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Tag: #multiplesclerosis
This is who I am & I’m trying my dammed hardest!
#blog — It’s a better day! — #MS #positivevibes #strongerthanMS
It’s a better day!
Thumbs up from eye hospital & discharged! Booyahhh!
Just gotta have my normal vision check next week at normal opticians, possible new prescription for right eye which is the one that I’ve had Optic Neuritis (inflammation to the optic nerve) 3x according to their computers.
Ophthalmologist told me again my vision will never get better in my Right eye, I will always have a loss of contrast in it and would I like some IV (intravenous) steroids? Yes u read that right!!!
NO THANKYOU!
Oh and to the lady that jumped the car park pay machine que, was it really worth it? I mean, how much quicker did it get you? Well it didn’t did it, the rotating door made sure of that for you when u tried to exit the building! Whoops!
Happy Friday!
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Be inspired but not proud — #pilates #pilates4ms #pilateslovers #thisgirlcan #ishapeme #pain #chronicpain #ms #multiplesclerosis #inspiration #proud
And yet somehow I still keep going! #MS #mspain #nervepain #nevergivein #thisgirlcan #ishapeme #megaspecialme #MegaSpecial #multiplesclerosis #inspiration
“Would you try Marijuana gum for Multiple Sclerosis?” #miniblog #clickthelink #maijuana #pain #multiplesclerosis #ms
“Would you try Marijuana gum for Multiple Sclerosis?”
If it helps me with this continuous pain I am in, love I’ll try anything!
Looking at the page where I found this, every single persons answer was YES!
This link explains it all ⬇⬇⬇⬇⬇
http://healthmojo.org/2016/01/30/would-you-try-marijuana-gum-for-multiple-sclerosis/
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Stick your neck out! #miniblog #thisgirlcan #MS #multiplesclerosis #positivevibes #strongerthanMS #MegaSpecial
I love this!
“Behold the Turtle.
He makes progress only when he sticks his neck out.”
It sums me up completely!
Today I stuck my neck out further than the local sports centre or even my town centre!
Don’t get too excited, I didn’t go that far! Only a 25 minute drive to meet my first Pilates instructor Kate King for lunch!
It’s amazing what fun, laughter and happiness you miss if you keep shying away from doing something different!
Why do I shy away? Because I fear the unknown when I am by myself!
The journey there was easy, the food was delicious, the company was excellent! Where was the problem?!
Okay I had a few MegaSpecial (MSy) moments! Forgetting my cutlery for one! Overheating because I was sat next to a red hot radiator! Off came a layer of clothing, extra ice for my drink that my friend very gracefully decanted into my drink, thanks Kate 😂 Cooled me down nicely! Especially when I missed my mouth and managed to throw it down myself!
If there where any problems they were soon averted! Simples!
It’s been another great day!
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Call me crazy but I love suffering the day after a workout
I’m back!
Tuesday was my first day back to the workout I love so much, the one I am most passionate about, Pilates*
*Pilates aims to strengthen the body in an even way, with particular emphasis on core strength to improve general fitness and wellbeing.
6 weeks is a long time!
It has been 6 weeks since I noticed my legs were much weaker than normal, since I went numb from my torso down to my feet, since my balance disappeared and I started walking with my feet wider apart making it a little easier to stay upright.
Steroids
It has been 4 weeks since I saw my GP and was prescribed Steroids for a possible relapse!
The neurologist that I have no faith in!
It has been 3 weeks since I had an appointment with the Neurologist that was so rude to me and made me cry! The Neurologist that told me I’ll be feeling better in the spring, that I don’t have Drop Foot even though my Neuro Physiotherapist referred me to be assessed for FES (Functional electrical stimulation *FES* is a treatment that uses the application of small electrical charges to improve mobility. It is particularly used as a treatment for foot drop.) He told me I don’t need the ‘Foot-ups’ or also known as ‘ankle splints’ that my Neuro Physio gave me. I have been told to use these on both legs all the time to help with my ‘drop foot’, because if I don’t I trip and fall! Yeah, I’m to throw those in the bin! And he said I don’t need the 2 crutches I was using that day (because the steroids I was taking make me feel weak!) His reply was that steroids don’t make you weak they make you strong and that is why athletes take them!
Now I understand that not everyone will know this but, from experience of taking steroids and understanding them in great detail I am aware that there are different types of ‘steroids’ and they are used for different things!
- Corticosteroids – a class of drugs used to treat relapses in Multiple Sclerosis and many other conditions
- Anabolic steroids – abused by some athletes and others to enhance performance.
Anabolic steroids are synthetic substances related to the male sex hormones (androgens). They promote growth of skeletal muscle (anabolic effect) and the development of male sexual characteristics (androgenic effects).
It doesn’t take a degree to work out which ones are taken by athletes to make them perform better!
Looking at the huge list of side effects that come with Corticosteroids (the type of steroids I was prescribed by my GP) Methylprednisolone in particular, you will notice it states that Muscle weakness is one of them!
