Tag: #thisgirlcan

Rediscovering a MegaSpecial me

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Oh my days! This was my post, this day FOUR years ago! Counting down to the firewalk fundraiser we organised for the MS Trust!
I never thought that night would have such a massive hit! All I wanted to do was prove to myself ‘if I can walk on fire then I can be stronger than MS’

I didn’t realise then what an amazing journey I was about to go on in rediscovering myself!
It’s taken along time but I think I’m finally at a place in my life that seemed so unreachable so many times!

I know there will be difficult times ahead, this is my life & I have MS! I’m in such a better head space now than I ever was before! As long as I stay this way, this focused then I hope I can handle anything thrown my way!

megaspecial.me
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#MyInvisibleFight “How do you open yours?”

#MyInvisibleFight #invisibleillness #invisiblefight #iiwk15

*THIS IS IN NO WAY A ‘PITY PLEA’ I JUST WANT PEOPLE TO BE AWARE OF HOW HARD IT CAN BE FOR PEOPLE WITH INVISIBLE ILLNESSES*

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After seeing the post on Facebook (shown above) I have decided I shall take part & so every time I see a photo opportunity of #MyInvisibleFight I shall post the picture on instagram & here on my blog site which will then share to Facebook & twitter!

If you know me, are close to me & think this will be too upsetting for you then stop reading now.

My intention isn’t to upset people, nor is it to make people feel sorry for me or others with Invisible illnesses. We don’t need a ‘Pity party’ we just want people to understand & realise how hard it can be for us! How incredible we are! How strong we have to be!

To be honest, this is quite a good ‘pick me up’ for me as I often forget the challenges I have & still do overcome!

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My 2nd photo is something as simple as opening the post!

I love to receive mail! I no longer get bills in the post, come on people, we’re in the age of technology! Everything is now email, text, apps, this is our world!

“Your EE bill is now ready for you to view online”
“Your E Newsletter is now ready to be viewed online“
“Your now due your next eye examination “

How exciting is it to hear the letter box rattle, knowing that someone somewhere has thought of you! Either that or its a flyer from the local takeaway! No thank you! We don’t want those here!

Off I go to collect my mail, I sit down with whatever hot drink I’m partial to that day, post on the table in front of me & then I remember!

Oh no, my hands aren’t working today! I can’t keep a tight grip of the letter & coordinate my other hand to work at the same time! Oh, oh…. no! I’ve torn it! I hope it’s still readable!

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Yes there is such a thing as ‘letter openers’ I’m just not sure it’s a good thing on days like these for me to be holding something with a pointy end!

Imagine, gawd forbid if I ended up at A&E with a puncture wound somewhere on my body & having to explain to the nurse how I did it! I’m sure they’ve heard worse!
“It was because of the letter & a letter opener, actually nurse, the letter opener is still in my tummy”

Now please don’t stop sending me good old fashioned snail mail because I may not open it to perfection, where there’s a will there’s a way!

megaspecial.me
megaspecial.co.uk

#MyInvisibleFight

#MyInvisibleFight #invisibleillness #invisiblefight #iiwk15

*THIS IS IN NO WAY A ‘PITY PLEA’ AND I’M NOT BEING NEGATIVE, I JUST WANT PEOPLE TO BE AWARE OF HOW HARD IT CAN BE FOR PEOPLE WITH INVISIBLE ILLNESSES*

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After seeing the post on Facebook (shown above) I have decided I shall take part & so every time I see a photo opportunity of #MyInvisibleFight I shall post the picture on instagram & here on my blog site which will then share to Facebook & twitter!

If you know me, are close to me & think this will be too upsetting for you then stop reading now.

My intention isn’t to upset people, nor is it to make people feel sorry for me or others with Invisible illnesses. We don’t need a ‘Pity party’ we just want people to understand & realise how hard it can be for us! How incredible we are! How strong we have to be!

To be honest, this is quite a good ‘pick me up’ for me as I often forget the challenges I have & still do overcome!

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My first photo is about Pain! We have all felt pain at some point in our lives but most have the pleasure, yes pleasure of that pain being short lived! Have you ever seen pain?
This is the first of #MyInvisibleFight I am never pain free! Some days I ‘cope’ with the pain better than others but that doesn’t mean I’m in less pain! The pain is still the same, it still grinds me down. Like I said, the difference is how I cope with it!

