Patience Victoria!

I keep coming back to this #quote.

Today didn’t turn out quite how I thought it was going to, that’s not a bad thing though, because I have still learnt from it!

I am where I am meant to be right now! 

I realise now that it would be unfair for the next part of my Pilates journey to be through someone else’s misfortune.

If I want to teach, or get the experience, I have to do it by myself! 🤔

Meme shared via Pinterest, words are my own

Passion, compassion, humour & style

Had a lovely morning today with a spot of hot sweaty Pilates! Might seem odd to some but that statement makes me feel so proud, being able to push myself to exercise in the heat & humidity without any air conditioning!

For anyone that isn’t familiar with heat/humidity & the effects on MSrs: It can & does (for me) bring on all of my MS symptoms I have experienced to date, normally tenfold! 

I’ve finally found a way to manage this & continue to exercise.

My immune system attacks itself. What does yours do?

Yesterday I had a very productive day! Managed to get out in the garden 1st thing and gave it a quick spruce around, on form in pilates  and then shopping after!
I’m so on it today!
Time for a rest before body combat class later! I’m not saying I’ll do all of it but being there is better than not! Right!

Yes I have MS, yes I do all of these things to the best of my ability because by doing these things I am looking after myself!

Happy MS awareness week!

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Practicing Pilates at home can have its downsides #pilates #pilates4ms #pilateslovers #ms #spms #multiplesclerosis #thisgirlcan #ishapeme

Today I did my best ever Pilates ‘100’ (top pic) every time I seem to be getting better especially when I do it ‘Hannah style’ (one of my Pilates instructors)
Beating away trying my best to keep count on my last set & our dog decided she wanted a drink, anyone that knows Ollie will also know that she has got to be the messiest dog when it comes to drinking!
I knew it was going to happen, I don’t know why I didn’t move sooner! There I am lying on the kitchen floor, Ollie has a drink of water, walks over to me a drips it all on my face! 😨

Next was ‘The Plank’ (bottom picture) nothing quite as disgusting as above but really annoying for me!
My most impressive FULL Plank ever, yes… FULL PLANK and neither Deb nor me counted how long I held it for!
I’m not talking a record time or anything like that but surely something in the region of a minute which let me tell u,  seriously impressive for me!
NEXT TIME I SET MY WATCH!
*pictures courtesy of google*

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Be inspired but not proud — #pilates #pilates4ms #pilateslovers #thisgirlcan #ishapeme #pain #chronicpain #ms #multiplesclerosis #inspiration #proud

Wow! I totally smashed Pilates then! Pain was unbelievable but I pushed through it and achieved so much!
I know it says be inspired which I am but not proud but I really am!

Why does it say ‘not proud’?
Discuss…

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Journey to a fitter, better me to handle my MS

Ok so, I started my fitness kick by going to Aqua Fit!
A brilliant way to exercise if you can’t do much on dry land because the water aids by taking away the stress of gravity!

Once I gained confidence with Aqua Fit and felt the need to go on to something else my Physiotherapist referred me to the gym for a set program.
I loved it! I was going every morning for 5 days a week! After a few months I realised that going all those days without a break in between was a little adventurous! I started going less because I wanted to continue going to Aqua Fit! 

I then went on to try Pilates (for the 2nd time, a different type of pilates! 1st time was Pilates for Pregnancy which I didn’t realise until I arrived in the class and so didn’t need it! 😱😂)
As most know I have been going to 3 classes a week for nearly a year now. It would be easy to say that it’s my passion!
Last week I even had my first 1-1 private Pilates at home, it was completely different to a group class because it was tailored especially for me! I even thought it was better than an appointment with my Neuro Physiotherapist! I was that impressed that I booked another 1-1 and i intend to continue with it!
I loved Pilates that much that I stopped going to Aqua Fit and reduced the amount of time in spent in the gym.

At the beginning of this year I started going to another class with my partner called ‘Fight Klub’

“FIGHT KLUB® is the high intensity fun workout that makes getting in shape an addiction. Set to music, the program is a combination of boxing, kick boxing and dance.
FIGHT KLUB® is a workout built around a freestanding professional grade punch bag using simple combinations of kicks and punches whilst keeping time with the high energy beat.” (Taken from the Fight Klub website)

Yes Fight Klub is high intensity which is why I don’t go as often as I’d like to! It’s hard work but it’s seriously exhilarating! As soon as my adrenaline kicks in I forget about the Chronic pain I suffer 24/7!
I might not be able to do all of the exercises the same as everyone else but I still do them, just in a different way!
I have to start my cool down before everyone else because my body doesn’t cool my core temperature down quick enough! I’m not sure if this is to do with my MS or my Fibromyalgia. Maybe it’s just an anomaly, who knows! All I know is that if I don’t cool my self down quickly by pouring cold water down my neck then I pass out!
Yes that part scares me but I love the class that much, I still go back! Just not too often!

This next video is something else that I really want to try! I haven’t the strength yet, well, I don’t think I do!
I don’t know anyone at my local leisure centre that offers guidance with this alone and I’m too nervous to just have a go!

It still surprises me every day how much I am loving this new me!

Click here to see what else I want to try!


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Call me crazy but I love suffering the day after a workout

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I’m back!

Tuesday was my first day back to the workout I love so much, the one I am most passionate about, Pilates*

*Pilates aims to strengthen the body in an even way, with particular emphasis on core strength to improve general fitness and wellbeing.

6 weeks is a long time!

