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Tag: Chronic pain
#invisibleillness #iiwk15 #invisiblefight
I haven’t posted anything on my blog for a while, for those that follow it I am not giving in with it.
I am having a little confidence knock which I believe to be a part of my anxiety/depression & my MS.
It is becoming increasingly harder for me to cope with a lot of technology and so I am trying to have a cut back & a ‘low tech’ time!
This is proof that even us happy, cheery people aren’t always what they seem on the outside!
This is my #invisiblefight to get me back!
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MS-UK fundraising blog
Take a look at @MSUK6’s Tweet: https://twitter.com/MSUK6/status/647043872938442752?s=09
Another plug from Anna, MS-UK’s fundraising administrator.
She also mentions Shelley’s family fun day that was held at the Weavers Arms, Fillongley last weekend. I shall be sharing picture’s from this wonderful day very soon!
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Happy funtastic Friday peeps!
Happy funtastic Friday peeps! This is where it begins!
TODAY
•Back to basics Pilates class with Kate King = Love!
•Collecting MegaSpecial Sistaaah Sarah Hickman & nephew Lewis from train station = More love
•Rugby World Cup starts = Happy
•England v Fiji = Adrenalin
TOMORROW
•Shelley’s family fun day at The Weavers Arms, Fillongley in aid of MS-UK = FUN
•Me in the stocks at the event = Arghhhh
•A group of MegaSpecials (MSrs) all meeting together at event = Amazing & dream come true!
•Adam’s 35th birthday party in evening = Shattered me, Sare & Sista Rosemary plus more fun!
SUNDAY
•Recover! 😜
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Anxiety issues!
Mixing it up a bit today!
This mornings pilates was cancelled, so I’m off to a different leisure centre. I’ve been to this class before but it was quite a while ago. This brings another challenge, I won’t know how to get there again or where to go when I’m inside the centre!
The class is being covered by another wonderful instructor, Hannah Bailey, who I know well. Makes me feel better knowing she’ll be there!
I don’t need to be anxious! Why is it I can tell myself that but I can’t shift that feeling!
Breathe Vix just breathe!
It’s going to be an amazing day right!?
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MS-UK | Fundraiser of the month
Have u ever heard that saying, ‘proud as punch’ well that’s how u feel right now!
Proud of all my friends that made up team BAM4MSUK because we have been chosen as fundraiser of the month for doing so well in the ‘Color Run’
http://www.ms-uk.org/fotm
I know it says my name but it was a team effort! We did it guys! Same next year!?
Click on the link to read my story & stay tuned as I’ll be sharing more about it soon! 😄 🌈
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Vix, the bird whisperer
It appears I may have a talent for saving birds!
Another one flew into the window here at Fugly Manor Nature Reserve, big explosion of feathers as usual & a tiny young Gold Finch hits the decking, neck twisted round!
I thought she/he was a gonna (for this posts sake bird is a she!)
When I bent down to her, she was still breathing and she blinked her tiny little eyes at me! Her neck was still twisted round so I was holding much hope. I very gently lifted her a cupped her in my hand, she just kept blinking looking & at me. I managed to find a shoe box, put some holes in so she wouldn’t suffocate, some kitchen roll and lay her in it.
I was due to go to my MS exercise class but wasn’t quite sure what to do with this precious little creature. I decided the best thing would be to keep her in the box and put it in the shed whilst I was out!
As soon as I got back, that little bird was on my mind! What will I find when I open the box? I wasn’t expecting it to be good news.
I opened the shed door, very gently I lifted the box and stepped out of the shed. If it was ok, the last thing I would want to happen is for it to be loose & flying around the shed!
I took a breath and opened the lid, nothing apart from some feathers & bird poop! No bird! Well I guess it’s ok then and maybe I cut that hole to large! I was shocked that it got through the hole!
Whilst being in shock that the bird was gone I then realised I needed to find it! It was in the shed somewhere! Oh gawd!