I wake up, I hurt! I need to move, how much will it hurt me to swing my legs out of the bed & sit myself on the edge?
I have to do it, deep breath!
Yeah that hurts! My whole body! Is this what it feels like to have full blown flu? No, it’s worse!

Okay so I’m up & I’m ready
I’m still in as much pain if not more from all of the moving around I’ve been doing but now I’m really focused! It’s time for Pilates! #addict!

It doesn’t end there, when my partner is home from work we then go to the gym for a 30 minute workout!

My pain eases when I exercise! I push myself everyday to do these things because I know that whilst I’m doing them my pain decreases about 10% and afterwards for about 3/4 hours I’m in 50% less pain!

That might not seem much but you tell me when u suffer with chronic pain all day every day if it is worth the push!

The picture below shows it is! Pic to the left was last year…Before pilates, pic to the right was yesterday, 7 months at pilates

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National Fibromyalgia awareness week

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Quite extreme & a little negative but I’m sure a lot can relate to this!

megaspecial.me
megaspecial.co.uk

May your Friday sparkle

Happy Friday to all those that ‘Friday signifies the eve of 2 days off with your family’

My plans? A nice gentle back to basics Pilates class at lunch time, DebbieRahRah at ‘Donkey derby’ tomorrow & our girly ‘Olivia’ has hydrotherapy Sunday 🐕

Oh & of course visits to the gym when ever we get chance 💪

Have a great weekend folks! ❤

#friday #sparkle #family #weekend #happy #familytime #pilateslovers #pilates #pilates4ms #thisgirlcan #ishapeme #megaspecialme #bringiton #strongerthanMS #love #lifeisgood #loving #life #followme #MS #positivevibes #largerthanlife #MultipleSclerosisAwareness #multiplesclerosis #inspiration #gym #homeworkout #powerplate #balance #donkeyderby #hydrotherapy #princessolivia

megaspecial.me
megaspecial.co.uk

Good bye wobble, hello balanced life

A brilliant article about MS & balance issues!

Makes me realise how well I am doing in pilates & know that what I’m doing in the gym is paying off!

I never thought I’d see the day that I’d loose my balance! After years of working with horses I had incredible balance! It wasn’t until I broke my leg that my balance started to shake & then my MS saw how funny it is to make me wobble when I walk so messed up my balance!

Well, tongue out to u MS cause yesterday I rocked pilates & the power plate!
Today I shall do it all over again just to prove that I am stronger than my MS, for right now anyway!

👅👅👅

http://ms.newlifeoutlook.com/balance-ms/

megaspecial.me
megaspecial.co.uk

Cog Fog made worse by pain

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Having this from my Fibro & my MS! Jeez, double whammy man!

Makes it worse when I’m in pain (which unfortunately is all the time) & when I’m tired!
Being in pain makes me tired, being tired means I can’t handle the pain as well!
That’s where I am today! 😐

Just keep smiling! We’ll get there eventually!  😄

megaspecial.me
megaspecial.co.uk

Can I start the day again please?

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Tadaaaa! Old & new together!

I’d like to start today again if I may? Could I not have MS though because it’s gotten right on my nerves today! It’s really interfered with a happy occasion, that’s what getting a new car is about right?

I know I always appear happy & smiley, that’s what people want to see & hear. I’ve always wanted to be truthful in this blog, don’t get me wrong, I have been. It’s just today I’m not happy but am still smiley! Hard to do but I know a lot of people that do it!

Why aren’t I happy? I’ve just collected a new car, I should be! I should have been excited about it and I was to begin with but, as the day got closer, I began to feel more & more anxious!

This is part of my MS, I don’t cope well with change! I think the reason for this is because my brain has a very hard time taking in & retaining new information. Going from somebody that was once compared to a sponge *soaks up information* to how I am now is very hard to accept!

That is why I wanna start the day again!
I just collected my new car & everything I was told about it just seemed to go straight through my ears! It was if I could feel it happening!
The first time driving an automatic on my own, I kinda needed to retain that information I was given!

I just can’t think straight today, even during pilates I was struggling!
I’m gong to stop giving myself a hard time & just breathe!
It’s not the end of the world!
I shall enjoy my new car, I’ll practise my pilates a little more & I bet you the next time I post a new blog I’ll be all happy again because I am stronger than my MS!

megaspecial.me
megaspecial.co.uk