Tag: Temperature

The cold really does hurt!

You know, when people come to my home & make a big fuss about how warm it is it makes me cross! I don’t choose to have high heating bills! I don’t relish the thought of the pain that I get when the cold hits my body! It’s like someone wrapping me in barbed wire!
So please, before you complain about that warmth of Fugly Manor, think!
If I come to visit you in your home over the festive period and I leave my coat, hat, scarf & gloves on, it’s nothing personal. I just can’t afford to let my body get cold!
Fact is, if you come to my home, at times you’ll see me wearing my hat indoors! 9 times out of 10 you’ll see me wearing my scarf!
I have MS and I am constantly in pain. I manage my pain in many different ways, one of them being ‘not getting cold’

*rant over*


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Brrrrr! It’s a little chilly!

If there’s one thing I can guarantee with my MS, it hates the slightest change in temperature! Anything between 18.5°C & 20.5°C is fine but lower or gawd forbid higher then there’s trouble!

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Me (right) and my MegaSpecial Sistaaah Sare (left) in Cyprys

2 years ago I went to visit my Mum in Cyprus with my MegaSpecial Sistaaah Sarah (from another mista, aka my best friend!) Her MS just adores dry heat and my is it hot in Cyprus! Unfortunately I spent most of the holiday in so much pain! Luckily I had my Mummy and DdyPaul looking after me whilst my MegaSpecial Sistaaah Sare was keeping me busy with laughter!
Despite the pain I still had a wonderful holiday!

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On the other scale is days like today when the temperature really starts to plummet and winter sets in! Nights like this when I have to increase my ‘Pregabalin’ (nerve pain meds) to help me with my pain through the night!
I’m not sure which is the worst? The pain in the winter when my Spasticity in my legs, arms and hands is worse or the pain in the Summer when my MS Fatigue is worse!


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