go and have to take a course of Prednisone steroids which have to be one of the worst drugs for weight gain that I know! Oh yeah, there is that other drug that I was made to eat earlier! The drug of Chocolate cake, that is surely as bad as steroids! No? Worse? Really! Woops!
I think I’ll wrap it up there! I’m pleased with how my 2 days have been so far, no real improvement with the suspected relapse but like I say it’s only day 2!
Another very late night, I hope this insomnia doesn’t last too long. It’s a horrible thing insomnia! A very lonely time indeed when only a handful of my friends that ‘get me’ are still awake! ‘The spoonies’ as we tend to get called! These aren’t just people that have MS, these are friends that have different Chronic illnesses.
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Living life the MegaSpecial way! 