I’m dedicated and I’m on it!

I’m wondering how dedicated I actually am to pilates!
I’m so tired, It’s so cold outside, I’m in so much pain and the cold is only going to make that worse! Gahhh!

image

Ok, thought about it, weighed up the pros & cons!
11am Pilates, Hannah Bailey be ready for me girly!

image

I’M DEDICATED AND I’M ON IT!
WITH AN ALMIGHTY PUSH, I’M GOING!

image

image

image


megaspecial.co.uk

One tough cookie!

image

Well 5 years since diagnosis & the pain has only gotten worse! I don’t think it’s gonna end yet!
Dig in deep girly, we’re in this for the long haul!

image

Thank gawd I am strong! This is hard!

image

Good job I got the tough cookie genes!

image


megaspecial.co.uk

#MiniBlog There are so many reasons to be happy

I surround myself in positive influences, positive people, proactive people!

image

I never thought, ever, for one minute, that I would be able to say ‘I accept my life and I like where I am in life right now’

image

#MS #exercise #smile #laughter #thisgirlcan #ishapeme #megaspecialme #MegaSpecial

image


megaspecial.co.uk

She’s a Whirlwind

Just gotta totes love my amazing friend & pilates instructor, Hannah Bailey. Did I mention she’s my ‘Fight Klub’ instructor too!

Photo took last night as she arrived for Fight Klub after she’d just taught ‘Clubbercise’ What a combo!
Yesterday she went from teaching adults with learning difficulties to aqua to pilates to clubbercise to the next class, ‘FIGHT CLUB’
She’s awesome, she’s mean! 👊💥
Then after class, she’s the wonderful Hannah!
Somewhere in all that madness she’s also a Specialist in pregnancy and sports massage! You just can’t imagine it can u!

5 years ago I would never have thought that I would be living this life with these friends and loving it!
I always loved different sports and activities but then MS and life stopped that!
MS will not stop me living my life any longer! Even if it means changing what I do, which I have and do you know what, it’s amazing!

It’s friends like Hannah that inspire me & give me my energy!
Everyone needs a Hannah! 😄

image


megaspecial.co.uk

#Blog ‘Click your heels together & dance’

Considering the amount of pain I am in and the level of my Fatigue it still amazes me how I manage to do what I do!
This is why I am virtually kicking my heels together, dancing and celebrating my love for pilates and how with this I am literally finding my feet 👏

image


megaspecial.co.uk

I don’t want Alarms to wake me!

Nooooooo! Back to Alarms waking us up tomorrow then! 😠
It’s been a lovely 10 days of DebbieRahRah at home! We both wish it could last longer but keeping Fugly (our bungalow) isn’t free & due to me being unable to work…

She’s such a good un! 

Me however, what little sleep I get & how much I kick and punch her in the night I don’t know how she wakes me! Unless it’s for the gym of course!
I just want to remind people that I don’t punch and kick my wife for fun! In fact I have no control and no memory of it! It doesn’t wake me, I only know when I wake in the morning and she’s slept on the sofa!

No gym for me in the morning, I think in fact my appointment tomorrow is much better! I know, I know, is that possible I hear you cry!?
Yes it is… because I’m off to see a man about some pain relief! Yep, that day is finally here! Time to find out what Mr Pain clinic man can do for my back this time!…

image


megaspecial.co.uk

I am a strong woman

I am a strong woman!
I don’t sit around feeling sorry for myself, nor let people mistreat me.
I don’t reaping to people who dictate to me or try to bring me down. If I fall I will rise up even stronger becasue I am a survivor not a victim.
I am in control of my life and there is nothing I can’t achieve!

image


megaspecial.co.uk

Improved pain scale

Improved pain scale, much better than the one with the faces! I especially like number 9: ‘Mauled by a bear – or ninjas’

image

The regular pain scale used by the NHS here in the UK

image

I personally prefer the humour to the first one
X


megaspecial.co.uk

Brrrrr! It’s a little chilly!

If there’s one thing I can guarantee with my MS, it hates the slightest change in temperature! Anything between 18.5°C & 20.5°C is fine but lower or gawd forbid higher then there’s trouble!

image
Me (right) and my MegaSpecial Sistaaah Sare (left) in Cyprys

2 years ago I went to visit my Mum in Cyprus with my MegaSpecial Sistaaah Sarah (from another mista, aka my best friend!) Her MS just adores dry heat and my is it hot in Cyprus! Unfortunately I spent most of the holiday in so much pain! Luckily I had my Mummy and DdyPaul looking after me whilst my MegaSpecial Sistaaah Sare was keeping me busy with laughter!
Despite the pain I still had a wonderful holiday!

image

On the other scale is days like today when the temperature really starts to plummet and winter sets in! Nights like this when I have to increase my ‘Pregabalin’ (nerve pain meds) to help me with my pain through the night!
I’m not sure which is the worst? The pain in the winter when my Spasticity in my legs, arms and hands is worse or the pain in the Summer when my MS Fatigue is worse!


megaspecial.co.uk

MS is my Kryptonite & I am Supergirl!

Pilates is my happy hour!

So true!
For the time I’m in a pilates class I am that focused I am able to exercise through the pain!
Stretch it out!

My pain is so bad again!
Roll on pain clinic 4th January! Fingers crossed for a cancellation because I don’t know how I’ll manage with this pain just getting worse!

It’s hard to stay positive when your in pain but I try my best!

MS is my Kryptonite & I am Supergirl!

image


megaspecial.co.uk