Its all in your mind!

This is so true for so many things!
Pain, it literally is all in your head! As soon as you give in to it, that’s it, pain owns you!
Negativity, all in your head! 
We all have choices, its up to us and us alone to choose! 
Lets choose positivity!

Positivity brings so much love and joy with it! People are more attracted to it and life just gets easier! There’s so much I could say about it, a subject I’m very passionate about!
Negativity is a lonely place! 

NOT MANY THINGS TO SAY ABOUT THAT other than, what a long lonely life to live! 


Picture from Pinterest, words my own

World mental health day

World mental health day doesn’t just stop at the title, mental health can be an underlying issue to other illnesses. 

I know for myself this is definitely the case. 

MS, fibromyalgia and a whole lot more invisible illnesses for obvious reasons also can come with mental health issues. Something I was frightened to talk about when first started on antidepressants but it shouldn’t be like that! 

I’m happy to say I’m no longer frightened to talk about it!

Back ‘on it like a car bonnet’

Back to it today after a week recovering from my back procedure-surgery-thingymebob

Looking forward to it! Just one thing, it’s a different instructor & my MS Anxiety doesn’t like change!

Bring it on! One more thing for me to overcome! I can do this! Sticking my tongue out to the alter ego ‘MegaSpecial’ in me! She will not win! 👅

#strongerthanMS #MegaSpecial #megaspecialinme

Constraints of my MS

Constraints of my MS

At the moment I feel I am doing very well with the acceptance of my MS.

Unfortunately this is such an unpredictable disease which I think makes it impossible to say that I have accepted every part of it.

Not many people know a lot about MS, I know I didn’t before I was told I have it.

I’ll explain a little about my MS. I say ‘my’ MS because not one person who has it is the same as another. We are all completely unique with our MS although the symptoms that we all have can be similar.

Now I am going to talk about one certain topic here but for you to understand I will have to go into detail about other symptoms which I will explain briefly with the aid of:


Pain is only one of my symptoms!

This is probably one of the biggest things I have had to and still am learning to cope with!

Why do I have pain?


More than half of all people with multiple sclerosis will experience pain symptoms at some stage.

Pain can be defined as unpleasant sensory experiences. In MS this may encompass both ‘painful’ feelings and also altered sensations such as pins and needles, numbness, or crawling, burning feelings (known as dysaesthesia).

No two people will experience pain in the same way; it is very subjective and is best described by the person experiencing it.

Types of pain

There are two broadly recognised types of pain in MS:

Neuropathic pain

Also known as nerve pain, this is thought that this arises as a direct result of the damaged to the covering of nerves interfering with the normal transmission of information to the brain. However, the origin of most nerve pain is not fully understood. Examples of neuropathic pain include trigeminal neuralgia, an intense painful sensations in the face, and Lhermittes sign, sensations like electric shocks in the neck and spine.

Musculoskeletal pain

Also known as nociceptive pain. Nociceptors are pain receptors found throughout the body that respond to injury and inflammation. They send messages to the brain that are perceived as pain, usually in the joints or muscles. This type of pain is not directly related to MS, but may be worsened by it; for example, musculoskeletal pain can arise as the result of spasms or abnormal pressure on the muscles and joints due to changes in posture, typically in the back or hips.

Yes I take medication for it!

I’ve tried many different types of tablets, I’ve even tried holistic medicine like acupuncture which I find brilliant for relaxation but unfortunately the effect has never lasted long enough for me to use it as a regular way to self-control the pain.

So instead I have opted to continue with my cocktail of medication such as Pregabalin, Nortriptyline & Duloxetine

If you have clicked on the link for Duloxetine you will notice it is taken for depression, that’s a whole different topic which I’m sure I’ll speak about at some point!

So with my lovely cocktail of super strong neuropathic pain meds can you guess what my next biggest problem is with my MS?…..


Waking this morning to the sad news about Robin Williams has made me think more about clinical depression in MS and how little people actually know about any form of depression!

I have mixed feelings about suicide as life is so precious but knowing what  depression is like from a first hand point of view I can appreciate how hard it could be to come out of such a dark place!

I wish more people were aware of depression and that there is nothing wrong with being depressed!

When I was first made aware that I had clinical depression and it was part of my MS I was horrified! I didn’t want to except that this was another part of my MS.
I refused to except that needed more medication for another part of MY MS!

I opted for counselling and put the tablets on a ‘back burner’
I kept saying ‘I can do this on my own without more drugs’
Although counselling was extremely helpful ot came to the point where i had to rethink me situation and I decided to give the medication a go!
Along with the help from the counsellor I started to lift my head more!

This is something that i am open to talking about and will continue to do so when i get to this part of my MS life blog
‘MS, my journey and yours’

Depression | Multiple Sclerosis Society UK (Share from CM Browser)