#MSFactFriday Spasticity

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Spasticity is awful and it can be so incredibly painful!

The type of Spasticity I always have is involuntary twitches! The more tired I am and the more I relax then the worse the twitches get! I get twitches in my abdomens which can make me look as though I’m about to start dancing!

My worst time for involuntary
Spastic moments is when I’m joining in with the Pilates class when we have our cool down at the end. I’m just glad we are all lying on our backs with the lights off else people might wonder what on earth is wrong with me!

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Can I start the day again please?

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Tadaaaa! Old & new together!

I’d like to start today again if I may? Could I not have MS though because it’s gotten right on my nerves today! It’s really interfered with a happy occasion, that’s what getting a new car is about right?

I know I always appear happy & smiley, that’s what people want to see & hear. I’ve always wanted to be truthful in this blog, don’t get me wrong, I have been. It’s just today I’m not happy but am still smiley! Hard to do but I know a lot of people that do it!

Why aren’t I happy? I’ve just collected a new car, I should be! I should have been excited about it and I was to begin with but, as the day got closer, I began to feel more & more anxious!

This is part of my MS, I don’t cope well with change! I think the reason for this is because my brain has a very hard time taking in & retaining new information. Going from somebody that was once compared to a sponge *soaks up information* to how I am now is very hard to accept!

That is why I wanna start the day again!
I just collected my new car & everything I was told about it just seemed to go straight through my ears! It was if I could feel it happening!
The first time driving an automatic on my own, I kinda needed to retain that information I was given!

I just can’t think straight today, even during pilates I was struggling!
I’m gong to stop giving myself a hard time & just breathe!
It’s not the end of the world!
I shall enjoy my new car, I’ll practise my pilates a little more & I bet you the next time I post a new blog I’ll be all happy again because I am stronger than my MS!

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That moment when realisation hits you

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That moment when realisation hits you!

I suffer such bad anxiety due to my MS & I am now aware how moody I get. Sorry Debbie!

Today at 09:30 I was supposed to exchange my Fiat Panda ‘Po’ of 3 years for my new little Fiat 500 ‘Red’
Yes I have anxiety about it! Not just because I won’t have my Panda any longer but because I am changing from a manual to an automatic! Big deal for me, part of my acceptance of my MS!
I am really looking forward to being able to drive without stalling my car and getting tired because of having to think about so many things at the same time! Part of my anxiety is that I don’t like change!

So at 08:30 I had a phone call from the Fiat garage to say that there was a problem with the ‘motability’ system and I could not collect my car at 09:30

I just called in at the garage as I was on my way to my 11am pilates class. Motability system still not working so no car! 🚗

I shall now be collecting it after my pilates class, at 12:30
I don’t feel as anxious now, just a little nervous about it being an automatic!

Watch this space! 😄

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#MSFactFriday Fact #1 Fatigue

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I’m guessing us MegaSpecials we’ll feeling a wee bit fatigued tomorrow!

Bring it on! It’s gonna be so much fun!
The happiest 5k it’s called, ‘The Color Run’ is coming to Birmingham tomorrow & I’m taking part with a team of my friends! So, 3 of us have MS & the rest are our support team to make sure we get round ok & push the wheelchairs when our legs have had enough of the walking! I have some amazing friends!

So why are we doing it? Well, Tuesday was my 5 year diagnosis anniversary so for me I’m celebrating that! I’m proud of me & I’m loving life!
Challenging myself to do what my hobby was until I could no longer count on my legs.
Just before I was diagnosed me & my partner had bought ourselves hiking equipment. We loved finding new areas to go to & explore but unfortunately I started to experience pain & weakness in my legs so we had to stop.

I’ve been going to pilates classes 3 times a week & training privately as well. Concentrating on my core muscle to help with my balance and walking!

This girl most certainly can!

Still time to sponsor me & team #BAM4MSUK
https://www.justgiving.com/BAM4MS-UK/

#pilateslovers #pilates #pilates4ms #thisgirlcan #ishapeme #megaspecialme #bringiton #strongerthanMS #BAM4MSUK #msuk #happiest5k #ColorRunBrum #love #lifeisgood #loving #life #followme #MS #positivehttps

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