Category: Constraints of my MS

“Would you try Marijuana gum for Multiple Sclerosis?” #miniblog #clickthelink #maijuana #pain #multiplesclerosis #ms

“Would you try Marijuana gum for Multiple Sclerosis?”

If it helps me with this continuous pain I am in, love I’ll try anything!

Looking at the page where I found this, every single persons answer was YES!

This link explains it all ⬇⬇⬇⬇⬇

http://healthmojo.org/2016/01/30/would-you-try-marijuana-gum-for-multiple-sclerosis/


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Stick your neck out! #miniblog #thisgirlcan #MS #multiplesclerosis #positivevibes #strongerthanMS #MegaSpecial

I love this!

“Behold the Turtle.
He makes progress only when he sticks his neck out.”

It sums me up completely!
Today I stuck my neck out further than the local sports centre or even my town centre!

Don’t get too excited, I didn’t go that far! Only a 25 minute drive to meet my first Pilates instructor Kate King for lunch!
It’s amazing what fun, laughter and happiness you miss if you keep shying away from doing something different!
Why do I shy away? Because I fear the unknown when I am by myself!
The journey there was easy, the food was delicious, the company was excellent! Where was the problem?!

Okay I had a few MegaSpecial (MSy) moments! Forgetting my cutlery for one! Overheating because I was sat next to a red hot radiator! Off came a layer of clothing, extra ice for my drink that my friend very gracefully decanted into my drink, thanks Kate 😂 Cooled me down nicely! Especially when I missed my mouth and managed to throw it down myself!

If there where any problems they were soon averted! Simples!

It’s been another great day!

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The White Room #MS #decorating #determination #blog

It’s been a great week even if it was hard work! All totally worth it!

Countless cups of tea for the hard worker, countless ending up down the sink too as I continually kept forgetting I’d left the tea bag in the mug brewing! Derrr!

I’ve done the best I could whilst also going to my MS exercise class & Pilates yesterday!
I helped wash down the skirting boards, cleaned the radiator, helped paper the one wall, tidying tidying & more tidying! And finally today the carpet was fitted and we got to do the best bit… dress the room!

DebbieRahRah has worked liked a trogen! She is amazing! Has had a week off work and decided to spend the time on what used to be called ‘The Elephant Room’
It’s new name… ‘The White Room’

I’m so lucky to have my DebbieRahRah who has now gone off to her 2nd Fight Klub class of the week!
I was supposed to go with her tonight but with a combination of Lisa Balderdashandpiffle Perry’s Pilates yesterday and working extremely hard today I’m in too much pain to go and the fact that I’m having to hold on to furniture as I move around the bungalow says to me I definitely shouldn’t go!

Feeling proud of myself for not going! When you have my sheer will and determination it’s damn hard to say no to such an amazing drug that is ‘Hannah Bailey’s Fight Klub’

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From this
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To this!


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Still kicking & punching! #mswonttakemelyingdown #ms #blog #pain #fatigue

I love holidays! Didn’t wake until 10am! Brucey Bonus! Especially for my DebbieRahRah who was literally kicked outta bed the night before!
I knew there was something I was supposed to talk with my Dr about! Oopsy!

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Poor Deb gets kicked or punched most nights making it impossible for her to sleep next to me! She never complains, she just sleeps on the sofa!
I’m so lucky she is so understanding!

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As for me, all that kicking and punching means I wake up in more pain than usual and three times the amount of fatigue as normal!

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Luckily I get to go to a wonderful pilates class! The only one this week which is such a shame but if I at to go to ‘Fight Klub’ and have lunch with friends I have to forfeit 2 pilates classes! Eik!


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Me and my MegaSpecial brain! Pft!

That moment someone just found what you spent an hour looking for!

Fankchoo DebbieRahRah!

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Photo from Pinterest


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Beat my alarm

Please sleep fairies, make sure I hear my alarm clock in the morning. It’s been such a long time since I have been to the gym and I would really like to go, early, before anyone else!

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My alarms are set! The dreaded alarms! I just don’t hear them! Honestly I don’t,  we’ve had people stop before that ask me why I don’t get up when my alarm goes off or at least just turn it off! Well there is a simple reason, I don’t hear them!
I have to rely on my partner to wake me when my alarms go off! That’s no easy task, apparently I can be really nasty & conveniently I don’t have any recollection of it! Some people would think I just say that but I really don’t! 

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I believe this is true, which for me means that looking in the mirror at myself must be the hardest thing in the world!
Well it is one of them for sure but I know there is harder for me! I’ll explain more about this in another blog!

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I totally intend on waking up & being awesome from the start!
Like I said, it’s been too long since I went to the gym! If I want to continue toning my body then I have to get back to the gym!
The alarm is set! I will hear it! I will get up!

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Looking forward to it! It’s late now, only 6 hours until that pesky alarm I’d due to scream!
Let’s do this!

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MS, you will never beat me! #thisgirlcan #ishapeme #megaspecialme #MS

Our new favourite class! Fight Klub!
Absolutely amazing!
Photo taken just before I went off and poured half a litre of water over my head to cool down!
MS you can try and stop me from doing things I enjoy, I’ll find a way around it, you will never beat me!

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My friend, pilates instructor and now also our fight klub instructor Hannah Bailey at the front.
Me and my partner at the back right, Deb in blue and me to the left of her!


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Paingry – when your in so much pain you feel angry!

What to do when your Paingry – when your in so much pain you feel angry!

I want to scream so loud my throat hurts, I want to cry so much that I run out of tears!
Crying makes me angry, I try not to cry! I don’t like to feel angry! I’ve felt enough anger in my teenage years, I don’t want to feel like that again!
I need to get this feeling out of me!

It hurts so much to move though, every twist or turn of my body. Every step I take, one step out, leaning forward on that leg before I put my next leg down. The pain that shoots from my back, into my bottom and down my leg. Repeat that motion as I take one more step, the same pain on the other side now!

It’s too much, I need my appointment! Please let me have my appointment date in the post tomorrow! It’s been 2 weeks, I need that appointment!

I’m angry, this pain makes me angry! I’ve done nothing wrong to deserve this!

I don’t want to be angry! I need to let it out! I need to go to Fight Klub!

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What’s that? You think I can’t do Fight Klub because I’m disabled!
Think again! No boundaries!

Adrenalin takes over, the pain is forgotten, I punch the bag! 👊 💥

In this time I know not of this disease inside me that no one can see.
I feel like I’m free!
Don’t stop me!

I need water, pour it over me
I’m too hot, I can’t see
So this is what happens when I want to feel free!
This is what I put my body through just to be me!


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