My fight with ‘Fight Klub’ and Multiple Sclerosis

Please understand, before reading any further. This is a very raw, straight from the heart, honest blog!

There is also some rude language right at the end of this piece which I shall not appologise for as it’s how I feel!

 

I feel so angry!
It’s so unfair!
I just want to better myself!
I found something I love… Fight Klub!
It’s extremely hard core!
I love it!

Every time I do it I over heat
My core temperature rises so high
And I can’t control it!
I have extreme sensitivity to heat!

 

I’m trying different ways to keep my temperature down but nothing has worked yet.
Even after the class finishes my temperature continues to rise!
I have to finish the class before everyone else, to try and lower my core temperature enough to get to the car!

After the class my daily MS symptoms are worse, every single one!
My legs are weaker and give way under me
My vision blurs in my right eye to the point of not being able to see much
My hearing starts to fade and all the noises around me sound muffled
My MS fatigue is worse than ever
My speech slurs
I find it hard to catch my breath!
I can’t talk, if I do I loose my breath

 

I even get old symptoms reoccur!
My vertigo comes back
Last night I had the MS Hug again! Thats been a while! This is really not something you want when your already so out of breath you think you might pass out!

The MS hug is a symptom of multiple sclerosis where you feel as if you have a tight band around your chest or ribs or it can be pressure on just one side of your torso. Some people find that it is painful to breathe.

 

Last weak I fell after a fight klub class!
I hadn’t realised the change in floor height as I walked out of the room and ended up in a heap on the floor feeling sorry for myself!
Thanks to Hannah the instructor for speaking sense to me, I pulled myself together with only my pride bruised!

Last night’s class was one of my best classes! There’s no in between for me, I’m either all in or all out! I had it together, throwing my punches but not to hard, it is shadow boxing after all!

After the class last night my legs were weaker than normal and I was extremely hot!
It was during the journey home that it happened, a friend had taken us that night, we often take it in turns to drive. I say we when I really mean my partner and our friend take it in turns to drive! As if i could drive after that class!
I must look an absolute state afterwards, but that only reflects how hard I’ve worked!

I think it can be quite a shock for people to see me like that! I know it must be upsetting when it is out of your control and there is litterally nothing you can do to put me right.
Why do I do it to myself? Because I have found something that is just perfect for me to let out my anger, my frustration! I just need to learn more self control and not put every ounce of energy I have into it because of course, I still have to be able to walk back to the car afterwards, oh and then there’s the walking from the car to my home when we return!
Being carried to the bungalow is not going to be an option! Not again!

It was years ago that exercising was a big no no if u have ms but then they learnt, the symptoms that come during and after exercising are short lived and with no lasting damage!
As long as I can cope with these symptoms I’ll be ok, thats what I’m trying to do, find a way of coping so I can continue to do something tht I love so very much!

So here are my words for today, tomorrow and as long as I have MS (obviously this is for life or until they find a cure!)…
Know this, I will always stand up to it! I will never give in because like Fight Klub, I’m either all in or I’m all out! There’s only one way to be, I will never stop fighting

#fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms

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When u forget things work because of #msfatigue

Charging my phone wondering where the USB end of the lead fits into my phone!
I’ve charged my phone millions of times! Where does it go?

The realisation that the USB end goes into a plug or in this case my lap top & the MINI USB goes into the bottom of my phone!

This is MS fatigue! Oh my MegaSpecial life! It’s never dull! 😜


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Rock, roll & wide awake!

Well, my wifey fell asleep on the sofa at 8:15pm! I had to sort the kids (🐕🐕) believe me, that’s a mission!  Make sure said wife took her meds after I found her catching flies slumped on one of the tub chairs in the kithen! Help her out of her onesie, never an easy mission!
Go round the bungalow making sure it’s all locked up, go around once more… u never know!
Sort myself out, meds, pjs etc. Check the doors where locked, I’d forgotten I’d already done it twice!
In bed before 9pm… BOOM! Rock, roll & wide awake!

Now who’s the one with MS! 😜


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Just be yourself; you are wonderful!

Nice little reminder for everyone this morning – myself included!

JUST BE YOURSELF; YOU ARE WONDERFUL!

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When the right pain comes I smile #MS #multiplesclerosis #nervepain #nervedamage #painforgain #strongerthanMS #thismegaspecialrocks #thisgirlcan #ishapeme #MegaSpecial

I’m sure this is referring to pain for gain because the pain I feel right now is not making me smile!

Check list…

•Heavy lifeless legs ✔
•Extreme relentless pain for no good reason ✔
•deep burning like my thighs are in a furness ✔

Yep, must be MS! 😩
Bring on tomorrow’s Pilates! Pain for a reason! 👌👍👏

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I LOVE THAT CLASS SO MUCH BUT MY MS FREAKING HATES IT!

WOW! I LOVE THAT CLASS SO MUCH BUT MY MS FREAKING HATES IT!
Look at my face MS, do I look as if I care!

Fight Klub is intense & I love it!

So I can hardly breathe after & it takes me over 30 minutes to cool down to a safe temperature when we finish, do I care? Errr, No!

Three little words for you…

This
Girl
Can!

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#blog — It’s a better day! — #MS #positivevibes #strongerthanMS

It’s a better day!
Thumbs up from eye hospital & discharged! Booyahhh!
Just gotta have my normal vision check next week at normal opticians, possible new prescription for right eye which is the one that I’ve had Optic Neuritis (inflammation to the optic nerve) 3x according to their computers.
Ophthalmologist told me again my vision will never get better in my Right eye, I will always have a loss of contrast in it and would I like some IV (intravenous) steroids? Yes u read that right!!!
NO THANKYOU!
Oh and to the lady that jumped the car park pay machine que, was it really worth it? I mean, how much quicker did it get you? Well it didn’t did it, the rotating door made sure of that for you when u tried to exit the building! Whoops!

Happy Friday!

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You are amazing, remember that!

That’s a first!

Walk into shop to have a browse at some clothes. I don’t normally look at clothes on my own, I’m normally in my wheelchair because clothes shopping in particular can be very draining!
Came over with a feeling of major depression when i saw how tiny the clothes that I used to wear are!
Turned around and walked out!
Need some new make-up so went into Boots, walked towards make-up isles decided actually, I didn’t have the energy so turned around and walked out!

Major bummer!

Hope everyone else is having a better day than me!
Just one appointment this afternoon and then I’m going home to cuddle our furbabies!

Just goes to prove that we can’t always have all good days straight each other and also for me to remember that just coming out to the retail park is far better than what I would have done 2 years ago!

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