My to-do list for today:
– Count my blessings
– Practise kindness
– Let go of what I can’t control
– Listen to my heart
– Be productive yet CALM
– Just breathe!
megaspecial.co.uk
Tag: Chronic Fatigue Syndrome
It’s Monday! Happy new week everyone!
megaspecial.co.uk
Me and my MegaSpecial brain! Pft!
That moment someone just found what you spent an hour looking for!
Fankchoo DebbieRahRah!
megaspecial.co.uk
Beat my alarm
Please sleep fairies, make sure I hear my alarm clock in the morning. It’s been such a long time since I have been to the gym and I would really like to go, early, before anyone else!
My alarms are set! The dreaded alarms! I just don’t hear them! Honestly I don’t, we’ve had people stop before that ask me why I don’t get up when my alarm goes off or at least just turn it off! Well there is a simple reason, I don’t hear them!
I have to rely on my partner to wake me when my alarms go off! That’s no easy task, apparently I can be really nasty & conveniently I don’t have any recollection of it! Some people would think I just say that but I really don’t!
I believe this is true, which for me means that looking in the mirror at myself must be the hardest thing in the world!
Well it is one of them for sure but I know there is harder for me! I’ll explain more about this in another blog!
.
I totally intend on waking up & being awesome from the start!
Like I said, it’s been too long since I went to the gym! If I want to continue toning my body then I have to get back to the gym!
The alarm is set! I will hear it! I will get up!
Looking forward to it! It’s late now, only 6 hours until that pesky alarm I’d due to scream!
Let’s do this!
megaspecial.co.uk
MS, you will never beat me! #thisgirlcan #ishapeme #megaspecialme #MS
Our new favourite class! Fight Klub!
Absolutely amazing!
Photo taken just before I went off and poured half a litre of water over my head to cool down!
MS you can try and stop me from doing things I enjoy, I’ll find a way around it, you will never beat me!
My friend, pilates instructor and now also our fight klub instructor Hannah Bailey at the front.
Me and my partner at the back right, Deb in blue and me to the left of her!
megaspecial.co.uk
Paingry – when your in so much pain you feel angry!
What to do when your Paingry – when your in so much pain you feel angry!
I want to scream so loud my throat hurts, I want to cry so much that I run out of tears!
Crying makes me angry, I try not to cry! I don’t like to feel angry! I’ve felt enough anger in my teenage years, I don’t want to feel like that again!
I need to get this feeling out of me!
It hurts so much to move though, every twist or turn of my body. Every step I take, one step out, leaning forward on that leg before I put my next leg down. The pain that shoots from my back, into my bottom and down my leg. Repeat that motion as I take one more step, the same pain on the other side now!
It’s too much, I need my appointment! Please let me have my appointment date in the post tomorrow! It’s been 2 weeks, I need that appointment!
I’m angry, this pain makes me angry! I’ve done nothing wrong to deserve this!
I don’t want to be angry! I need to let it out! I need to go to Fight Klub!
What’s that? You think I can’t do Fight Klub because I’m disabled!
Think again! No boundaries!
Adrenalin takes over, the pain is forgotten, I punch the bag! 👊 💥
In this time I know not of this disease inside me that no one can see.
I feel like I’m free!
Don’t stop me!
I need water, pour it over me
I’m too hot, I can’t see
So this is what happens when I want to feel free!
This is what I put my body through just to be me!
megaspecial.co.uk
I’m dedicated and I’m on it!
I’m wondering how dedicated I actually am to pilates!
I’m so tired, It’s so cold outside, I’m in so much pain and the cold is only going to make that worse! Gahhh!
Ok, thought about it, weighed up the pros & cons!
11am Pilates, Hannah Bailey be ready for me girly!
I’M DEDICATED AND I’M ON IT!
WITH AN ALMIGHTY PUSH, I’M GOING!
megaspecial.co.uk
One tough cookie!
Well 5 years since diagnosis & the pain has only gotten worse! I don’t think it’s gonna end yet!
Dig in deep girly, we’re in this for the long haul!
Thank gawd I am strong! This is hard!
Good job I got the tough cookie genes!
megaspecial.co.uk
#MiniBlog There are so many reasons to be happy
I surround myself in positive influences, positive people, proactive people!
I never thought, ever, for one minute, that I would be able to say ‘I accept my life and I like where I am in life right now’
#MS #exercise #smile #laughter #thisgirlcan #ishapeme #megaspecialme #MegaSpecial
megaspecial.co.uk
Don’t be suprised if I don’t cheer for the heat of the sun
Constraints of my MS
HEAT
Most MS’rs, myself number 1 on the list, just can’t stand the heat of the sun!
Don’t get me wrong, I love to see the sun! Everyone smiles when the sun comes out to play but MS generally HATES heat of any kind!
Heat for me brings out all & I mean all of my symptoms worse than ever!
It makes me sluggish, it enhances my fatigue ten fold, it enhances my pain & because my fatigue is worse that means I can’t cope with my pain and so pain appears worse!
It gives me eye fatigue! Yep, eye fatigue which then means my vision suffers!
And if you hadn’t guessed, it makes me cranky!
I’m sorry I’m negative about the sunshine but these things you need to know!
When the sun shines all I really want to do is curl up into a ball & sleep in the coolest place I can find!
So many people get so happy to see the sun & feel it’s heat! Please don’t be surprised if I don’t smile as much when it’s hot outside! Just know that I feel your love for the sun & wish I could be as enthusiastic about it as you but I just can’t!
I’ve come up with some pictures to help show people how MS affects my vision, please remember though that everyone’s MS is different.
An example of someone who has normal vision looking into my back garden or ‘Fugly Manor Nature Reserve’
An example of my normal vision after damage left from optic neuritis
An example of my vision when it’s too hot for me
Uhthoff’s phenomenon
Uhthoff’s phenomenon or Uhthoff’s sign is the temporary worsening of symptoms – most often visual symptoms but sometimes motor or sensory – caused by an increase in temperature. The visual symptoms may present as double vision, sharpness of vision, or black spots in the eyes.
The symptom takes its name from Wilhelm Uhthoff, a German neuro-opthamologist, who first described it in 1890
An example of what follows if I continue to get too hot!
Dizziness and vertigo
Dizziness or lightheadness is a common symptom of multiple sclerosis. If the sensation is more severe and gives the feeling that surroundings are spinning, it is referred to as vertigo.
In MS, these symptoms are caused by damage to areas that co-ordinate perception and response to visual and spatial information.
megaspecial.me
megaspecial.co.uk
Living life the MegaSpecial way! 
