I miss my friends

I recently wrote a post on a Facebook page, that I haven’t visited for a very long time!…

So, I used to come here a lot. A day wouldn’t go by without me posting!
So grateful to this page and every one involved for helping me through my tough times!

I had to cut out such a lot of social media because it is far to tiring for me. My fatigue is so hard to handle and social media is top of the list for making it worse!

Trouble is, I feel as though I’ve totally isolated myself because of it and by complete accident!

Going from someone who has such a lot of friends to someone that never hears from them is so hard!

This isn’t a pitty plea and I don’t even know if I should post this or not, but if I’m right, this is a safe space?

I feel so alone, in a world where there are so many people, I feel alone!
I have a beautiful wife, and carers that come every day to help me/us and I still feel alone.

I know how lucky I am, because I do see people. But if I didnt pay for them, how much contact would I have from people other than my wife who I love dearly!

Does anyone else feel like this?

26th July 2017 Oxygen Therapy #16

The intensive Oxygen therapy course I started on June 20th 2017 is finally finished! 
I attended my last intensive session today & I’m so proud of myself! 16 sessions of oxygen, driving myself there and back, making sure I’m there on time & only missing one session – I got the time wrong! Overcoming not only my anxiety of new places & people – also driving to places I am unfamiliar with – and overcoming the anxiety of being locked in a small metal tank! 
Dang, I did sooooo good! I feel like a new woman just from beating all that anxiety! And that’s before I tell you how the oxygen has helped my MS and my Fibromyalgia! 

Ill talk more about how it has helped me in my next blog!

First I want to thank every single one of you that donated money towards my oxygen mask! 

This really is going to make sitting in the oxygen chamber much more comfortable for me!

Styled in the video below! And for reference, I didn’t do my usual & discombobulate the mask, watch the video, it will make sense! 

The mask is fine! All pieces are there as should be! No mask was harmed in the unscrewing of pipes after my oxygen session today! 🙈
In fact, the mask is better than fine! Its perfect & fits every time I wear it! I know I only collected it today, I have however, tried it on several times! Would you expect any different from me! 😂
As always, questions & comments are welcome! 


Vix ❤

Photo is my own
Massive thanks to all that donated to help me get my own mask!

Pipes screw on either side of the mask. One side Oxygen in & other side air out

Pipes screw on either side of the mask. One side Oxygen in & other side air out

5th July 2017 Oxygen therapy #7

I haven’t done a video to go with today’s Oxygen therapy blog.

The treatment went really well, I’m really enjoying being able to take the time and its purely just ‘me time’ Its something that we rarely do for ourselves, due to the busy lifestyles we lead. 

I am a firm believer in making time for yourself, to check in and listen to your body, she’ll talk to you if you give her the chance! 

I’m really starting to enjoy reading again. Ever since I lost vision in my right eye, on the lead up to my MS diagnosis, I stopped reading as much until I got myself a ‘Kindle’ This was a great move, it meant I could enlarge the text, so I didn’t struggle so much to see the print.
On days when my vision isn’t as good (normally when its hot) I still use my Kindle, but there’s nothing like the feel of holding a book. That’s if you can feel, and MS hasn’t taken that from you, sense of touch for me is like you would get if you are permanently wearing washing up gloves! 

How are u at holding books? I find that really painful and heavy as well! Oh the joys! If anyone has any cool tips on reading books, any devices used to hold one and keep the pages of book open???? 

Please, I’d love to know 😄
The reason I didn’t do a video is because around the 15 minutes left in the chamber marker, I went so unbelievably tired! It wasn’t like my normal ms fatigue, more like absolute exhaustion! 

I just wanted to sleep! So I closed my book & rested my eyes, I needed to be alert enough to drive!

Maybe I was effected so much because I was listening to background music as well as reading? All that information going into my brain, must be a lot to digest?

I made sure I was completely awake and alert before driving home, which also meant I couldn’t do a video! Even the shortest videos I do can completely exhaust me! 
I know for sure that the heat hasn’t been helping me at all with this feeling of exhaustion, but I can’t blame that whilst I was in the chamber as it was relatively cool! 
Next one isn’t until next week now, as I have an appointment at my local hospital tomorrow for some tests to be done on my stomach. Its been a long time since they took a look inside it, when I was in so much pain after eating, I actually stopped eating normally for 6 weeks! This must have been around 15 years ago!??? 

Because the pain still comes and goes with no real pattern, my friends & family persuaded me to speak to the Dr about it. He referred me for an endoscopy, which is being done tomorrow. 

This just means that I’ll be missing another session of oxygen, and I’ll be going over the 15 weeks. This didn’t seem any issue when I spoke to the staff at the MS therapy centre today.


I’ll keep you informed! 

As always, if you have any questions, I’ll do my best to answer. 

And please please, if you have advice on book holding issue, I’d love to know.
Much love, Vix

Photo is my own, as is the text

3rd July 2017 Oxygen therapy #6 ✔

Yesterday, Monday 3rd July was the start of week 3. I have been doing an intensive course of Hyperbaric oxygen therapy, that I am trying for my MS fatigue. 

