Arghhhh! I’m so frustrated!
Learning new skills when you have MS is like trying to ride a bike backwards!
You need patience of a saint and do not cry when you fall off! Just pick the bike up and away you go again!
No one said it would be easy!
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Always a reason to smile! Happy Monday folks!
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If there’s one thing I can guarantee with my MS, it hates the slightest change in temperature! Anything between 18.5°C & 20.5°C is fine but lower or gawd forbid higher then there’s trouble!
2 years ago I went to visit my Mum in Cyprus with my MegaSpecial Sistaaah Sarah (from another mista, aka my best friend!) Her MS just adores dry heat and my is it hot in Cyprus! Unfortunately I spent most of the holiday in so much pain! Luckily I had my Mummy and DdyPaul looking after me whilst my MegaSpecial Sistaaah Sare was keeping me busy with laughter!
Despite the pain I still had a wonderful holiday!
On the other scale is days like today when the temperature really starts to plummet and winter sets in! Nights like this when I have to increase my ‘Pregabalin’ (nerve pain meds) to help me with my pain through the night!
I’m not sure which is the worst? The pain in the winter when my Spasticity in my legs, arms and hands is worse or the pain in the Summer when my MS Fatigue is worse!
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Yes I set 3 alarms to wake me for the gym!
Yes I cancelled all 3 alarms when they went off this morning, I didn’t even select snooze!
Yes I slept until 9am!
NO I didn’t go to the gym!
No I’m not annoyed with myself!
No I can’t still go to the gym. Oldest dog, ‘Princess Olivia’ has hydrotherapy at 11 & then doors to gloss
This is the first time I’ve been ok that I haven’t been to the gym!
Last week I only went to one Pilates class as well!
It’s ok to rest!
It’s ok to take it steady!
There’s no competition!
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Take a look at @MSUK6’s Tweet: https://twitter.com/MSUK6/status/647043872938442752?s=09
Another plug from Anna, MS-UK’s fundraising administrator.
She also mentions Shelley’s family fun day that was held at the Weavers Arms, Fillongley last weekend. I shall be sharing picture’s from this wonderful day very soon!
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Have u ever heard that saying, ‘proud as punch’ well that’s how u feel right now!
Proud of all my friends that made up team BAM4MSUK because we have been chosen as fundraiser of the month for doing so well in the ‘Color Run’
http://www.ms-uk.org/fotm
I know it says my name but it was a team effort! We did it guys! Same next year!?
Click on the link to read my story & stay tuned as I’ll be sharing more about it soon! 😄 🌈
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It appears I may have a talent for saving birds!
Another one flew into the window here at Fugly Manor Nature Reserve, big explosion of feathers as usual & a tiny young Gold Finch hits the decking, neck twisted round!
I thought she/he was a gonna (for this posts sake bird is a she!)
When I bent down to her, she was still breathing and she blinked her tiny little eyes at me! Her neck was still twisted round so I was holding much hope. I very gently lifted her a cupped her in my hand, she just kept blinking looking & at me. I managed to find a shoe box, put some holes in so she wouldn’t suffocate, some kitchen roll and lay her in it.
I was due to go to my MS exercise class but wasn’t quite sure what to do with this precious little creature. I decided the best thing would be to keep her in the box and put it in the shed whilst I was out!
As soon as I got back, that little bird was on my mind! What will I find when I open the box? I wasn’t expecting it to be good news.
I opened the shed door, very gently I lifted the box and stepped out of the shed. If it was ok, the last thing I would want to happen is for it to be loose & flying around the shed!
I took a breath and opened the lid, nothing apart from some feathers & bird poop! No bird! Well I guess it’s ok then and maybe I cut that hole to large! I was shocked that it got through the hole!
Whilst being in shock that the bird was gone I then realised I needed to find it! It was in the shed somewhere! Oh gawd!
I looked around the window area, knowing that it would have been attracted to the light. Bingo! I could hear it, it was trapped between the wall of the shed & some wood. I managed to pull the wood out of the way & out flew the little young Gold Finch!
She flew onto the larger shed opposite, stopped to catch it’s breath and figure out what had happened and then flew away!
Yey! I saved another casualty of the window!
I feel so happy! 😄
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Oh my days! This was my post, this day FOUR years ago! Counting down to the firewalk fundraiser we organised for the MS Trust!
I never thought that night would have such a massive hit! All I wanted to do was prove to myself ‘if I can walk on fire then I can be stronger than MS’
I didn’t realise then what an amazing journey I was about to go on in rediscovering myself!
It’s taken along time but I think I’m finally at a place in my life that seemed so unreachable so many times!
I know there will be difficult times ahead, this is my life & I have MS! I’m in such a better head space now than I ever was before! As long as I stay this way, this focused then I hope I can handle anything thrown my way!
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Alarm set for gym o’clock! Let’s do this!
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Living life the MegaSpecial way! 