Our new favourite class! Fight Klub!
Absolutely amazing!
Photo taken just before I went off and poured half a litre of water over my head to cool down!
MS you can try and stop me from doing things I enjoy, I’ll find a way around it, you will never beat me!
My friend, pilates instructor and now also our fight klub instructor Hannah Bailey at the front.
Me and my partner at the back right, Deb in blue and me to the left of her!
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What to do when your Paingry – when your in so much pain you feel angry!
I want to scream so loud my throat hurts, I want to cry so much that I run out of tears!
Crying makes me angry, I try not to cry! I don’t like to feel angry! I’ve felt enough anger in my teenage years, I don’t want to feel like that again!
I need to get this feeling out of me!
It hurts so much to move though, every twist or turn of my body. Every step I take, one step out, leaning forward on that leg before I put my next leg down. The pain that shoots from my back, into my bottom and down my leg. Repeat that motion as I take one more step, the same pain on the other side now!
It’s too much, I need my appointment! Please let me have my appointment date in the post tomorrow! It’s been 2 weeks, I need that appointment!
I’m angry, this pain makes me angry! I’ve done nothing wrong to deserve this!
I don’t want to be angry! I need to let it out! I need to go to Fight Klub!
What’s that? You think I can’t do Fight Klub because I’m disabled!
Think again! No boundaries!
Adrenalin takes over, the pain is forgotten, I punch the bag! 👊 💥
In this time I know not of this disease inside me that no one can see.
I feel like I’m free!
Don’t stop me!
I need water, pour it over me
I’m too hot, I can’t see
So this is what happens when I want to feel free!
This is what I put my body through just to be me!
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I’m wondering how dedicated I actually am to pilates!
I’m so tired, It’s so cold outside, I’m in so much pain and the cold is only going to make that worse! Gahhh!
Ok, thought about it, weighed up the pros & cons!
11am Pilates, Hannah Bailey be ready for me girly!
I’M DEDICATED AND I’M ON IT!
WITH AN ALMIGHTY PUSH, I’M GOING!
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Well 5 years since diagnosis & the pain has only gotten worse! I don’t think it’s gonna end yet!
Dig in deep girly, we’re in this for the long haul!
Thank gawd I am strong! This is hard!
Good job I got the tough cookie genes!
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I surround myself in positive influences, positive people, proactive people!
I never thought, ever, for one minute, that I would be able to say ‘I accept my life and I like where I am in life right now’
#MS #exercise #smile #laughter #thisgirlcan #ishapeme #megaspecialme #MegaSpecial
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How flipping proud & immensely annoyed do I feel right now that I’m not going to Fight Klub!
DebbieRahRah is still going which I’m really pleased about & also she won’t be alone as one of our close friends Adam is also go with her!
It’s Adams first time at fight klub so this is for him…
*Proud because I’m letting my body rest after my Tysabri infusion
#bekindtoyourself
*Annoyed because MS can get in the way of so many things it’s just so gawd damn unfair!!!
#mssucks
Just love he human body & how amazing it is….
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I’ve come to learn that with MS comes a ‘Multitude of Sins’ maybe that’s what it also stands for as well as the original Multiple Sclerosis of course.
But then us MeSsy folk also like to rename it with names like one of my favourites ‘ManySmiles’ and of course the original one I was given to me by a very dear friend Toni. She is the one that told me MS just stands for what everyone has always known about me, it just means we’re all MegaSpecial!
This brings me onto my silly bit of research I plan on doing later today, since my MS has progressed I have started to loose a lot of strength in my hands meaning my dexterity is poor!
I have had to start using different cutlery which I used to find embarrassing when eating out, until of course I got over myself! I’ve always liked to be different after all!
I find counting loose change to be difficult sometimes too, more so when I’m tired.
Using a ‘chip & pin’ machine can also be tricky, especially if I’m have a day when my tremors might be bad! Always fun trying to put your card into a machine when you can stop your hand from shaking and then trying to put your pin number in! It’s a good job we have ‘ManySmiles’
I have now also noticed how hard it can be for me now to peel Oranges and in particular Bananas!
When I was searching the internet for some images I could use for this blog I came across something very interesting!
I think I have been peeling bananas incorrectly my whole life but I’m not sure yet until I try it! So later today when I come to eat my Banana whilst having my monthly infusion of ‘Tysabri’ at my local hospital I attend for everything MS, instead of asking my ‘Ty buddy’ to peel my Banana for me I’m going to try it myself following these guidelines!
I’ll let you know what happens! Stay tuned! ☆♡☆
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Considering the amount of pain I am in and the level of my Fatigue it still amazes me how I manage to do what I do!
This is why I am virtually kicking my heels together, dancing and celebrating my love for pilates and how with this I am literally finding my feet 👏
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When simple tasks get the MegaSpecial treatment!
I find that it’s so easy to forget about simple mundane tasks that become such a pain in the booty because MS gets in the way!
Counting money into piles without it falling down because u now have the not so wonderful MS tremors!
Thank goodness I have mastered the art of laughing at myself!
#thisisourlifenow
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The amount of love i have for my friends & family is unmeasurable!
AngieMoo, I just kinda like you alot’
Thank you all for your Christmas & New year wishes, cards & gifts!
I was totally Overwhelmed & astonished at the amount of cards we got & all the gifts under the tree!
I had to turn all my notifications on my phone off from Facebook, Twitter, my blog site, Instagram, Snapchat, email and well basically every notification was turned off because I was getting so many!
I had to have breaks from opening our gifts as I keep getting major sensory overload, Christmas day was no exception!
I loved the whole day, I loved all the notifications & found it really hard to stop them! I loved being with family even if it was only for 45 minutes, they were 45 minutes better than non! And me in a pub as well, on Xmas day! I loved having my Mum & Daddy Paul over from Cyprus, spending time with both is always so precious! New years eve with my Mummy taking silly selfies was priceless! Playing ye old games, making up new rules & watching DebbieRahRah & Sister Bell build a bridge out of ‘Bananagram’ tiles & ‘Jenga’ blocks was incredible! Those 2 certainly have wild imaginations!
Thank you to all for being part of my life, for inspiring me with your art, your photography, your writing, your love for fitness & generally just making me want to be a better me!
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Living life the MegaSpecial way! 