The word failure can be hard for most to accept but what we must remember is what is hidden within that failure.
Knowledge! Learn from fails, learn from mistakes!
Turn a negative word into a positive outcome!
This is an emotional, heart string pulling post but is such a good reminder for me and an excellent peace of advice for everyone!…
No matter what you are going through right now, remember, you are never alone!
Find yourself people that are in the same situation as you! This post explains how I did just that and by doing it I realised I wasn’t alone & by being with these amazing people I found that I could feel normal! I was no longer the odd one out!
I found people that spoke the same MeSsy language as me!
Find yourself a person or find your people!
I found mine!
This picture popped up on my facebook memories! Gulp! Deep breath!
Facebook is great for helping me remember past events, even when they have a massive effect on the current day! This photo was taken 4 years ago at my 2nd Ladies with Lesions meet.
How sad that a lady in this picture is no longer with us 😐
😥 Tanya (in the middle at the back) founder member of the group for women with MS ‘Ladies with Lesions’
Being a member of this group brought me my incredible friends & showed me I wasn’t the only person with MS, it’s a very lonely time when u find out you have a life long illness (disease)
I honestly believe that being a member of this group (LWL) helped to shape the person I am today!
For this I will be forever thankful to Tanya! Forever missed and never forgotten! Rest in peace lovely! 😭
Today I did my first Yoga class and I absolutely loved it! Let me just take this in for a moment!
Yep! Proud!
I’ve wanted to try yoga ever since I started Pilates! My physio always said stick with Pilates, keep the movements fluid. Why!!! I loved it!
Yes, definitely proud!
I stepped out of the box, out of my comfort zone, made the move, did something entirely different to my normal!
I have to say I loved it that much that I booked another 5 sessions!
Thank you Louise for your patience with me & for agreeing to not only have a selfie with Myles the MS-UK mascot but to agreeing to take progress pictures of me for the next 5 (or more!) sessions!
Thank you to Rach for passing Louise’s details on to me as well!
And thank you to everyone in my life for believing in me enough for me to believe in myself!
I have now copied this speech as it’ll do nicely should I ever win an Oscar! ;)😂😂😂
I’ve had Deb at home as it’s Monday, her day off. The Only class I didn’t attend was the MS exercise class. Like I said in yesterday’s blog, even though it’s all seated exercise it would still be too much for me to do!
Because Deb was home that was a good distraction for me to not keep checking the time, although I did have a few cheeky time checks. No comments on facebook about it either, I can’t help but think I wasn’t missed. Silly of me right! I just don’t like to miss out on anything! Right or wrong, that’s who I am!
We had some visitors this afternoon, another good distraction from the pain!
My Dad and Stepmum popped round with their 2 sight hounds, Ava the Saluki & Finly the Lurcher.
They have only had Finly for 6 weeks so him and ours are still getting to know each other. All fun and games! A great distraction from the pain I’m still getting in my legs and spine when I’m standing.
A boring hour and half whilst Deb and Adam went off to Fight Klub! I’m not a happy bunny, I’ve got my new boxing gloves and can’t try them out! Humph!
I have to be prepared for my mood tomorrow! I’ll be missing Pilates with Hannah Bailey and then Body Combat in the evening with Gill Cathcart!
What on earth did I used to do before exercise took over my/our life!
I know I wasn’t as happy when I didn’t go to the gym or all these classes!
If we all just did a little bit more to look after ourselves would we be living in a happier world?
The third day of recovery after having my back procedure. It’s Sunday, the first day of our weekend. The day that our alarm clocks are redundant, I do love my sleep! It also means that because I’m not on my own my mood is good even though my pain is bad!
I did have to cancel a class today, we don’t normally go to exercise classes on a Sunday but Deb and I had decided we would try a different class, one that we had both wanted to do for a while called ‘Body Pump’ A weight-based group-fitness program created and distributed globally by Les Mills International.
I was really disappointed that I had to cancel but there was really no way that I could do it! I didn’t think there would be any chance I would be able do the class after having my back done!
I didn’t stay disappointed for too long after I cancelled the class yesterday, the reason for this was because Deb told me she would also cancel as it would be better if we did our first class together!
We didn’t stay in mopping! I’d been given a HMV gift card for my birthday and I knew exactly what I wanted to get. I told Deb that I wanted to go and get the film called ‘Lady in the Van’
I was so excited to be going out, I know it was only 2 days, 3 if you include the day of the procedure. I felt as though I had been stuck inside for too long, I mean I’m normally out every day even If just for a short time like visiting my GP to renew my medication!
I updated my social media status to something like:
“Breaking news!… I’m going out! The Vixter has left the Manor! (Fear not sofa, I will return!)”
This was short lived though and soon updated to:
“I’ve returned! I forgot that I could only stand for about 5 minutes yesterday! The pain is horrendous when I’m walking and standing! Better off staying on the sofa a little longer me thinks!”
