Category: Constraints of my MS

September sun

​True story! 

20°c is always going to be tropical to me! 

Don’t get me wrong, I love to see the sun! Who doesn’t! Its one of those enigmas in life, people are happier when its sunny (unless your a vampire, then that’s just unfortunate! Move to Forks, Washington,USA! I hear its nearly always cloudy there!) 

Like i was saying, I’m happy to see the sun, as long as i can stay cool & its not humid! It’s the humidity that’s the hardest to combat for us MSrs, staying cool can be achieved a number of ways but how do you combat humidity? Answers on a postcard 🤔😉

Making a down day happier…

​Having a pretty shitty day today tbh, so fatigued its unreal! Every day lately seems like I have to push myself harder, just to move my body and that’s without actually thinking about what I want my body to do! That takes even more effort! Long gone are those days that I can do things without thinking!
Right now, MS sucks but guess what, I was looking through my pictures on my phone, to find something that reflects my current mood…
That’s when I saw this photo and everything changed! 

This photo was taken last Sunday when I yes me, drove the furthest I have ever driven (90 miles to South Yorkshire) to see my MS sister & the rest of our faaaamily! Of course I had my DebbieRahRah as SatDeb & navigator. What makes me feel more proud, was that I drove without feeling nervous!
This beautiful lady is my Kindred Spirit, she has helped me through my MS more than she’ll take credit for! I only need to see her smiley face and my mood lifts! 

Thank you Sarah Hickman for making my day cheerier! 

(And I know exactly what she’s saying when she reads this… Either “oh behave” or “stoppppp”)

🙊😂💋💖💞
 

Still a rock star!

​Just when I convince myself, doing this is allowed, its OK to let myself rest. 

I then see not just one medical appointment, but two, both today, my rest day! 

That’s what rest days are for isn’t it!?? 

Appointments, because they’re so much fun! 😜 

Shared via Pinterest

 

​What an incredible day! 

Yesterday was an incredible day! 
First of all, I’m proud of myself for getting back to a couple of my old time favourite classes, thanks to a lovely lady who goes to one class for supporting me & also to a certain awesome chappy for reminding us about another class!

•Pilates, even though i have been doing a class most weeks, its good to mix it up a bit with the instructors

•Fight Klub, its been around 8 weeks since I went to this class, so it was a bit of shock! I had to have plenty of rest stops, keep myself hydrated & lots of gentle pushes from the instructor to keep moving! 

DebbieRahRah did 2 classes back to back! That’s flipping hard core man! She rocks!

Phew! 

Remembering @chloebrotheridge relaxation MP3 tonight to help Deb get to sleep was just genius! 

Thank you Chloe! Worked a treat! 

👏👏 

Liberated

​So unbelievably proud of myself even though my daddy will tell me off, my error forgetting my prescription for my fatigue meds on Monday, therefore I have to fix it, right!?
Drove myself to the hospital to cash in my prescription for some drugs! 
Oh yeah and I’m makeup-less as I’m  having an MRI later (different hospital) and I just couldn’t be bothered! 

Body image struggles

​Sometimes you just gotta get down on your mat! 
My head, my thoughts are in a funny place at the moment, I’m doing my best to stay with my Yoga but its so hard! 
I’m having a lot of body image problems, for instance I wanted to see how I am with my downward-facing dog (Adho Mukha Shvanasana) progress, so did a video, really pleased with the left side of this picture but extremely dislike the right! (Hate is a strong word but…) And its not because I can’t straighten my legs or flatten my feet. 
I know why I’ve started feeling like this again. That’s part of the battle when you don’t know why your thoughts have changed so much after doing so well.
A bump in my road, well, more than a bump, loosing part of our family has literally took me backwards on my ‘better mind journey’ 
I’ll trust this journey for as long as I’m on it because I have never felt so determined!

Feeling fragile

​Feeling fragile today but the show must go on! 

Ollie was never a girl to sit and mope even in the pain she had daily! 

Trusting the journey & currently taking baby steps along the way! 

I am creating the best version of myself

​An incredible, emotional & insightful Yoga class today with my Guru-Lou @louiseavilesyoga 

Thank you! Things are making so much more sense after our chat!

I’m back!

​Another beautiful day, I’m up, medicated, showered, dressed AND today not only do i have make up on but I’m going out! 

Yes, I’m ready to face the world, ready to look life in the face & say move over bitch I’m coming through!

I’m back & I’m on it! 👊💥

#cantkeepmedown

Invest in rest

​Just took me 30 minutes to walk a 5 minute stroll! 

I know, I’m crazy doing that in this heat! 

Lesson learnt & I shall be cancelling my exercise class tonight! 

Feeling proud  because of how positive I’m staying when feeling cacky in this heat & having to cancel classes! 

I’d rather feel like rubbish now than make it 100 times worse if I tried to exercise in it! 😉