All that information on Steroids is found here What is the difference between Corticosteroids and Anabolic steroids?
Relapse or flare up?
I was told that I didn’t have a relapse which is fantastic news! If I had then they would have taken me off my monthly drug ‘Tysabri’ that helps to stop relapses. I’m so grateful that my MS team are happy for me to stay on Tysabri! I’ve been on it for 3 years now and in that time this last ‘flare up’ has been the closest I’ve felt to relapsing. Before Tysabri I was relapsing every month so I’d rather stay on it!
Back to my workout
There’s always a first for everything! For the first time I actually gave myself time to recover from my flare up, I didn’t go to a Pilates class until I felt completely ready! I didn’t think it would be as long as six weeks though! Another first is that I am taking it steady as well, I’m not going to over do it because my body isn’t what it used to be. It’s the only one I have and I need to take care of it!
Tuesday was my first day back to a Pilates class, it was so much harder than I remember which is proof that I do need to take it steady. It was amazing and yet frustrating at the same time. One thing that isn’t a first for me is ‘beating my self up’ I get so annoyed with myself when I can’t do all the stretches properly. The new Pilates instructor Lisa Perry kept telling me how well I was doing. I took the compliment and had a little chat with myself, I have nothing to prove to anyone, not even myself! For someone of my limited mobility I’m doing pretty amazing! That feeling after when my muscles had woken up was brilliant. Lisa’s classes are such good fun. The stretches she teaches are great, I’m sure she adds in a few Yoga posses which are hard but feel incredible! I’d like to learn Yoga but definitely one thing at a time!
Yesterday was my second time back at Pilates, a different type of class with Hannah Bailey. Fantastic! Hannah’s energy is amazing, she puts every ounce of it into her classes and really pushes you to reach your ultimate! Her classes are fast, she qualified to teach PiYo* earlier this year, I’m sure she is throwing in a few PiYo exercises into the Pilates class. If she is then I’m up for it but I must take it steady!
*PiYo combines the muscle-sculpting, core-firming benefits of Pilates with the strength and flexibility advantages of yoga. Piyo cranks up the speed to deliver a true fat-burning, low-impact workout that leaves your body looking long, lean, and incredibly defined.

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The blogger that can’t write, the artist that can’t create & the Pilates advocate that can’t practice
This is where I am now but I can’t walk well and definitely show the pain!
I’m quiet because it hurts. Everywhere hurts so much, it’s a pain like no other and nothing stops it completely.
My mood is the lowest it has been in a long time, it’s expected when I’m struggling to manage my pain.
Normally I would be using exercise to help with my pain but I’m having to take some time off that.
I started to experience funny sensations in my feet which, over 2 weeks have crept up both of my legs.
Around the same time this happened I found my legs were getting weaker, I have now adapted my walking ‘gait’ to suit how my legs feel. My feet are now wider apart for stability & my legs although weak are also a lot like I imagine wooden legs to be, stiff!
So after speaking with my Neurological Physiotherapist I have been advised not to exercise at the gym & no pilates classes for a while.
It’s time to give my body a rest & not make it harder for it to recover. It seems more & more likely that this is a relapse!
Like my Big Sistaaah of the MegaSpecial variety says: just when we get our lives back on track our MS flares up & reminds us it’s still there!

I have to wear my ‘foot ups’ full time now as well, even in doors! They help me to lift my toes when I walk, this problem that I am having is called ‘Dropped foot’
Foot drop
Foot drop, or dropped foot, is a symptom experienced by some people with multiple sclerosis. It is caused by weakness in the ankle that means the foot drags along the ground or hangs down when walking. People with MS with foot drop are more vulnerable to tripping and falling. Walking also uses more energy and people may alter their gait to compensate, commonly lifting their leg higher.
Foot drop can be treated using functional electrical stimulation (FES). This uses small electrical charges to force the foot into a more natural position for walking. An ankle splint (orthosis) can also be used to hold the foot in a rigid position.
These are the days that are the longest! I can’t exercise, blogging is extremely hard as I’m lacking concentration & can’t do my art without falling asleep!
It’s a good job my artwork is digital otherwise I’d be waking up with paint all over my face! Instead I just wake up with ‘qwerty’ across my forehead!
I’m the blogger that can’t write, the artist that can’t create & the Pilates advocate that can’t practice.
*It has taken me literally all day to do this short blog!*
Time to get back on it! #SerousFaceIsOn
This is the week I’m going to make all the difference!
Remember it’s not ‘why me’ it’s ‘TRY ME!’
My alarm is set for gym o’clock! #thisgirlcan
Best thing I’ve ever done and believe me it still isn’t easy! I make myself look at me in a mirror 3 times a week! Why? Because I love pilates!
This is so true!…
Had enough of what I saw in that mirror!
No stopping me now until I like what I see again!
#ishapeme
If you can’t stop thinking about it, don’t stop reaching for it and I don’t mean the biscuit tin! 😂
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