Another course of antibiotics!
The joys of an MSr with a lazy bladder! 😕
So, on top of my head cold and chesty cough, I now have my third bladder infection in as many months! I seriously need some probiotics
The blog i started a month ago about this part of my ms is growing!
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5:45am and I’ve already been fully awake for an hour and half, to say I #slept much last night would be an #overstatement!
#Coughing, #spluttering, #sneezing, #backfiring, it was all going on! At 2am I thought it was 5am! 4am Deb asked if I wanted a #drink, I declined as I had already decided to move my body to the lounge! Poor Deb needs her #sleep and so I left her in #peace!
Thanks to my #MS, sleep just isn’t working so well lately! I don’t remember the last time I slept past 5am without unbroken sleep, and many trips to the #toilet! More of that coming up in my latest #blog!
If its not my #MSbladder playing up, its a #headcold & a nasty one at that!
#Grittyeyes, #burningfizzingnose, #leakingnose, #razorblades in my throat, #tonsils that feel the size of #golfballs and my #chest is on fire every time I attempt to #cough!
I remember when a #cold was just a cold but now they take a whole new meaning and deserve a name far worse!
Its understandable why they are so much worse for us when our (MSrs) #immunesystem #attacks itself on a daily basis! Its like it has far better things to do than fight off a pesky cold, like attack the protective #coating that covers our #nervefibres, causing signals sent from your #brain through our #bodies to be incorrect!
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”You are something magical”
Remembering this today, especially after receiving 2 letters from my neurologist via my GP
The letters are from my latest routine #appointment with #neuro for my #ms review which was back in September.
The letters speak briefly about my MS but mainly about my weight gain
I know this is part of a medical practitioners job but I could have cried whilst reading it!
He says about how we discussed my increase in antidepressant which I also use for pain relief and the possibility of this being a reason for the rapid increase in weight.
Well Mr hoity toity, I’m doing the best I can right now & I’m happy with that!
Looking forward to my lovely Yoga teachers return from her jollies so we can make a start on me being one of her health coach case studies.
I’m not one to enjoy sitting around doing nothing!
When you have MS and an infection, doing nothing really is the best we can do!
What I really want to do though is go to my Yoga class as I normally do with Louise my Yoga teacher!
1-1 Yoga!
Today I will try to remember that where ever I get to in my practice is ok!
I will remember that not only have I completely stopped one of my MS nerve pain meds but I have also halved the main one as well!
Today I will remember not to be hard on myself because this is going to hurt & there’s a reason for it!
I have to overcome the pain and not let it overcome me! I am in charge of own thoughts!
It is with my mind and the breath alone that will get me through this!
As with all my blogs please feel free to share using the options at the end of this blog.
Any comments are also always welcome!
Thanks, Vix
Monday already and the alarm is set to wake me up in less than five hours!
Its been four weeks since my last infusion so that can only mean one thing… Time for some more of the good stuff when daylight breaks!
This is my super juice! My drug not so much of choice because, come on, really who chooses to pump chemicals like this through their veins without getting a ‘high’ afterwards!
Actually, thinking about it, yes, I choose! I choose this over monthly relapses, over loosing my vision, over being wheelchair bound!
And there is a high, eventually, after the initial feeling like crap! The high is in the knowing that I have been relapse free and steroid free for a whole year now! Knowing that the relapse I know i had last year was minimal in comparison to before I was put on to Tysabri!
So heres to you NHS! I salute you for the service you provide for me & my MS family and anyone else that calls upon you!
Eternally grateful, me!
Cog fog! (Cognitive function)
Speech! Say no more!
Major frustration when your constantly asked to repeat yourself because you having a massive sensory overload!
Feel for my Mum, must be upsetting to have to keep asking all the time!
She’s not used to hearing me like this as she lives in a different country to me! 😥
Damn you MS! Give me back my speech!
So heres what happened this morning, yes I know, its only 9am!
Ok, so, I got myself ready for the gym. Thanks to my gawd damn awful chronic pain and having to increase my medication, I have put too much weight on & I’m incredibly unhappy!
I did at least find out that it is the medication that has caused the gain!
So I’ve decided to start going back to the gym & really give myself that push I obviously need!
Anywayyyyy! I arrived at the gym & was just starting to put my disabled parking badge in the window when my phone made a noise (I never know what sound means what!)
As I looked at my phone it reminded me of my physiotherapy appointment at the hospital!
It also reminded me of my Chiropody appointment this afternoon!
OH MAAAAN!
Its appears to be a week of medical appointments!
• Had my Tysabri yesterday (monthly MS meds)
• Physio today
• Chiropody today
• Blood test today
• Yearly MS review tomorrow with Neurologist!
The fun just never stops!
Monday motivation!
•Don’t ever say you can’t!
•Don’t ever think MS means the end of sport!
•Don’t ever stop reaching for your dreams!
If you want it as much as you say you do, make it happen!
All these paralympians did AND they have MS!
Living life the MegaSpecial way! 