Another beautiful day, I’m up, medicated, showered, dressed AND today not only do i have make up on but I’m going out!
Yes, I’m ready to face the world, ready to look life in the face & say move over bitch I’m coming through!
I’m back & I’m on it! 👊💥
#cantkeepmedown
Medicated, showered & ready for life by 9am!
Melting, dripping, generally fcked & sitting in front of the noisiest fan by 10am!
Yey! Bring on the day! Just don’t expect much from me today!
Soooooo sleepy!
I find it so odd how some people’s MS likes dry heat, helping with their pain levels & then there’s some whom like me, it makes their pain worse!
Humidity has to be the worst for all MS’rs! I’ve never met an MSr who likes humidity!
For too long i haven’t been able to visit my friend @emilytexasbaran in her (was then) new home in Texas because of the humidity there!
Now she has moved to Pittsburgh, Pennsylvania I’m going to have to start saving hard for flight tickets! #notsohumidthere
Gotta love my Debbie for switching the electric blanket on last night for when I went to bed!
Gotta hate my MS for me not even realising it was on (I couldn’t feel the difference in temperature!)
I’d done myself a hot water bottle as well & took it to bed with me warming my back to ease the pain!
Oh my days! Can u imagine!
megaspecial.co.uk
If there’s one thing I can guarantee with my MS, it hates the slightest change in temperature! Anything between 18.5°C & 20.5°C is fine but lower or gawd forbid higher then there’s trouble!
2 years ago I went to visit my Mum in Cyprus with my MegaSpecial Sistaaah Sarah (from another mista, aka my best friend!) Her MS just adores dry heat and my is it hot in Cyprus! Unfortunately I spent most of the holiday in so much pain! Luckily I had my Mummy and DdyPaul looking after me whilst my MegaSpecial Sistaaah Sare was keeping me busy with laughter!
Despite the pain I still had a wonderful holiday!
On the other scale is days like today when the temperature really starts to plummet and winter sets in! Nights like this when I have to increase my ‘Pregabalin’ (nerve pain meds) to help me with my pain through the night!
I’m not sure which is the worst? The pain in the winter when my Spasticity in my legs, arms and hands is worse or the pain in the Summer when my MS Fatigue is worse!
megaspecial.co.uk
Living life the MegaSpecial way! 