Brrrrr! It’s a little chilly!

If there’s one thing I can guarantee with my MS, it hates the slightest change in temperature! Anything between 18.5°C & 20.5°C is fine but lower or gawd forbid higher then there’s trouble!

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Me (right) and my MegaSpecial Sistaaah Sare (left) in Cyprys

2 years ago I went to visit my Mum in Cyprus with my MegaSpecial Sistaaah Sarah (from another mista, aka my best friend!) Her MS just adores dry heat and my is it hot in Cyprus! Unfortunately I spent most of the holiday in so much pain! Luckily I had my Mummy and DdyPaul looking after me whilst my MegaSpecial Sistaaah Sare was keeping me busy with laughter!
Despite the pain I still had a wonderful holiday!

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On the other scale is days like today when the temperature really starts to plummet and winter sets in! Nights like this when I have to increase my ‘Pregabalin’ (nerve pain meds) to help me with my pain through the night!
I’m not sure which is the worst? The pain in the winter when my Spasticity in my legs, arms and hands is worse or the pain in the Summer when my MS Fatigue is worse!


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Proud moment day!

Finally I feel like I’m joining earth again after my 2 month burn out!
I’m still not back to my ‘MegaSpecial’ standard but getting there.

I wasn’t just tired, I was exhausted which meant I found it so hard to ‘cope’ with my pain!
I haven’t been able to go to Pilates classes as much as I used to and, I can’t remember the last time I went into the gym!
I really miss the gym and how incredible it made me feel afterwards! I haven’t had that feeling when I’ve been to the gym for a long time. I guess because I was so low on my energy resources!

Well now it’s time to recoup them but in a balanced way, using exercise to help build my energy.

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This week has gotten off to a great start! Unlike last week I’m planning my days better and sticking to my plans!
Even though my pain in my back is gradually getting worse, making my cognition or Cog Fog incredibly bad I’m able to stick to appointment times now. I couldn’t even do that last week! I only made it to one Pilates class on time and that was because I didn’t go alone!

Yesterday’s Pilates was brilliant, just what I needed to help stretch out my back.
I spoke to the instructor ‘Lisa Perry’  before the class started and explained my problems with my back. She then adapted the class to suit the lower. .  back with nice stretches and exercises to strengthen it too. That’s what it needs, strength.

Today’s class was even better than yesterday, I felt totally focused and more in control of every muscle! I feel like I’m getting stronger again. Remembering how I felt nearly 2 months ago when I was taking steroids, I’m definitely on my way back!

I even managed to hold ‘Plank’ for a short time,  probably about 15 seconds which doesn’t sound much but have you tried it?

Plank

Plank, or front support in Pilates, is a well-known exercise. It is one of the most popular exercises for developing core strength and stability.

While Plank really targets the abdominals and shoulder stability, you will find that plank is an excellent way to get a full body challenge. In order to do Plank properly there must be integration of all the core stabilization muscles. The arms, glutes, and legs are active as well.

Plank can look like the up part of a regular push up. But, in most cases, a regular push up entails much more strain in the upper body — especially in the shoulders and neck — than plank in Pilates or yoga.

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Picture taken from Pinterest

I was more like the second from the bottom in the above picture, for the short time I held it & then I definitely looked like the one that says ‘FAIL’ even though it was more ‘success’ than fail!

Then we did ‘Downward dog’ which is practised in both Yoga and Pilates.

Downward dog

One of the most recognized yoga poses in the West, Downward-Facing Dog — Adho Mukha Svanasana (Ah-doh MOO-kuh shvan-AHS-uh-nuh) — is a standing pose and mild inversion that builds strength while stretching the whole body. It’s named after the way dogs naturally stretch their entire bodies! Downward-Facing Dog (also sometimes called “Downward Dog” or just “Down Dog”) is an essential component of Sun Salutations and is often done many times during a yoga class. It can be used as a transitional pose, a resting pose, and a strength-builder.

Benefits of Downward-Facing Dog

If you struggle with Down Dog, be compassionate and patient with yourself; you are not the first person with tight hamstrings or weak arms. On the other hand, be diligent. Ultimately, Down Dog will start to feel so good that you will really empathize with the full-body joy that dogs display while doing the pose.