I looked around the window area, knowing that it would have been attracted to the light. Bingo! I could hear it, it was trapped between the wall of the shed & some wood. I managed to pull the wood out of the way & out flew the little young Gold Finch!
She flew onto the larger shed opposite, stopped to catch it’s breath and figure out what had happened and then flew away!
Yey! I saved another casualty of the window!
I feel so happy! 😄
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Rediscovering a MegaSpecial me
Oh my days! This was my post, this day FOUR years ago! Counting down to the firewalk fundraiser we organised for the MS Trust!
I never thought that night would have such a massive hit! All I wanted to do was prove to myself ‘if I can walk on fire then I can be stronger than MS’
I didn’t realise then what an amazing journey I was about to go on in rediscovering myself!
It’s taken along time but I think I’m finally at a place in my life that seemed so unreachable so many times!
I know there will be difficult times ahead, this is my life & I have MS! I’m in such a better head space now than I ever was before! As long as I stay this way, this focused then I hope I can handle anything thrown my way!
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What will it be?
Alarm set for gym o’clock! Let’s do this!
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#MyInvisibleFight #3 Bored of being bored!
#MyInvisibleFight #invisibleillness #invisiblefight #iiwk15
*THIS IS IN NO WAY A ‘PITY PLEA’ AND I’M NOT BEING NEGATIVE, I JUST WANT PEOPLE TO BE AWARE OF HOW HARD IT CAN BE FOR PEOPLE WITH INVISIBLE ILLNESSES*
After seeing the post on Facebook (shown above) I have decided I shall take part & so every time I see a photo opportunity of #MyInvisibleFight I shall post the picture on instagram & here on my blog site which will then share to Facebook & twitter!
If you know me, are close to me & think this will be too upsetting for you then please stop reading now.
My intention isn’t to upset people, nor is it to make people feel sorry for me or others with Invisible illnesses. We don’t need a ‘Pity party’ we just want people to understand & realise how hard it can be for us! How incredible we are! How strong we have to be!
To be honest, this is quite a good ‘pick me up’ for me as I often forget the challenges I have & still do overcome!
My 3rd picture is so terribly boring! No no no, not the picture! The picture isn’t boring, it shows boredom!
Everybody at some point experiences boredom but I suspect it’s short lived? What if you experienced boredom everyday.
What if you were looking forward to the weekend, only to find out you when you wake in the morning any plans you had that day would have to be cancelled! That’s right, cancelled!
I didn’t have many plans for today, Saturdays are usually my days off from exercise especially when my partner is off work so that wasn’t a problem for me, what was a problem was my pain levels! Far too high!
It was then that I was asked if I wanted to go clothes shopping! Seriously! But we went shopping last night, I hadn’t anticipated going today as well!
That was it, left home alone! I can’t stop my partner from doing things because I can’t go! I bet it’s as hard for her to go alone as it is for me to say ‘I can’t go’
The fear then is not knowing how long I’ll be cancelling plans for! Is this going to pass soon? Temporary, it’s only temporary? Please let it only be temporary! Oh man, I’m bored already!
‘Ping’ goes my phone, I reach for my phone & smile! This is when the fashion show begins, yey! I have always love clothes shopping so this was perfect, I didn’t feel as though I was missing out at all!
I’m very lucky in that I have wonderful friends who I get to chat with most days via the wonderful world of technology that we live in today!
That wasn’t the case for me 5 years ago when I was suffering badly from acute Multiple sclerosis relapses. At this point I didn’t have the amazing network of friends that I have now! I didn’t have the knowledge or the understanding of my 2 illnesses (Multiple Sclerosis – MS & Fibromyalgia) as I do now & I certainly didn’t have the ability to say ‘you go, I should really stay here’ What I did have was a lot more days when I had no choice but to stay in bed because I didn’t ‘look after me’ and because I didn’t have all my Internet friends I had a tremendous amount of boredom!
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Living life the MegaSpecial way! 