#thisgirlcan ‘Body Balance with Kate King’

Tomorrow I am booked in for ‘Body Balance’ a new (to me) exercise class where the only person I know is the instructor who just happens to also be my pilates guru ‘Kate’

Kate is very keen for me to go to this class which is lovely & also thinks I will love it as it’s challenging! I do love a challenge!

She’s promised she’ll look after me but I still can’t help but be nervous! Like really nervous! I can feel my heart pounding in my chest just thinking about it!

Ooooo! My MegaSpecial alter ego thinks she’s going to win by bringing an anxiety attack on!

Ha! Think again MS! I got this! I control u not u me! U came along for this ride! U didn’t ask me for permission to share my life so deal with it!

I’m doing it! Kate will be there! I’ll be ok!
I got this! This girl can! This girl will! THIS GIRL DOES!

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Back ‘on it like a car bonnet’

Back to it today after a week recovering from my back procedure-surgery-thingymebob

Looking forward to it! Just one thing, it’s a different instructor & my MS Anxiety doesn’t like change!

Bring it on! One more thing for me to overcome! I can do this! Sticking my tongue out to the alter ego ‘MegaSpecial’ in me! She will not win! 👅

#strongerthanMS #MegaSpecial #megaspecialinme

A MegaSpecial weekend to remember

I must say, it’s been a MegaSpecial kinda weekend & this week has started off just as good!
Full of awesome peapods & many giggles!

It started at 17:30 on Friday 8th May 2015 with the takeover of a twitter account belonging to an MS charity group called Shift.MS

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Every weekend they let a member of the MS community take over their twitter account & this weekend was my turn!
I’d been really looking forward to it since I was first asked at the beginning of the year!

It took me a while to find the right subject to get Tweeps engaged but once I did the response was just brilliant!
I hear u asking what was the top subject?

Exercise & fatigue!

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It’s amazing to see the reaction I get when I tell people how much I enjoy working out in the gym, attending pilates classes & even the occasional aqua aerobics!

I was one of those type’s of people that didn’t believe in myself enough to go to the gym or take part in exercise classes. Last July my neuro physiotherapist referred me onto an exercise scheme at my local gym & I’ve never looked back since!

The general chat on the @shiftms Twitter takeover was what sort of exercise people with MS do. I was also made aware that there is large amount of people that don’t agree with exercise & MS because of the amount of energy used and the problem most of us get with MS fatigue!

Very interesting chatter!
You won’t find me stopping my exercise though! It helps me manage my Chronic pain & as long as I pace myself I can generally cope with the fatigue side of it! That does tend to mean I have a lot of short naps!

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The twitter takeover finished this morning at 9am. Before I said goodbye I shared some of my inspirational sayings and left people to mull them over.

I met a lovely lady after my first Wednesday pilates class, talking with her I found out that she not only teaches the ‘forever fit’ class (for the more seasoned) Laura also teaches an MS exercise class.
When she heard that I have SPMS (Secondary Progressive Multiple Sclerosis) I exercise at the gym & I was doing pilates she was amazed!

Laura then invited me to her MS class!
She told me the dates & times but with my MeSsy brain I forgot. Luckily my pilates instructor Kate got the dates & times for me again.

That class was today! I felt really nervous about going to the class but the fact that Laura really wanted me to attend was enough of a push to get me there!

I had a lovely reception from everyone when I arrived and a great introduction from Laura.
I’ll be honest, I had thought that all the exercises would be done sitting down and so I wasn’t suprised when the class started and everyone stayed seated!
I did however think that the exercises were a little basic to start. That was until I found myself needing a drink! I suffer with dry mouth so for me to need a lot of liquid isn’t unusual!
I then found myself taking off my t-shirt revealing my exercise top underneath! Then before I knew it I needed the gym towel out of my bag!

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I asked every one in the exercise class if they are proud of themselves, they looked at me blank!
Then I pointed out to them how amazing they are for making the commitment to attend that class twice a month! It was a lot harder than I anticipated with the exercises challanging the brain as well as the body! Perfect for anyone with MS!

