Why does shopping have to be so painful!

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Christmas shopping done & so am I! Done in & in so much pain! Sat in car waiting for DebbieRahRah whilst watching all the crazy people look for parking spaces!
The world goes mad at this time of year! This is when you never forget what month your in!
#Christmas #crazy #shopping #itschristmas


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My MegaSpecial life

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When your so tired you could fall asleep as soon as you sit down!

Yesterday I called into the vets to collect ‘Princess Olivia’ aka Ollie medication which should have been ready and wasn’t. Humph!

Basically now my hands are weaker (thanks MS) I have been struggling to ‘pop’ the capsules out of the blister pack without splitting the capsule resulting in the contents of the capsule – tiny Tramadol beads flying everywhere!
I’m sure you’ll agree that this isn’t the best when you then have to bend down and pick the hundreds of tiny, and I mean tiny, balls up!

I’m a strong believer in making people aware of a potential flaw in a product and it’s packaging. So I phoned the vets last week asking them if it would be possible to revert back to the brand of medication Ollie had previously as the packaging for these was fine.
It turned out that they weren’t able to do that and when I had explained my troubles they agreed it would be fine for a member of staff to ‘pop’ the capsules out of the blister packs for me.
I left it in their capable hands and at the beginning of this week I had a call advising me that Ollie’s medication was ready for me to collect.

That’s where I was when I took this photo!
Yes her medication was there but it wasn’t ready! The staff I had spoken to about the packaging hadn’t left any notes about my phone call and so the capsules were still in the blister packs.
When I explained to the lady serving me that “I think the back part of the blister pack is made out of led” She tried to ‘pop’ one and guess what happened! Well the capsule didn’t break but it was very squashed.
The lady disappeared, when she returned she said they were more then happy to take the capsules out of the original packaging for me but, next time if I could ask for them to do it before I call in to collect! Really! I HAD just explained it all to her!
She advised they would be a while and invited me to sit down and wait.
When Ollies’s Tramadol was ready a different staff member bought them to me and again asked me if I could advise them to do this before calling in to collect! Oh my days! I had honestly already spoken to 3 different people over the phone about this before collecting! Me thinks the staff members need to learn how to make notes!
*Photo time!*
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I look awful in this photo, (it shows better in the first picture how tired I look) I’m quite proud of myself for sharing it with you!
This is how tired I get after an hour in a Pilates class, a coffee after (tiring because of all the noise and not just from our table) and then a very brief shopping experience for groceries (also extremely tiring, maybe even the most tiring because of the noise and also the amount of people busying around!)

What I didn’t need was to have to wait for Ollie’s medication, like I said at the beginning… I sit down, I wanna sleep!

Some people don’t think I have a busy life because I don’t work, actually I’ll change that… I don’t work because I can’t work!

Some people just don’t realise how it’s a full time job maintaining your own health when you have MS!
This is what I work at! Staying well for myself and my family!

Some people don’t think about all the little things that they can do and without a second thought, actually these little things can be the hardest things for us to do!

How hard it is to get up in the morning, how hard and how exhausting it is to have a shower, how tiring it can be to drive anywhere, how stressful in can be to make sure you are at a Pilates class in time!

I’m very lucky that I have the most wonderful Pilates instructors who are so understanding and compassionate!
It doesn’t take much to have a little compassion!

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It’s not always MS that makes my days hard!

Laughing hysterically at the dumbness of some delivery drivers!
Oh yes… My day just got better!…
There I was nicely nodding off whilst watching Bear Grylls when me and the 2 dogs jumped at foot off the sofa after being rudely startled by the loudest bang!
It appeared the delivery of dog food that was expected had just been delivered via throwing it over a wheelie bin that wasn’t obstructing the path, the DPD driver then carried on in his van without a care in the word!
Needless to say the way the box landed smashed the majority of dog food trays  inside!
The dogs thought it was their lucky day when I opened the outer box and they smelt all the food! Poor buggers!

Oh yeah, before all that happened I had a phone call from Debs Mum, panicking about a certain item ordered from Ebay that hadn’t arrived!
Of course it was me that ordered it for her to be delivered to her address in Norfolk! The fact that it isn’t due to be delivered until tomorrow didn’t matter, it’s eBay! “What if it doesn’t arrive? It’s your money Vicky” she said! My money that she owes to me!!!
Can I just ask, what is it with people being so scared about Ebay?
You know when u wish u hadn’t made the suggestion in the first place!

