Tag: multiple sclerosis

Tysabri (natalizumab)

​Monday already and the alarm is set to wake me up in less than five hours! 

Its been four weeks since my last infusion so that can only mean one thing… Time for some more of the good stuff when daylight breaks! 
This is my super juice! My drug not so much of choice because, come on, really who chooses to pump chemicals like this through their veins without getting a ‘high’ afterwards! 

Actually, thinking about it, yes, I choose! I choose this over monthly relapses, over loosing my vision, over being wheelchair bound! 

And there is a high, eventually, after the initial feeling like crap! The high is in the knowing that I have been relapse free and steroid free for a whole year now! Knowing that the relapse I know i had last year was minimal in comparison to before I was put on to Tysabri! 
So heres to you NHS! I salute you for the service you provide for me & my MS family and anyone else that calls upon you! 

Eternally grateful, me!

Image shared via pintetest

MS, you took my speech!?

​Cog fog! (Cognitive function)

Speech! Say no more! 

Major frustration when your constantly asked to repeat yourself because you having a massive sensory overload! 

Feel for my Mum, must be upsetting to have to keep asking all the time! 

She’s not used to hearing me like this as she lives in a different country to me! 😥

Damn you MS! Give me back my speech! 

World mental health day

World mental health day doesn’t just stop at the title, mental health can be an underlying issue to other illnesses. 

I know for myself this is definitely the case. 

MS, fibromyalgia and a whole lot more invisible illnesses for obvious reasons also can come with mental health issues. Something I was frightened to talk about when first started on antidepressants but it shouldn’t be like that! 

I’m happy to say I’m no longer frightened to talk about it!

I don’t do ‘wallowing in it’

​Not often you’ll see this but, this is me….
• To the left, bare naked face, zero makeup, feeling rough as a bag of old nails, looking it too & out in public! When you see me out like this you’ll know I’m not feeling my best
• To the right, had a word with myself… “Suck it up buttercup” public face on, fundraising top on, standing proud! Ready to face the world with my scooter to support my amazing friend Sharon Jackson raise money for MS-UK! 
Although I am much luckier than others, today I feel like MS is kicking me! Don’t have much vavavoom in me! 
Still going out to support Sharon though because that’s me, taken my medication, happy face on, i don’t do wallowing in it! 

Sponsor Sharon and Myles! (click here)

Sharon’s #marathon for @MSUK6 #ms

​Have you read my friend Sharon Jackson’s story about why she is running her first marathon? 
Sharon is such an I incredible lady! She has inspired me since the day I met her! 
I’m so proud to call this wonder woman my friend and to say that she is raising all this money for a charity so close to my heart is just amazing! Thank you! 
Please have a read & if you haven’t already, there’s still time to sponsor her! 

Click here 👇

Marathon Myles 4MSUK

Busy week!

​So heres what happened this morning, yes I know, its only 9am! 
Ok, so, I got myself ready for the gym. Thanks to my gawd damn awful chronic pain and having to increase my medication, I have put too much weight on & I’m incredibly unhappy! 

I did at least find out that it is the medication that has caused the gain! 

So I’ve decided to start going back to the gym & really give myself that push I obviously need! 
Anywayyyyy! I arrived at the gym & was just starting to put my disabled parking badge in the window when my phone made a noise (I never know what sound means what!) 

As I looked at my phone it reminded me of my physiotherapy appointment at the hospital! 

It also reminded me of my Chiropody appointment this afternoon!
OH MAAAAN! 
Its appears to be a week of medical appointments! 

• Had my Tysabri yesterday (monthly MS meds) 

• Physio today

• Chiropody today

• Blood test today

• Yearly MS review tomorrow with Neurologist!
The fun just never stops! 

 

​Monday motivation!

​Monday motivation! 

•Don’t ever say you can’t! 

•Don’t ever think MS means the end of sport!

•Don’t ever stop reaching for your dreams! 
If you want it as much as you say you do, make it happen! 

All these paralympians did AND they have MS!

SHE DID IT! Stephanie Millward YOUR OUR GOLDEN GIRL! 

​Proud friend moment!
SHE DID IT! Stephanie Millward YOUR OUR GOLDEN GIRL! 
Can’t wait to catch up with u when you get home! 
Gold at Rio Paralympics! 
18 years diagnosed with MS, she never stopped believing, put everything into it & she’s gone and done it! 
I’m so proud!
🏅🏅🏅🏅🏅🏅🏅🏅🏅🏅🏅🏅🏅🏅🏅
Proving MS doesn’t stop dreams coming true! 💞

I’m so proud to call Stephanie Millward an amazing friend!

Stephanie Millward S8 100m freestyle final at Rio Paralympics!

Lets all cheer our amazing girlie on as she proves MS is by far the end of our dreams! 

Not only does she inspire me Every. Single. Day! But Stephy is also proof that dreams do come true!

Live every day as if its your last & never stop dreaming! 

Make sure your teleboxes are on C4 at 23:36 UK time!
Eiiii! Can’t wait! Go Steph Go! You got this girl! 🏊💨💨💨🏅