The instructor is wonderful! I found out that, to start off with she only taught the class whilst covering for someone else. Then ended up taking it up as her own class as it was enjoyed be everyone so much!

I shall definitely be going back to the next one in June!
Next time I shall make sure I have enough time to stop after for coffee & chats! Will be nice to get to know everyone & hear all their stories

Thank you Laura for inviting me to your class & thank you Kate for finding the times & dates out for me!

Exercise rehabilitation programmes for people with MS: is it possible to predict who will benefit?

I was referred by my physiotherapist for exercise at the gym!

‘The exercise referral plan’

Has been the best thing for pain relief!

I walk better, I’m more focused, positive & generally happier!

Multiple Sclerosis Research Update – Exercise rehabilitation programmes for people with MS: is it possible to predict who will benefit? – 15 September 2014 | MS Trust – Information, education, research and support http://www.mstrust.org.uk/research/updates/articles/update140915.jsp (Share from CM Browser)

The Exercise Referral Scheme P2

Pingles Leisure Centre ‘Everyone Active’

The Pingles simming and stadium facilities

http://www.everyoneactive.com/Centre/Pingles-Leisure-Centre/121/Home

The day had come for my first meeting with ‘Anneka’ my exercise referral fitness instructor!

It was Wednesday 9th July (I am a little late updating this part of my blog!) I was so nervous! I didn’t know what to expect! So I went to my appointment wearing clothes I thought appropriate for a gym! I had never been to a large one like this before!

I arrived before my appointment time as I always do and went to the reception desk. There always seems to be a cue when you really don’t want there to be one! Because of my issues with my back and legs I can’t stand for longer than a few minutes without being in extreme pain & feeling as though I may pass out! Seems extreme but I am telling it like it is!

Luckily the cue didn’t last to long & my wonderful pink walking stick kept me upright! I advised the person on reception my reason for being there and the reply I had back was so obvious… ‘You need to go to the gym’ Lately I seem to lack the common sense to know that’s where I would be seeing a ‘gym’ instructor! The clue is in the name right!?

I then had to ask for directions! The gentleman kindly pointed at the sign and said ‘its upstairs!

I think if the sign was flashing & in my face I still wouldn’t have seen it!

I made my way up the stairs feeling a little silly, this time I was looking at all the signs & following them correctly!

I was out of breath and my heart was pounding, surely my workout was done for the day just by climbing those stairs! Thank goodness for my walking stick and the rail that went up the stairs!  I live in a bungalow so other than having MS this is my excuse for not handling stairs well!

I walked through the doors into what felt like a cool box! I went straight to the next reception, now I was a little late! My anxiety was right at the top of the chart! I’m not good in these sort of situations and now because I had to wait in a cue in the wrong area I was late! Great!

I explained to the next gentleman my reason for being there and he was lovely! He told me Anneka was still with someone and she would be with me soon, he also asked if I would like a chair while I waited! This of course was a lovely gesture and without a second thought I politely said ‘yes please!’ whilst in the back of my mind thinking Really! Do I look that bad just from climbing the stairs! Wow! Everyone will definitely be staring at me when I start my workout!

The door opened to where Anneka was and out came two young women. I felt like I was about to be charged for some awful crime I hadn’t committed!

One woman walked away whilst the other called my name, I followed her into the tiniest room where she introduced herself as Anneka and invited me to take a seat. This is where I have to control my nervous blurting out and dry sense of humour! Instead of asking where she would like me to take it to, I just sat down!

Whilst I was in the room Anneka explained to me about the exercise referral scheme:  A 12 week course where I see her at the beginning for an induction, halfway through for a ‘checkup’  and then at the end of the course. The rest is up to me!

My physio ‘Emma’ had already explained this to me but I listened intently! She told me the price which includes visiting the gym at anytime and using the swimming pool if I wanted to! £8.50 per month for the 3 months! I was amazed! So cheap! What a great incentive! Of course when I finish the 12 weeks (3 months) the price does go up but I think I get a reduced rate if I decide to continue. This I will have to check up on!

Next she took details of my medication, my weight, measured my waist and I then had to blow in a tube so she could check my ‘peak flow’

Peak expiratory flow

From Wikipedia, the free encyclopedia
Peak expiratory flow
Peak flow meter horiz.jpg

A peak flow meter issued in the UK.

