Medicated, showered & ready for life by 9am!
Melting, dripping, generally fcked & sitting in front of the noisiest fan by 10am!
Yey! Bring on the day! Just don’t expect much from me today!
Category: Constraints of my MS
Heata maker me wanna sleepa
Soooooo sleepy!
I find it so odd how some people’s MS likes dry heat, helping with their pain levels & then there’s some whom like me, it makes their pain worse!
Humidity has to be the worst for all MS’rs! I’ve never met an MSr who likes humidity!
For too long i haven’t been able to visit my friend @emilytexasbaran in her (was then) new home in Texas because of the humidity there!
Now she has moved to Pittsburgh, Pennsylvania I’m going to have to start saving hard for flight tickets! #notsohumidthere
MeSsy days
My post from earlier today showing the world of Facebook how heat effects me
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I apologise in advance if you see me or talk to me today, i have my coolest clothes on therefore look like a sack, my hair is a mess, can’t be bothered with make up and I’m just generally slow!
This is what we refer to as a MeSsy day! 😜
Oh yes you f*cking can!
Don’t I know it!
I can get up!
I can get ready!
I can get to a class!
I CAN DO BODY BALANCE!
And whilst I can I will!
Shared via @xlouise_rourkex on Instagram! Thanks Lou!
‘Just’
’Just’ a cold!
‘Just’ sinus pain!
‘Just’ a sore throat!
‘Just’ a headache!
‘Just’ a slight temperature!
‘JUST’ is ‘JUST’ too much for an MSr or me specifically to much to function!
I thought i was ‘just’ the temperature yesterday (over 18°c is ‘just’ too much for my MS to handle!)
Turns out it wasn’t ‘just’ the temperature after all! It was this cold as well, hidden underneath how tired I was feeling!
Exercise classes cancelled, body resting, fluid intake increased & Ultra chloraseptic anaesthetic throat spray to hand!
I’ll soon be back on it! For now, rest rest rest!
Too tired to function
Just too tired for anything today!
Thinking, blinking, talking , walking, its all too much!
Too tired for contact lenses, too tired for makeup & too tired for a filter!
This is how heat affects my MS! Its 19°c and I’m having trouble with everything cognitive!
Love your own life!
Stop expecting doors to open for you, not every door is automatic! If you want something, go and get it. Life is for living, right now! Stop waiting! Go and do that one thing you have always wanted to do! Love your own life!
Post Tysabri
My ‘after’ photo! ‘After’ my visit to the hospital for my monthly MS medication top up!
and ‘After’ sleeping the ‘after’noon away, because it really is extremely tiring for me during my medication infusion (basically sitting with a drip next to me with the medication being pumped straight into a vein!)
Give me a couple of days & I’ll be back to me’ 😊😜
*Taken on my iPhone, no filter, no makeup! Just me!*
Passion, compassion, humour & style
Had a lovely morning today with a spot of hot sweaty Pilates! Might seem odd to some but that statement makes me feel so proud, being able to push myself to exercise in the heat & humidity without any air conditioning!
For anyone that isn’t familiar with heat/humidity & the effects on MSrs: It can & does (for me) bring on all of my MS symptoms I have experienced to date, normally tenfold!
I’ve finally found a way to manage this & continue to exercise.
Get on a Power Plate to help ease your pain!
When your in too much pain and all you want to do is exercise what do you do?
Get on a power plate of course! This machine vibrates at different frequencies chosen by the user and different time settings as well!
I use it to help tone my muscles, aid my balance but mainly to help with my chronic pain from my MS!
Yes it helps, just enough for me to be able to do exercise classes! It’s like thousands of tiny hands massaging my muscles! Ah, bliss!
Try it! You’ll never look back!
Living life the MegaSpecial way! 