Such fun!

It’s a good job I have the sort of attitude now where I can smile through days like today! 😜


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Having MS and being invited out for the night

Another wonderful post from the page I follow on Facebook ‘Positive living with MS’

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Post continues on website
http://positivelivingwithms.com/2015/11/30/its-my-party-and-ill-have-fun-if-i-want-to/#.Vlx01qdFDqB


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Funny old day! It must be Monday!

So far today…
*I have had the worst Xmas shopping experience ever, where I nearly got down on the floor in Argos to do some pilates stretches hoping they would relieve my back pain even if just a little! Decided against that, only because I couldn’t get down to the floor & it was filthy anyway! (Sorry Lisa Perry, thanks for the reminder but I did them when I got home!)
*I’ve been given a sample of snail gel, or ‘snail slime’ as the lovely assistant in Holland & Barrett called it! Im not even nearly tempted to try it & will gladly pass it on to abyone that would like to try it if DebbieRahRah doesn’t want to!
*The H&B assistant also gave me some lozenges to try as well as the snail slime! I very politely asked if they were made from the snails shell! Good job she knows me & my humour 🙊🙈
*I nearly broke down in tears whilst on the phone to the pain clinic, just because the secretary said she would try her best to speed up my appointment for treatment. Skipping the consultation in January as I’ve seen the consultant plenty of times now for him to know me!
*I nearly stabbed myself in the foot whilst trying to make sure my delicate and mahoosive bougainvillea (plant) is wrapped up & warm ready for winter!
AND
*My phone decided it no longer wanted to have the Facebook app on it any where, even though ‘Google Play’ said it was installed! After a mini meltdown, restarting my phone several times, taking the battery out, taking the sim card & SD card out the Facebook app has reappeared! I have no idea why I thought taking the sim & SD card out was a good idea but something worked!

Glad to be home! Not moving from this sofa except when performing the triangle manoeuvre… Toilet, Kettle & back to the sofa! 👍👏

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Snail slime! Really! 😨
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Snail shell lozenges! No, not really 🙊
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The sissors that fell so close to my foot but landed perfectly! Couldn't do that again if I tried!


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Pain medication

Will I ever change!? I went to get my fatigue meds this afternoon like I do everyday and my morning meds were still in the medicine wallet!
Well that explains why I’ve been in extreme pain today then!
I’m happy to report it wasn’t my visit to the gym last night that has made my pain worse but the fact that I didn’t take my nerve meds until 2pm!
What a numpty!
I’m now no longer in as much pain as I was this morning/afternoon! The way I was feeling I really didn’t think I would be ok to go out to the cinema for our friends belated birthday present! That’s where I am now, sitting waiting for the film to start. We’ve come to watch the final part of ‘The Hunger Games’
*I hope I don’t fall asleep, it’s been know to happen!*
ROLL TITLES 😉

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Multiple Sclerosis fact #5, vision problems

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Needle point, one of my favourite things to do!
Threading A needle is fun when there’s TWO of them (thank you double vision)

Sewing a seam is joyous when you need the cloth and the thread to be identical in colour. This means with my MS vision I can’t tell where I have sewn and where I need to sew (thank you loss of contrast)

It’s no wonder I always end up with a pile of items waiting to be repaired!
When something joyful becomes dreadful!

40 minutes later and I’m still trying to thread the needle!

Obviously the danger is this, having a disease that drains my energy so rapidly means that I do tend to fall asleep at the drop of a hat! This always happens if I’m stationary for a long time. If you weren’t aware, sewing requires you to sit on the same place for a certain amount of time. It really wouldn’t take much for me to nod off & poke myself in the eye with the needle!

Thats why we’re MegaSpecial! Because we do really silly things, the great thing is, we train ourselves to laugh at the silly things! It gets us through!


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I’m cold, it hurts if I get too hot but can’t feel heat to touch!

Gotta love my Debbie for switching the electric blanket on last night for when I went to bed!

Gotta hate my MS for me not even realising it was on (I couldn’t feel the difference in temperature!)

I’d done myself a hot water bottle as well & took it to bed with me warming my back to ease the pain!

Oh my days! Can u imagine!

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