The peak expiratory flow (PEF), also called peak expiratory flow rate (PEFR) is a person’s maximum speed of expiration, as measured with a peak flow meter, a small, hand-held device used to monitor a person’s ability to breathe out air. It measures the airflow through the bronchi and thus the degree of obstruction in the airways.

Anneka imputed the results onto her laptop and then stuck extremely sticky pads to my feet and hands so she could work out my BMI

Body mass index

From Wikipedia, the free encyclopedia

A graph of body mass index as a function of body mass and body height is shown above. The dashed lines represent subdivisions within a major class. For instance the “Underweight” classification is further divided into “severe”, “moderate”, and “mild” subclasses.[1]

The body mass index (BMI), or Quetelet index, is a measure of relative weight based on an individual’s mass and height

The sticky pads also gathered other information for her, she complimented me on my water intake! Yes it even showed that!

She also asked me to take some deep breaths and try to calm down as my heart rate was extremely fast! I explained to her that it could be due to my anxiety & also climbing the stairs. At which point she was very impressed that I used the stairs rather than the lift & I was showing great enthusiasm!

My reply to that: ‘theres a lift!?’ Like I said earlier, I have no common sense to look for signs or in fact a lift when presented with stairs! You would think I would learn but I don’t! In these situations I find it better to be amused by my error than upset or annoyed!

She asked me why I was so anxious, I explained that it is a part of my MS and just the thought of going into a gym terrified me! She said that I wasn’t alone with those thoughts and that most people feel the same which I kinda expected that to be the case but it didn’t help to calm me!

She said that my anxiety was a good thing in a way because it meant my heart is constantly pumping fast but in a bad way because it was doing so for no reason, therefore it is wasted energy.

The best part of my reading was that I have more muscle than fat and I just need to wake them up! She said it is a good thing that I was very active in the past and before my legs got weaker. It means it shouldn’t take much to get reasonably fit again! Yay! Some good news!

I took a picture of the results & I’m not afraid to share them! Thats the thing with me is, if I think by doing this blog & sharing with you the start of my:

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will inspire and give incentive to others then I’ll do it! And here they are:

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Good luck if you know what it all means! I only know the bits that I need to!

Anneka then got out her diary and we planned for our next meeting, the ‘Gym induction’ So i’d worried about going into the ‘gym’ for no reason! I could now leave that until the real day!

….to be continued!

The Exercise Referral Scheme

I have to see a Neurological Physiotherapist about once a month for my Multiple Sclerosis (MS). Her name is ‘Emma’ and she is fantastic!

What is Neurophysiotherapy

We have been working on the best way to increase my energy levels because i have Chronic MS Fatigue

What is Chronic Fatigue? (MS Fatigue)

MS Fatigue is one of my many symptoms and probably one of the worst.

It can be very frustrating as many people don’t understand it because the word ‘fatigue’ is used and felt in everyday life.

http://en.wikipedia.org/wiki/Fatigue_(medical)

‘General Fatigue’ should not be confused with ‘MS Fatigue’

MS Fatigue:

Much like someone who has just hiked 20 miles up a steep hill after two days of no sleep while carrying a backpack loaded with rocks on the hottest day of the year…that is fatigue. It’s that moment when your legs can no longer hold you up and every muscles, bone, and even eyelid hurts. Then as soon as you sit down (or more like fall down) you are asleep. A tornado could blow by and you would sleep right through it.
It sounds odd but one of the best ways to gain energy is via exercise!
And so the last time I saw Emma she told me that she could do a ‘referral for exercise’
This is an exercise scheme at a local gym. A 12 week course where you see an instructor at the beginning for an induction, half way through for a ‘checkup’  and then at the end of the course.
It is at a reduced cost which I think is fantastic! This means more incentive!

I was up for it! I’m very keen on getting my fitness back to how I was pre MS or at least try to!

So the form was completed by my excellent nerophysio and I waited for a phone call!

We named it

20140626_125854_Android (2)Written for me by my Neurophysio! So I wouldn’t forget!

This was my aim!