It has been 6 weeks since I noticed my legs were much weaker than normal, since I went numb from my torso down to my feet, since my balance disappeared and I started walking with my feet wider apart making it a little easier to stay upright.

Steroids

It has been 4 weeks since I saw my GP and was prescribed Steroids for a possible relapse!

The neurologist that I have no faith in!

It has been 3 weeks since I had an appointment with the Neurologist that was so rude to me and made me cry! The Neurologist that told me I’ll be feeling better in the spring, that I don’t have Drop Foot even though my Neuro Physiotherapist referred me to be assessed for FES (Functional electrical stimulation *FES* is a treatment that uses the application of small electrical charges to improve mobility. It is particularly used as a treatment for foot drop.) He told me I don’t need the ‘Foot-ups’ or also known as ‘ankle splints’ that my Neuro Physio gave me. I have been told to use these on both legs all the time to help with my ‘drop foot’, because if I don’t I trip and fall! Yeah, I’m to throw those in the bin! And he said I don’t need the 2 crutches I was using that day (because the steroids I was taking make me feel weak!) His reply was that steroids don’t make you weak they make you strong and that is why athletes take them!

Now I understand that not everyone will know this but, from experience of taking steroids and understanding them in great detail I am aware that there are different types of ‘steroids’ and they are used for different things!

  • Corticosteroids – a class of drugs used to treat relapses in Multiple Sclerosis and many other conditions
  • Anabolic steroids – abused by some athletes and others to enhance performance.
    Anabolic steroids are synthetic substances related to the male sex hormones (androgens). They promote growth of skeletal muscle (anabolic effect) and the development of male sexual characteristics (androgenic effects).

It doesn’t take a degree to work out which ones are taken by athletes to make them perform better!

Looking at the huge list of side effects that come with Corticosteroids (the type of steroids I was prescribed by my GP) Methylprednisolone in particular, you will notice it states that Muscle weakness is one of them!

All that information on Steroids is found here What is the difference between Corticosteroids and Anabolic steroids?

Relapse or flare up?

I was told that I didn’t have a relapse which is fantastic news! If I had then they would have taken me off my monthly drug ‘Tysabri’ that helps to stop relapses. I’m so grateful that my MS team are happy for me to stay on Tysabri! I’ve been on it for 3 years now and in that time this last ‘flare up’ has been the closest I’ve felt to relapsing. Before Tysabri I was relapsing every month so I’d rather stay on it!

Back to my workout

There’s always a first for everything! For the first time I actually gave myself time to recover from my flare up, I didn’t go to a Pilates class until I felt completely ready! I didn’t think it would be as long as six weeks though! Another first is that I am taking it steady as well, I’m not going to over do it because my body isn’t what it used to be. It’s the only one I have and I need to take care of it!

Tuesday was my first day back to a Pilates class, it was so much harder than I remember which is proof that I do need to take it steady. It was amazing and yet frustrating at the same time. One thing that isn’t a first for me is ‘beating my self up’ I get so annoyed with myself when I can’t do all the stretches properly. The new Pilates instructor Lisa Perry  kept telling me how well I was doing. I took the compliment and had a little chat with  myself, I have nothing to prove to anyone, not even myself! For someone of my limited mobility I’m doing pretty amazing! That feeling after when my muscles had woken up was brilliant. Lisa’s classes are such good fun. The stretches she teaches are great, I’m sure she adds in a few Yoga posses which are hard but feel incredible! I’d like to learn Yoga but definitely one thing at a time!

Yesterday was my second time back at Pilates, a different type of class with Hannah Bailey. Fantastic! Hannah’s energy is amazing, she puts every ounce of it into her classes and really pushes you to reach your ultimate! Her classes are fast, she qualified to teach PiYo* earlier this year, I’m sure she is throwing in a few PiYo exercises into the Pilates class. If she is then I’m up for it but I must take it steady!

*PiYo combines the muscle-sculpting, core-firming benefits of Pilates with the strength and flexibility advantages of yoga. Piyo cranks up the speed to deliver a true fat-burning, low-impact workout that leaves your body looking long, lean, and incredibly defined.

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Time to get back on it! #SerousFaceIsOn

This is the week I’m going to make all the difference!

Remember it’s not ‘why me’ it’s ‘TRY ME!’
My alarm is set for gym o’clock! #thisgirlcan

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Best thing I’ve ever done and believe me it still isn’t easy! I make myself look at me in a mirror 3 times a week! Why? Because I love pilates!
This is so true!…

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Had enough of what I saw in that mirror!
No stopping me now until I like what I see again!

#ishapeme

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If you can’t stop thinking about it, don’t stop reaching for it and I don’t mean the biscuit tin! 😂

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Happy funtastic Friday peeps!

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Happy funtastic Friday peeps! This is where it begins!

TODAY
•Back to basics Pilates class with Kate King = Love!
•Collecting MegaSpecial Sistaaah Sarah Hickman & nephew Lewis from train station = More love
•Rugby World Cup starts = Happy
•England v Fiji = Adrenalin

TOMORROW
•Shelley’s family fun day at The Weavers Arms, Fillongley in aid of MS-UK = FUN
•Me in the stocks at the event = Arghhhh
•A group of MegaSpecials (MSrs) all meeting together at event = Amazing & dream come true!
•Adam’s 35th birthday party in evening = Shattered me, Sare & Sista Rosemary plus more fun!

SUNDAY
•Recover! 😜

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