Shiva Rea

Downward-Facing Dog energizes and rejuvenates the entire body. It deeply stretches your hamstrings, shoulders, calves, arches, hands, and spine while building strength in your arms, shoulders, and legs. Because your heart is higher than your head in this pose, it is considered a mild inversion (less strenuous than other inversions, such as Headstand) and holds all the benefits of inversions: Relief from headaches, insomnia, fatigue, and mild depression. The flow of blood to the brain also calms the nervous system, improves memory and concentration, and relieves stress.

Regular practice of this pose can improve digestion, relieve back pain, and help prevent osteoporosis. It is also known to be therapeutic for sinusitis, asthma, flat feet, and for the symptoms of menopause.

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Picture taken from Pinterest

Now I have only ever done ‘Downward dog’ once before in another of Lisa’s class so, I’m not 100% sure if I did it correct. All i know is that it felt really good and I got the thumbs up from Lisa so that’s all that matters!
Knowing Lisa, she would have corrected me if I was doing it incorrectly.

It was an excellent Pilates class today, my back felt good after which was wonderful!
I felt really proud of myself for doing so well!

When I got home I decided to treat myself to my old winter favourite, Galaxy frothy top – hot chocolate & decaf coffee! So yummy, I thought I deserved a treat! It may not be good for the waist but according to the recent news it would be good for my debilitating MS fatigue!

pixlr.jpgJust incase anyone missed the wonderful news about chocolate and MS fatigue… http://mssoc.uk/1NDk5BX

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I’m ok with that news!

Then to make the day even better in an odd way I declined going to the gym with Deb and our friend Adam! My reason, because I was just so awesome in my Pilates class that I needed to relax for the rest of the day and evening!
Such a shame I couldn’t go because I was really looking forward to lifting some weights with Adam! My thoughts, there’s no rush!

Plans for the rest of the week… dentist check up tomorrow! Eik!


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There’s no competition

Yes I set 3 alarms to wake me for the gym!
Yes I cancelled all 3 alarms when they went off this morning, I didn’t even select snooze!
Yes I slept until 9am!

NO I didn’t go to the gym!
No I’m not annoyed with myself!
No I can’t still go to the gym. Oldest dog, ‘Princess Olivia’ has hydrotherapy at 11 & then doors to gloss

This is the first time I’ve been ok that I haven’t been to the gym!
Last week I only went to one Pilates class as well!

It’s ok to rest!
It’s ok to take it steady!
There’s no competition!

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It’s not quitting it’s being sensible!

I’m back! Alarms are set, if I wake up in time I’m off to the gym! If I don’t then I obviously need the sleep, it’s not quitting it’s being sensible!

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Pain, sleep & running late

Today has been about Pain, sleep & running late!

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I couldn’t keep my eyes open for long after breakfast, medicating and showering!
In fact, it was probably the showering that took all my energy!

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I slept through mid morning meaning I missed my fruit & yoghurt, I slept through lunch as well though!
Good job I had my breakfast!

By the time I had woken I was pushing it to get to my pilates class on time!
I gathered my things, sent the instructor a quick message in case I didn’t make it to the class and made my way to the leisure centre.

I arrived at the leisure centre at 13:45!
15 minutes late! By the time I’d gotten into the centre and up to the room I was 20 minutes late! I stood outside the room where the class was taking place and stopped!

I turned around and took my things into the changing room to a locker.
I’d decided not to go into the class so late!
Instead I went into the gym and used the equipment in there!

Proud moment!

Not proud that I slept through the morning and was late for pilates, but proud that I still went to the gym & exercised!

Why did I sleep so much today?
Have you ever been in so much pain that it drains you?
Ever been in so much pain that it wears you down?
Pain doesn’t stop,
It wants to be felt,
I needs to be owned!

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“Chuck it in the F*^°k it bucket and move on”

So my day hadn’t gone to plan, so what! It wasn’t the end of the world and I managed to get into the gym for some pain management!
That’s why I do it! 
No over the shelf pain medication can help this pain I feel. I’m allergic to anything stronger!
That’s right, I can ‘take’ anything to ‘take’ my pain away!

