βSo unbelievably proud of myself even though my daddy will tell me off, my error forgetting my prescription for my fatigue meds on Monday, therefore I have to fix it, right!?
Drove myself to the hospital to cash in my prescription for some drugs!
Oh yeah and I’m makeup-less as I’m having an MRI later (different hospital) and I just couldn’t be bothered!
My ‘after’ photo! ‘After’ my visit to the hospital for my monthly MS medication top up!
and ‘After’ sleeping the ‘after’noon away, because it really is extremely tiring for me during my medication infusion (basically sitting with a drip next to me with the medication being pumped straight into a vein!)
Give me a couple of days & I’ll be back to me’ ππ
*Taken on my iPhone, no filter, no makeup! Just me!*
I’ve just taken all my morning medication instead of my night ones! Ok, so my excuse… It’s morning!
Not the most clever of things to do when my morning meds contain a very strong tablet that I take for MS fatigue! This tablet is also taken by people that have narcolepsy, a sleeping illness where sufferers literally cannot stay awake!
Yeah! I took one of those when I should be sleeping! Oh joy!
Only I could do it! I want to sleep! It doesn’t hurt when I’m asleep
π³π
Well what a wonderful day my Birthday has been!
I’ve been completely spoilt as always by DebbieRahRah!
Had over 100 lovely Birthday messages on facebook alone! – thank you!
Been given so many beautiful cards & gifts – thank you again!
I got to spend the morning with my Mummy, DebbieRahRah & the kids!
Then it was lunch with my Daddy, Mummy Ju, MegaSpecial Sistaaah Sare from Yorkshire land, her hubby AndyRoo & their Son Lewis and of course not forgetting DebbieRahRah (can’t function without her!)
Back to ours for giggles with DebbieRahRah, Sare, AndyRoo, Lewis, Mummy & my brother.
WhatsApp call with my SistaBlista SkEmily in Texas because Skype wouldn’t work! Good job she has a brain & knows how to use it and press call on WhatsApp because I was starting to go into melt down mode when Skype wouldn’t work!
Then a quick change, apply more makeup & off out again for meal number 2! (I know 😱)
Like i say, an amazing day!
I only wish I could say that my MS didn’t get in the way but to speak the truth my pain has been so much worse than any other day! Because it’s been so full on & busy I didn’t have time to think about my medication other than thinking ‘all I can have is paracetamol because of allergies & normal MS meds’
It wasn’t until I went to get my night time meds that I realised I hadn’t taken ANY of my medication in the morning!
*WARNING – I may be slower than the norm tomorrow*
megaspecial.co.uk
This technology would be great for when I have my medication every month for my MS!
#ms #multiplesclerosis #spms #strongerthanMS #MegaSpecial #medication #tysabri #veins
megaspecial.co.uk
Well, my wifey fell asleep on the sofa at 8:15pm! I had to sort the kids (🐕🐕) believe me, that’s a mission! Make sure said wife took her meds after I found her catching flies slumped on one of the tub chairs in the kithen! Help her out of her onesie, never an easy mission!
Go round the bungalow making sure it’s all locked up, go around once more… u never know!
Sort myself out, meds, pjs etc. Check the doors where locked, I’d forgotten I’d already done it twice!
In bed before 9pm… BOOM! Rock, roll & wide awake!
Now who’s the one with MS! 😜
megaspecial.co.uk
Can I ask a massive favour, please can you sign this petition and share it with others to.
This medication is NOT available in England yet but if it was it would help me and a lot of my friends that have MS!
https://petition.parliament.uk/petitions/111992
megaspecial.co.uk
Living life the MegaSpecial way! 