And this is only the low dose steroid to tide me over until I see my MS nurse!
Fingers crossed I don’t need the real relapse Prednisone when I see her on Tuesday
Look forward to tomorrow’s blog! I’ll have to turn up to humour dial me thinks!
01:25… oh wait, this could be classed as tomorrow’s blog I guess!
Let me change that title!
The things I’m grateful for that may seem odd to others
I’m grateful to my MS Nurses even though they still haven’t returned my calls 2.5 weeks later
I’m grateful to my GP even though ‘he’ was the one that compared me to another MS patient regarding my inability to work AND has just prescribed me what I like to call ‘Satans Smarties’ aka Methylprednisolone – Steroids
I’m grateful for all my wonderful friends & family that notice when i start to walk a bit ‘odd’ – actually I’ll correct that, very ‘odd’ even when i don’t notice it myself! If it wasn’t for you guys I’d still be happily walking along like I’ve lost my horse or had a very unfortunate accident in my underwear!
I’m also very grateful for all my wonderful friends/family that will have to endure me for the next week or so as I begin my course of Oral steroids! (yes, I said Oral! Who sniggered?)
I WILL be grateful if all of my wonderful friends/family could resist the temptation to bring cakes, biscuits, sweets & most importantly chocolate round if you come to visit whilst I’m resting at home. No matter how many times I beg, plead or even if I bribe you to bring me treats, please resist!
This is where I am now but I can’t walk well and definitely show the pain!
I’m quiet because it hurts. Everywhere hurts so much, it’s a pain like no other and nothing stops it completely.
My mood is the lowest it has been in a long time, it’s expected when I’m struggling to manage my pain.
Normally I would be using exercise to help with my pain but I’m having to take some time off that.
I started to experience funny sensations in my feet which, over 2 weeks have crept up both of my legs.
Around the same time this happened I found my legs were getting weaker, I have now adapted my walking ‘gait’ to suit how my legs feel. My feet are now wider apart for stability & my legs although weak are also a lot like I imagine wooden legs to be, stiff!
So after speaking with my Neurological Physiotherapist I have been advised not to exercise at the gym & no pilates classes for a while.
It’s time to give my body a rest & not make it harder for it to recover. It seems more & more likely that this is a relapse!
Like my Big Sistaaah of the MegaSpecial variety says: just when we get our lives back on track our MS flares up & reminds us it’s still there!
The ‘Foot ups’
I have to wear my ‘foot ups’ full time now as well, even in doors! They help me to lift my toes when I walk, this problem that I am having is called ‘Dropped foot’
Foot drop
Foot drop, or dropped foot, is a symptom experienced by some people with multiple sclerosis. It is caused by weakness in the ankle that means the foot drags along the ground or hangs down when walking. People with MS with foot drop are more vulnerable to tripping and falling. Walking also uses more energy and people may alter their gait to compensate, commonly lifting their leg higher.
Foot drop can be treated using functional electrical stimulation (FES). This uses small electrical charges to force the foot into a more natural position for walking. An ankle splint (orthosis) can also be used to hold the foot in a rigid position.
These are the days that are the longest! I can’t exercise, blogging is extremely hard as I’m lacking concentration & can’t do my art without falling asleep!
It’s a good job my artwork is digital otherwise I’d be waking up with paint all over my face! Instead I just wake up with ‘qwerty’ across my forehead!
I’m the blogger that can’t write, the artist that can’t create & the Pilates advocate that can’t practice.
*It has taken me literally all day to do this short blog!*
This is the week I’m going to make all the difference!
Remember it’s not ‘why me’ it’s ‘TRY ME!’
My alarm is set for gym o’clock! #thisgirlcan
Best thing I’ve ever done and believe me it still isn’t easy! I make myself look at me in a mirror 3 times a week! Why? Because I love pilates!
This is so true!…
Had enough of what I saw in that mirror!
No stopping me now until I like what I see again!
#ishapeme
If you can’t stop thinking about it, don’t stop reaching for it and I don’t mean the biscuit tin! 😂
I haven’t posted anything on my blog for a while, for those that follow it I am not giving in with it.
I am having a little confidence knock which I believe to be a part of my anxiety/depression & my MS.
It is becoming increasingly harder for me to cope with a lot of technology and so I am trying to have a cut back & a ‘low tech’ time!
This is proof that even us happy, cheery people aren’t always what they seem on the outside!
Another plug from Anna, MS-UK’s fundraising administrator.
She also mentions Shelley’s family fun day that was held at the Weavers Arms, Fillongley last weekend. I shall be sharing picture’s from this wonderful day very soon!
Happy funtastic Friday peeps! This is where it begins!
TODAY
•Back to basics Pilates class with Kate King = Love!
•Collecting MegaSpecial Sistaaah Sarah Hickman & nephew Lewis from train station = More love
•Rugby World Cup starts = Happy
•England v Fiji = Adrenalin
TOMORROW
•Shelley’s family fun day at The Weavers Arms, Fillongley in aid of MS-UK = FUN
•Me in the stocks at the event = Arghhhh
•A group of MegaSpecials (MSrs) all meeting together at event = Amazing & dream come true!
•Adam’s 35th birthday party in evening = Shattered me, Sare & Sista Rosemary plus more fun!
“Those that have walked through the fire, leave sparks of light everywhere they go”
Four years ago tonight Debbie & I organised a kick ass event ‘The Firewalk’ where we united 20+ people together to walk the burning embers of the fire path!
This is where the fundraising addiction began! This is where I stuck my tongue out to MS & showed it who’s boss! More importantly this is where we raised £4k+ for @MSTrust