#blog ‘When did peeling a banana become so hard?’

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I’ve come to learn that with MS comes a ‘Multitude of Sins’ maybe that’s what it also stands for as well as the original Multiple Sclerosis of course.
But then us MeSsy folk also like to rename it with names like one of my favourites ‘ManySmiles’ and of course the original one I was given to me by a very dear friend Toni. She is the one that told me MS just stands for what everyone has always known about me, it just means we’re all MegaSpecial! 

This brings me onto my silly bit of research I plan on doing later today, since my MS has progressed I have started to loose a lot of strength in my hands meaning my dexterity is poor!

I have had to start using different cutlery which I used to find embarrassing when eating out, until of course I got over myself! I’ve always liked to be different after all!

I find counting loose change to be difficult sometimes too, more so when I’m tired.
Using a ‘chip & pin’ machine can also be tricky, especially if I’m have a day when my tremors might be bad! Always fun trying to put your card into a machine when you can stop your hand from shaking and then trying to put your pin number in! It’s a good job we have ‘ManySmiles’

I have now also noticed how hard it can be for me now to peel Oranges and in particular Bananas!
When I was searching the internet for some images I could use for this blog I came across something very interesting!
I think I have been peeling bananas incorrectly my whole life but I’m not sure yet until I try it! So later today when I come to eat my Banana whilst having my monthly infusion of ‘Tysabri’ at my local hospital I attend for everything MS, instead of asking my ‘Ty buddy’ to peel my Banana for me I’m going to try it myself following these guidelines!

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I’ll let you know what happens! Stay tuned! โ˜†โ™กโ˜†


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#Blog ‘Click your heels together & dance’

Considering the amount of pain I am in and the level of my Fatigue it still amazes me how I manage to do what I do!
This is why I am virtually kicking my heels together, dancing and celebrating my love for pilates and how with this I am literally finding my feet ๐Ÿ‘

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When simple tasks get the MegaSpecial treatment! #blog

When simple tasks get the MegaSpecial treatment!

I find that it’s so easy to forget about simple mundane tasks that become such a pain in the booty because MS gets in the way!

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Counting money into piles without it falling down because u now have the not so wonderful MS tremors!
Thank goodness I have mastered the art of laughing at myself!

#thisisourlifenow


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Thank you for being you

The amount of love i have for my friends & family is unmeasurable!
AngieMoo, I just kinda like you alot’

Thank you all for your Christmas & New year wishes, cards & gifts!
I was totally Overwhelmed & astonished at the amount of cards we got & all the gifts under the tree!
I had to turn all my notifications on my phone off from Facebook, Twitter, my blog site, Instagram, Snapchat, email and well basically every notification was turned off because I was getting so many!
I had to have breaks from opening our gifts as I keep getting major sensory overload, Christmas day was no exception!

I loved the whole day, I loved all the notifications & found it really hard to stop them! I loved being with family even if it was only for 45 minutes, they were 45 minutes better than non! And me in a pub as well, on Xmas day! I loved having my Mum & Daddy Paul over from Cyprus,  spending time with both is always so precious! New years eve with my Mummy taking silly selfies was priceless! Playing ye old games, making up new rules & watching DebbieRahRah & Sister Bell build a bridge out of ‘Bananagram’ tiles & ‘Jenga’ blocks was incredible! Those 2 certainly have wild imaginations!

Thank you to all for being part of my life, for inspiring me with your art, your photography, your writing, your love for fitness & generally just making me want to be a better me!

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*Photo taken from a thank you card I received today from Rae Hodgetts*


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I don’t want Alarms to wake me!

Nooooooo! Back to Alarms waking us up tomorrow then! 😠
It’s been a lovely 10 days of DebbieRahRah at home! We both wish it could last longer but keeping Fugly (our bungalow) isn’t free & due to me being unable to work…

She’s such a good un! 

Me however, what little sleep I get & how much I kick and punch her in the night I don’t know how she wakes me! Unless it’s for the gym of course!
I just want to remind people that I don’t punch and kick my wife for fun! In fact I have no control and no memory of it! It doesn’t wake me, I only know when I wake in the morning and she’s slept on the sofa!

No gym for me in the morning, I think in fact my appointment tomorrow is much better! I know, I know, is that possible I hear you cry!?
Yes it is… because I’m off to see a man about some pain relief! Yep, that day is finally here! Time to find out what Mr Pain clinic man can do for my back this time!…

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Here’s to another year of brilliant memories!

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Before the networks jam, before your glass gets to full, I’d just like 2 wish everyone a very happy, prosperous & healthy 2016!

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Thank you for your support this year!

Let’s make 2016 a year to remember for only good reasons!

Go make memories!

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I am a strong woman

I am a strong woman!
I don’t sit around feeling sorry for myself, nor let people mistreat me.
I don’t reaping to people who dictate to me or try to bring me down. If I fall I will rise up even stronger becasue I am a survivor not a victim.
I am in control of my life and there is nothing I can’t achieve!

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Ever go out, &while ur out, think, “this is exactly why I don’t go out”? Yep, defo when I end up on floor belly down

Ever go outside, and while your out, think, “this is exactly why I don’t go out”?
Yep, defo when I end up on floor belly down

Everywhere hurts now and I have a fat knee/leg where I landed first on my knees and on my screws from old injury that left me with a pin & 2 screws in my leg 16 years ago!
I feel as though I am bruised everywhere with hardly any at all! Slight disappointment really after I went down with such a bang!

This girl got back up & carried on like a boss!

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The cold really does hurt!

You know, when people come to my home & make a big fuss about how warm it is it makes me cross! I don’t choose to have high heating bills! I don’t relish the thought of the pain that I get when the cold hits my body! It’s like someone wrapping me in barbed wire!
So please, before you complain about that warmth of Fugly Manor, think!
If I come to visit you in your home over the festive period and I leave my coat, hat, scarf & gloves on, it’s nothing personal. I just can’t afford to let my body get cold!
Fact is, if you come to my home, at times you’ll see me wearing my hat indoors! 9 times out of 10 you’ll see me wearing my scarf!
I have MS and I am constantly in pain. I manage my pain in many different ways, one of them being ‘not getting cold’

*rant over*


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