1 and a half years ago however when my physiotherapist introduced me to the gym, I found a way to help ease that pain!
Okay, it isn’t for as long as the medication may work for but it’s drug free and it’s healthy for me!

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Day 4 of the steroids and hopefully the final day

FB_IMG_1444255162209This is a great graphic to show how I am feeling today!

A shorter blog today as I’m not very focused on what I’m wanting to do. Concentrating is so hard when you have Methylprednisolone or Steroids pumping through your body! I feel like I’ve been in the wash on a fast spin and thrown in the tumble dryer to dry out!

Perhaps I would make an ideal member of the cast for ‘Walking dead’ becasue thats exactly how I feel! One because that is how my MS makes me feel and two because that is how Steroids make me feel! Double whammy

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Tomorrow is my reschedualed appointmnet to see the nurse Neurologist. I was supposed to see my MS nurse today but becasue of my new MS symptoms she cancelled the appointment and booked me in to see one of the Neurologists tomorrow, I’m happy that she will be there as well as I have had issues with the Neurologist in the past!

For anyone to say they are looking forward to an appointment with the Neurologist would be speaking far from the truth! When ever I see this particular Neurologist I always worry ‘what if I can’t communicate how I am feeling properly’ that then leads me to thinking ‘what if I make no sense, will he think I’m a hypochondriac?’
I really dislike this man that I’m seeing tomorrow.

Now I’m starting to get palpitations which could easily be down to the steroids, it could also be because of the anxiety I’m feeling about this appointment tomorrow.

I really hope he doesn’t want me to have an extra day on the steroids which would take me up to the full treatment course. Well tomorrow will soon be here and I hope to have some answers!

The things I have learnt today (but may have already known before and had just forgotten)
1: Steroids are Soul destroying
2: Steroids make everything taste like the worst thing imaginable.
3: Every time my MS plays up like this I feel as though it takes a little bit of me away.

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Day 2 Low Dose steroids *blog #2*

So after the 3 hours cat-napping I had last night I’ve actually had a really good day!
I certainly didn’t expect to feel as awake as I have, which is saying something as I’ve felt as though at some point during the early hours I felt as though I was thwacked across the head with a baseball bat! A bit melodramatic?
Welcome to the world of the MegaSpecial on Prednisone  steroids where ANY thing goes! Buckle in, it’s gonna be a bumpy ride.

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It’s been our normalish Sunday,  we took Ollie our 12 year female Labrador with hip dysplasia to her regular hydrotherapy, then lunch at The Weavers Arms and home for a film. Special thanks to Shelley & Deb for twisting my arm (Shelley mostly) making me indulge in a warm chocolate fudge cake and icecream for desert at The Weavers! A special treat, not that I have it often! What!? Shhh!

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Oh wait, I missed the most important thing out… Sunday morning at the gym, well that’s because I didn’t go! Resting my body and all that! I have to remember to be kind to myself whilst I’m on these steroids for a possible MS relapse.

Did I forget to say anything else about today? Of course, my bright red cherry tomatoe hamster pouch steroid face! My check bones have nearly vanished (again) & I look like I’ve done one of Kate Kings hour long fast paced Pilates classes! I wish! But I’m used to this flushed look now so I can handle it.

I’ve been doing so well on my diet, so people keep reminding me! I’m one of those that ‘can surely always do better despite my Chronic illness!’ right? I need to stop being so hard on myself! Two stone lighter and then I go and have to take a course of Prednisone steroids which have to be one of the worst drugs for weight gain that I know! Oh yeah, there is that other drug that I was made to eat earlier! The drug of Chocolate cake, that is surely as bad as steroids! No? Worse? Really! Woops!

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I think I’ll wrap it up there! I’m pleased with how my 2 days have been so far, no real improvement with the suspected relapse but like I say it’s only day 2!

Another very late night, I hope this insomnia doesn’t last too long. It’s a horrible thing insomnia! A very lonely time indeed when only a handful of my friends that ‘get me’ are still awake! ‘The spoonies’ as we tend to get called! These aren’t just people that have MS, these are friends that have different Chronic illnesses.

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