MS fatigue is like no other fatigue! See oxygen therapy #4 (⬅ click here) for really good explanations of MS fatigue. 

This is working! My fatigue is lifting after every session & its an amazing feeling!

As hard as it is getting myself to the appointments on time, mainly because of my anxiety. I do actually really enjoy the time that I am at Mercia MS Therapy Centre (click link to go to their website)

The staff are all really lovely & I’ve also knowticed how pleasant visitors are there as well! I no longer feel nervous about going for oxygen therapy there, in fact I look forward to it! I don’t think many people know how terrified I can be at times to go to new places & especially talking to new people! I’ve always probably seemed a very outgoing person, but heres a secret, I’m not! I have just always been good at acting! Hey, I got an A+ in GCSE drama! You know that though, right! 
One amazing thing Chloe Brotheridge, her amazing book The Anxiety Solution, my health coach/yoga teacher Louise and my MS is teaching me, that’s to always be my own authentic self! 
Sounds easy right? It isn’t! 
You must of heard of the saying ‘fake it until you make it’ that used to be me for such a long time! Even when I was diagnosed with MS, even some days now. I’m not always 100% my true self, even though I try my best to be. 
With social media playing such a big part in out lives now, its so hard to actually be 100% real! Instagram & Snapchat are probably the most fake apps to see people on! Yes I use this, yes I get drawn in and yes at 36 I’m probably classed by many ‘younger than myself’ to be ‘too old to use them!’ 

I like to use this to communicate with friends, and also to share MS awareness. I also remember to stay alert to the ‘fake it till u make it’ folk and those haters that are out there! 

Only the other day, I saw video footage of 2 girls taking photos of each other. The video must have been about 20 minutes long, and consisted of them taking it in turns to photograph each other. Sound normal? What wasn’t normal was the amount of time each of them took to make sure they were facing the correct way, (best side forward and all that) to make sure their pout was on point and the back ground was perfect! I can understand why they were doing it, but come on girls, point the camera or phone, shoot and move on! Live your life! Forget the filters, I’m terrible for using them! Alot of the time its because I don’t see colour the same as you probably do (thanks ms) so I like to change the colour, I use ‘auto tune’ alot and hope for the best. But do I really need to on just a quick snap of something silly to share with friends!??? 



I’m enjoying this version of me, the true version, so much more, and I’m using less energy in the process! 

This is because I’m not using energy pretending to be ‘ok’ all the time! That was my biggest downfall when I worked at the opticians. I loved my job, I never faked that. It was the always having to be energetic, awake & alert for patients/customers! 


So whenever you see my photos or videos, they will be as true as possible, or I’ll state filters used, etc! 



So now you can probably appreciate a little more about my life, and how hard it is to do new things! 



Sorry about that little ramble there! I get carried away with this topic!
Heres my very short video from Mondays 6th Hyperbaric Oxygen Therapy…

28th June 2017 – Oxygen Therapy #5

Oxygen therapy went really well, 

It appeared I was going to be all alone today, I was a little nervous about that, nothing like how I expect I would have been years ago though! Winning with my anxiety! 

My first thought… ‘I can take some pics of the smaller chamber I’m in Tuesdays & Wednesdays’….

Like I said, wasn’t as nervous as I would have been years ago!

The small oxygen chamber at Mercia MS Therapy Centre

Enough space for a wheelchair

Seat and masks

Not by myself in here, surely not!


Darth Vader or Top Gun?

As always, comments and questions are welcome! 

Are you thinking of trying oxygen therapy to help you with your MS or any other condition?

Share with me! I’d also love to here about your experience of this treatment.
Much love, Vix

More antibiotics!

​Another course of antibiotics! 

The joys of an MSr with a lazy bladder! 😕
So, on top of my head cold and chesty cough, I now have my third bladder infection in as many months! I seriously need some probiotics
The blog i started a month ago about this part of my ms is growing!
•💚•

Meme shared via Pinterest, words are my own

You are enough!

​🔸Never look in the mirror and put yourself down, you see more than others do and less then others as well! You don’t see your own beauty!

🔸Get rid of your scales, they only thing they’re good for is to tell you numbers, they’re rubbish, they don’t tell you the truth: what an incredible, beautiful soul you are!

🔸Never question if your good enough, for anything or anyone! Just know that you are! 

🔸Always see the beauty in everything! It is possible! 

🔸Know how strong you are! You were given your life because you ARE strong enough!

•💚•

Meme shared via Pinterest, words are my own

Breathe!

1-1 Yoga! 

Today I will try to remember that where ever I get to in my practice is ok!

I will remember that not only have I completely stopped one of my MS nerve pain meds but I have also halved the main one as well!

Today I will remember not to be hard on myself because this is going to hurt & there’s a reason for it! 
I have to overcome the pain and not let it overcome me! I am in charge of own thoughts! 

It is with my mind and the breath alone that will get me through this! 


As with all my blogs please feel free to share using the options at the end of this blog.

Any comments are also always welcome! 

Thanks, Vix