When ur MS isn’t behaving and you have very little concentration!
Yeah… so, this happened when I was creating today!
Chopping veg to go in slow cooker when I saw this sad face! 😥🔪🍆🔪🍅🔪🌶🔪😥
Vix – 1 MS – 0
Food is cooking nicely, managed to get myself another healthy lunch as well!
I’d call that a win! 👏
I’m not one to enjoy sitting around doing nothing!
When you have MS and an infection, doing nothing really is the best we can do!
What I really want to do though is go to my Yoga class as I normally do with Louise my Yoga teacher!
”I’m not one to set myself goals often as I don’t want to set myself up for failure!”
BUT… I’ve been thinking about this a lot recently. Maybe where I’m going wrong is the angle I’m looking at it from?
If you look at the comment, I use a very powerful, negative word… ‘Failure’
Its as though I’m expecting to fail which is never a nice thing!
Surely if I am more positive about it by adding positive words, thus making the comment positive at least I’ll have made a good start to succeeding!
So, with that in mind…
HAPPY MONDAY TO YOU ALL! Here’s to any goals that you have set yourself for the week!
I’ve put my fitbit back on today & I’m going to be starting with one of the most basic, fundamental things to achieve this week… Making sure I drink enough water!
Another referral due to my MS!
Its crazy how much of ‘you’ MS affects!
My voice hasn’t sounded the same for around 4 years!
Nothing major, I just constantly sound as though I have a cold!
The most annoying thing now is the amount of times I get asked to repeat myself!
I can’t tell what volume I should be using so can occasionally speak very loud!
The worst is when my voice becomes a whisper and I slurr my words!
All because MS has affected my swallow!
When I used to get asked if my swallow was okay at routine check ups, I always thought the consultant meant ‘do I choke often’
Answer: “occasionally”
I never linked the question to the problems I have with my voice! And yet it makes total sense!
Doh!!! 👅😝
Having a pretty shitty day today tbh, so fatigued its unreal! Every day lately seems like I have to push myself harder, just to move my body and that’s without actually thinking about what I want my body to do! That takes even more effort! Long gone are those days that I can do things without thinking!
Right now, MS sucks but guess what, I was looking through my pictures on my phone, to find something that reflects my current mood…
That’s when I saw this photo and everything changed!
This photo was taken last Sunday when I yes me, drove the furthest I have ever driven (90 miles to South Yorkshire) to see my MS sister & the rest of our faaaamily! Of course I had my DebbieRahRah as SatDeb & navigator. What makes me feel more proud, was that I drove without feeling nervous!
This beautiful lady is my Kindred Spirit, she has helped me through my MS more than she’ll take credit for! I only need to see her smiley face and my mood lifts!
Thank you Sarah Hickman for making my day cheerier!
(And I know exactly what she’s saying when she reads this… Either “oh behave” or “stoppppp”)
🙊😂💋💖💞
This is an emotional, heart string pulling post but is such a good reminder for me and an excellent peace of advice for everyone!…
No matter what you are going through right now, remember, you are never alone!
Find yourself people that are in the same situation as you! This post explains how I did just that and by doing it I realised I wasn’t alone & by being with these amazing people I found that I could feel normal! I was no longer the odd one out!
I found people that spoke the same MeSsy language as me!
Find yourself a person or find your people!
I found mine!
This picture popped up on my facebook memories! Gulp! Deep breath!
Facebook is great for helping me remember past events, even when they have a massive effect on the current day! This photo was taken 4 years ago at my 2nd Ladies with Lesions meet.
How sad that a lady in this picture is no longer with us 😐
😥 Tanya (in the middle at the back) founder member of the group for women with MS ‘Ladies with Lesions’
Being a member of this group brought me my incredible friends & showed me I wasn’t the only person with MS, it’s a very lonely time when u find out you have a life long illness (disease)
I honestly believe that being a member of this group (LWL) helped to shape the person I am today!
For this I will be forever thankful to Tanya! Forever missed and never forgotten! Rest in peace lovely! 😭
I may not be the strongest
I may not be the fastest
But I’ll be damned if I’m not trying my hardest!
I may not be able to go to every exercise class I book, working hard in classes tests me the next day!
Hard choice but sometimes I just have to say to myself, I’m being kinder by letting my body rest, for now!
Some people may think it’s quitting, I know different!
HAPPY MS AWARENESS WEEK!
Yesterday I had a very productive day! Managed to get out in the garden 1st thing and gave it a quick spruce around, on form in pilates and then shopping after!
I’m so on it today!
Time for a rest before body combat class later! I’m not saying I’ll do all of it but being there is better than not! Right!
Yes I have MS, yes I do all of these things to the best of my ability because by doing these things I am looking after myself!
Happy MS awareness week!
Today marks the start of MS awareness week in the UK!
I started it at the weekend though!
What an amazing day I had on Saturday! 2 hrs Fight Klub workshop! Non stop punching, kicking, squatting, bopping & fun fun fun!
I would never have believed you if you’d have told me 2 years ago that I would be doing the things I do now!
ANYTHING IS POSSIBLE! YOU JUST HAVE TO BELIEVE TO ACHIEVE!
Tysabri number 45 done!
I’m shattered & feel like a pin cushion, covered in bruises thanks to my cheeky veins!
Got me some comfort food… crumpets, sitting down in my comfies ready to watch the next installment of the Rocky anthology with my boo!
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