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Dedication & determination = Vix!
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Tag: fatigue
Love my friends like family! #miniblog #clickthelink #friends #family #ms #MegaSpecial
Today I received a lovely card and a bookmark from one of my beautiful friends from the wonderful world of social media!
I don’t think she’ll mind me sharing what is written inside the card, it was really touching!
I can say for sure that there is at least a positive in MS (Multiple Sclerosis)
My network of friends are incredible! In it together!
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Well, we’ll, well… look what decided to show up. Hello Friday!
Finally the weekend is here for some! Make the most of it!
Our weekend starts at 5pm tomorrow, but for everyone who’s weekend starts today, remember you need stories to tell on Monday!
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The White Room #MS #decorating #determination #blog
It’s been a great week even if it was hard work! All totally worth it!
Countless cups of tea for the hard worker, countless ending up down the sink too as I continually kept forgetting I’d left the tea bag in the mug brewing! Derrr!
I’ve done the best I could whilst also going to my MS exercise class & Pilates yesterday!
I helped wash down the skirting boards, cleaned the radiator, helped paper the one wall, tidying tidying & more tidying! And finally today the carpet was fitted and we got to do the best bit… dress the room!
DebbieRahRah has worked liked a trogen! She is amazing! Has had a week off work and decided to spend the time on what used to be called ‘The Elephant Room’
It’s new name… ‘The White Room’
I’m so lucky to have my DebbieRahRah who has now gone off to her 2nd Fight Klub class of the week!
I was supposed to go with her tonight but with a combination of Lisa Balderdashandpiffle Perry’s Pilates yesterday and working extremely hard today I’m in too much pain to go and the fact that I’m having to hold on to furniture as I move around the bungalow says to me I definitely shouldn’t go!
Feeling proud of myself for not going! When you have my sheer will and determination it’s damn hard to say no to such an amazing drug that is ‘Hannah Bailey’s Fight Klub’
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This is Vix
This is Vix.
Vix is disabled.
Vix takes high risk meds.
Vix is exhausted.
Vix has a chronic illness.
Vix has no immune system.
Vix will never be cured.
But that’s ok, Vix looks fine.
Looks can be deceiving.
Vix illnesses are invisible.
But Vix illnesses are still real.
Be kind to Vix.
You could be Vix.
Vix is different to many.
Vix is determined.
Vix won’t be beaten.
Don’t feel sorry for Vix.
Be happy for Vix.
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Still kicking & punching! #mswonttakemelyingdown #ms #blog #pain #fatigue
I love holidays! Didn’t wake until 10am! Brucey Bonus! Especially for my DebbieRahRah who was literally kicked outta bed the night before!
I knew there was something I was supposed to talk with my Dr about! Oopsy!
Poor Deb gets kicked or punched most nights making it impossible for her to sleep next to me! She never complains, she just sleeps on the sofa!
I’m so lucky she is so understanding!
As for me, all that kicking and punching means I wake up in more pain than usual and three times the amount of fatigue as normal!
Luckily I get to go to a wonderful pilates class! The only one this week which is such a shame but if I at to go to ‘Fight Klub’ and have lunch with friends I have to forfeit 2 pilates classes! Eik!
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#blessings #kindness #listen #productive #calm
My to-do list for today:
– Count my blessings
– Practise kindness
– Let go of what I can’t control
– Listen to my heart
– Be productive yet CALM
– Just breathe!
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It’s Monday! Happy new week everyone!
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Me and my MegaSpecial brain! Pft!
That moment someone just found what you spent an hour looking for!
Fankchoo DebbieRahRah!
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Beat my alarm
Please sleep fairies, make sure I hear my alarm clock in the morning. It’s been such a long time since I have been to the gym and I would really like to go, early, before anyone else!
My alarms are set! The dreaded alarms! I just don’t hear them! Honestly I don’t, we’ve had people stop before that ask me why I don’t get up when my alarm goes off or at least just turn it off! Well there is a simple reason, I don’t hear them!
I have to rely on my partner to wake me when my alarms go off! That’s no easy task, apparently I can be really nasty & conveniently I don’t have any recollection of it! Some people would think I just say that but I really don’t!
I believe this is true, which for me means that looking in the mirror at myself must be the hardest thing in the world!
Well it is one of them for sure but I know there is harder for me! I’ll explain more about this in another blog!
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I totally intend on waking up & being awesome from the start!
Like I said, it’s been too long since I went to the gym! If I want to continue toning my body then I have to get back to the gym!
The alarm is set! I will hear it! I will get up!
Looking forward to it! It’s late now, only 6 hours until that pesky alarm I’d due to scream!
Let’s do this!
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Living life the MegaSpecial way! 