It’s so easy for me to forget the things I can and can’t do, especially when my pain is just about bearable when I’m sitting in one place! I’d forgotten the awful pain in my thighs when I walk, the pain shooting down the backs of my legs emanating from my butt and finishing at my feet. I’d forgotten how every step was more and more painful and I’d even forgotten how I would need help lifting my legs in and out of the car! Even if I had used my wheelchair I would have still been in too much pain getting in and out of the car and also whilst in the wheelchair because of twisting to look at different things.
Still, all this said, I managed to get my dvd and we watched it tonight. A lovely film, very different to what you might expect but still a good film.
My trip out today has made me realise one thing for sure, I definitely won’t be able to attend the MS exercise class that I normally go to and being covered by Hannah Bailey. It’s scheduled for tomorrow (Monday). Even though it’s seated exercise it’s far too much for me to handle yet!
This also means that I won’t be going to Monday evenings Fight Klub! This isn’t good news! One of my favourite classes! I’m going to have to try extremely hard to stay positive tomorrow because of this! Wish me luck!
Myles came to support me yesterday for my ‘Denervation & sacroiliac joint facet steroid injections’ at University hospital Coventry but was feeling a little nervous about going into day surgery & wouldn’t get out of my bag!…
Whilst I was getting settled in my hospital bed for the day Myles was checking out his surroundings…
It can get very boring waiting for your turn in theatre so we had a look at what we could do to pass the time…
After having a little read of the book Myles then decided to have a go at a sudoku puzzle!…
Myles wasn’t very happy because he wasn’t allowed in theatre with me but was over the moon when I came out and took the opportunity for some selfies!…
I always try and stay positive & with as ManySmiles as I can! How could I not smile with a cup of tea in my hand and a bear on my arm!…
I had a few things done yesterday, one procidure called denervation (pronounced De-Nerve-Ation) the consultant puts needles deep into my lower spine and attatches a machine that litterally burns the nerves at 80°c! This procedure stops the pain messages travelling from the nerve to the brain!
During the other procedure the consultant injects steroids into both of my sacroiliac joints (where the hips join the spine)
This time he did denervation higher up my spine as well because the pain was stopping me from being backwards!
Phew!
The procedures took just over an hour & I was awake for all of it!
Last 2 times I had it done, I could only stand him doing one side so had to go back another day for the other side to be done!
This time i managed to bare the painful procedures and the consultant did it all in one go!
Brilliant Fight Klub last night with Hannah Bailey!
Had this T-shirt with me so whilst I finished the class early as usual to try my best to get my temperature down, I thought it most appropriate to hold this top up during the gruelling abs section!
Everyone seemed to appreciate it 😄
Btw, I wish I could take part in the abs section but I have to use that time to cool down!
My internal thermometer is fooked thanks to my MS! When I over heat it triggers all of my symptoms, meaning I can hardly walk, balance, see, hear, talk, oh the list goes on!
At least once my temperature is at a safe level my symptoms subside and I just walk and talk like I’m pissed!
I’m so pleased I’ve found something that helps to keep me cool!
*the t-shirt doesn’t keep me cool, just to clear that up! It’s a cloth that is extremely cold when wet! For those that attend fight klub or any other cardio classes I attend, it’s that pink cloth I always have either around my neck or over my head like a nun! 😂😜*
I LOVE FIGHT KLUB!
#fightklub #fk #howmany #strongerthanMS #MegaSpecial #multiplesclerosis #inspiration #proud #pain #ishapeme #ms #fuckms #dontgiveup
DON’T GIVE UP!
One of the t-shirts I bought today TWO sizes smaller than this time last year!
I think I could actually go another size smaller… THREE sizes smaller than this time last year! Need my personal clothes shopper ‘DebbieRahRah’ to give me here advise before I risk going down to a size 14!
*It’s been 6 years since I was that size! My pre MS diagnosis size!*
Thank you to every one that has supported me & continues to support me on this physically & mentally challenging fitness journey that I’m on!
It doesn’t feel like it or look like it after a lot of the exercise classes I do, especially cardio, that’s the hardest, but I am loving the new energy I have and mostly the new friends we have!
#DoTheUnbelievable #fitness #msenergy #goob #lovelife #fuckms #ms #multiplesclerosis #spms #strongerthanMS #inspire
Tysabri number 45 done!
I’m shattered & feel like a pin cushion, covered in bruises thanks to my cheeky veins!
Got me some comfort food… crumpets, sitting down in my comfies ready to watch the next installment of the Rocky anthology with my boo!
megaspecial.co.uk
Today I hoovered up hundreds of star confetti from my birthday, hoovered dog hair out of the bath & hoovered up all of the tiny stones from the garden that end up in the kitchen!
All of this was after sleeping through half of the day!
I once saw a post on Facebook from someone advertising her time. A lady that loves horses and was looking for horse owners to let her help out at their yard. She offered to groom the horse, exercise it and even do the dirty jobs like muck clean the stable!
Basically she was advertising herself to do the same job as a groom who would cost a whole lot more than she was asking because she was offering to do all the work for free!
Why don’t cleaners offer to work for free!
All I ask is for someone to offer to do all of our housework for absolutely no payment because they love doing it so much and can’t get enough of their own!
Not going to happen is it!
Didn’t think so!
megaspecial.co.uk
Living life the MegaSpecial way! 