“Those that have walked through the fire, leave sparks of light everywhere they go”
Four years ago tonight Debbie & I organised a kick ass event ‘The Firewalk’ where we united 20+ people together to walk the burning embers of the fire path!
This is where the fundraising addiction began! This is where I stuck my tongue out to MS & showed it who’s boss! More importantly this is where we raised £4k+ for @MSTrust
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Mixing it up a bit today!
This mornings pilates was cancelled, so I’m off to a different leisure centre. I’ve been to this class before but it was quite a while ago. This brings another challenge, I won’t know how to get there again or where to go when I’m inside the centre!
The class is being covered by another wonderful instructor, Hannah Bailey, who I know well. Makes me feel better knowing she’ll be there!
I don’t need to be anxious! Why is it I can tell myself that but I can’t shift that feeling!
Breathe Vix just breathe!
It’s going to be an amazing day right!?
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Have u ever heard that saying, ‘proud as punch’ well that’s how u feel right now!
Proud of all my friends that made up team BAM4MSUK because we have been chosen as fundraiser of the month for doing so well in the ‘Color Run’
http://www.ms-uk.org/fotm
I know it says my name but it was a team effort! We did it guys! Same next year!?
Click on the link to read my story & stay tuned as I’ll be sharing more about it soon! 😄 🌈
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It appears I may have a talent for saving birds!
Another one flew into the window here at Fugly Manor Nature Reserve, big explosion of feathers as usual & a tiny young Gold Finch hits the decking, neck twisted round!
I thought she/he was a gonna (for this posts sake bird is a she!)
When I bent down to her, she was still breathing and she blinked her tiny little eyes at me! Her neck was still twisted round so I was holding much hope. I very gently lifted her a cupped her in my hand, she just kept blinking looking & at me. I managed to find a shoe box, put some holes in so she wouldn’t suffocate, some kitchen roll and lay her in it.
I was due to go to my MS exercise class but wasn’t quite sure what to do with this precious little creature. I decided the best thing would be to keep her in the box and put it in the shed whilst I was out!
As soon as I got back, that little bird was on my mind! What will I find when I open the box? I wasn’t expecting it to be good news.
I opened the shed door, very gently I lifted the box and stepped out of the shed. If it was ok, the last thing I would want to happen is for it to be loose & flying around the shed!
I took a breath and opened the lid, nothing apart from some feathers & bird poop! No bird! Well I guess it’s ok then and maybe I cut that hole to large! I was shocked that it got through the hole!
Whilst being in shock that the bird was gone I then realised I needed to find it! It was in the shed somewhere! Oh gawd!
I looked around the window area, knowing that it would have been attracted to the light. Bingo! I could hear it, it was trapped between the wall of the shed & some wood. I managed to pull the wood out of the way & out flew the little young Gold Finch!
She flew onto the larger shed opposite, stopped to catch it’s breath and figure out what had happened and then flew away!
Yey! I saved another casualty of the window!
I feel so happy! 😄
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Oh my days! This was my post, this day FOUR years ago! Counting down to the firewalk fundraiser we organised for the MS Trust!
I never thought that night would have such a massive hit! All I wanted to do was prove to myself ‘if I can walk on fire then I can be stronger than MS’
I didn’t realise then what an amazing journey I was about to go on in rediscovering myself!
It’s taken along time but I think I’m finally at a place in my life that seemed so unreachable so many times!
I know there will be difficult times ahead, this is my life & I have MS! I’m in such a better head space now than I ever was before! As long as I stay this way, this focused then I hope I can handle anything thrown my way!
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Alarm set for gym o’clock! Let’s do this!
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#MyInvisibleFight #invisibleillness #invisiblefight #iiwk15
*THIS IS IN NO WAY A ‘PITY PLEA’ AND I’M NOT BEING NEGATIVE, I JUST WANT PEOPLE TO BE AWARE OF HOW HARD IT CAN BE FOR PEOPLE WITH INVISIBLE ILLNESSES*
After seeing the post on Facebook (shown above) I have decided I shall take part & so every time I see a photo opportunity of #MyInvisibleFight I shall post the picture on instagram & here on my blog site which will then share to Facebook & twitter!
If you know me, are close to me & think this will be too upsetting for you then please stop reading now.
My intention isn’t to upset people, nor is it to make people feel sorry for me or others with Invisible illnesses. We don’t need a ‘Pity party’ we just want people to understand & realise how hard it can be for us! How incredible we are! How strong we have to be!
To be honest, this is quite a good ‘pick me up’ for me as I often forget the challenges I have & still do overcome!
My 3rd picture is so terribly boring! No no no, not the picture! The picture isn’t boring, it shows boredom!
Everybody at some point experiences boredom but I suspect it’s short lived? What if you experienced boredom everyday.
What if you were looking forward to the weekend, only to find out you when you wake in the morning any plans you had that day would have to be cancelled! That’s right, cancelled!
I didn’t have many plans for today, Saturdays are usually my days off from exercise especially when my partner is off work so that wasn’t a problem for me, what was a problem was my pain levels! Far too high!
It was then that I was asked if I wanted to go clothes shopping! Seriously! But we went shopping last night, I hadn’t anticipated going today as well!
That was it, left home alone! I can’t stop my partner from doing things because I can’t go! I bet it’s as hard for her to go alone as it is for me to say ‘I can’t go’
The fear then is not knowing how long I’ll be cancelling plans for! Is this going to pass soon? Temporary, it’s only temporary? Please let it only be temporary! Oh man, I’m bored already!
‘Ping’ goes my phone, I reach for my phone & smile! This is when the fashion show begins, yey! I have always love clothes shopping so this was perfect, I didn’t feel as though I was missing out at all!
I’m very lucky in that I have wonderful friends who I get to chat with most days via the wonderful world of technology that we live in today!
That wasn’t the case for me 5 years ago when I was suffering badly from acute Multiple sclerosis relapses. At this point I didn’t have the amazing network of friends that I have now! I didn’t have the knowledge or the understanding of my 2 illnesses (Multiple Sclerosis – MS & Fibromyalgia) as I do now & I certainly didn’t have the ability to say ‘you go, I should really stay here’ What I did have was a lot more days when I had no choice but to stay in bed because I didn’t ‘look after me’ and because I didn’t have all my Internet friends I had a tremendous amount of boredom!
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#MyInvisibleFight #invisibleillness #invisiblefight #iiwk15
*THIS IS IN NO WAY A ‘PITY PLEA’ I JUST WANT PEOPLE TO BE AWARE OF HOW HARD IT CAN BE FOR PEOPLE WITH INVISIBLE ILLNESSES*
After seeing the post on Facebook (shown above) I have decided I shall take part & so every time I see a photo opportunity of #MyInvisibleFight I shall post the picture on instagram & here on my blog site which will then share to Facebook & twitter!
If you know me, are close to me & think this will be too upsetting for you then stop reading now.
My intention isn’t to upset people, nor is it to make people feel sorry for me or others with Invisible illnesses. We don’t need a ‘Pity party’ we just want people to understand & realise how hard it can be for us! How incredible we are! How strong we have to be!
To be honest, this is quite a good ‘pick me up’ for me as I often forget the challenges I have & still do overcome!
My 2nd photo is something as simple as opening the post!
I love to receive mail! I no longer get bills in the post, come on people, we’re in the age of technology! Everything is now email, text, apps, this is our world!
“Your EE bill is now ready for you to view online”
“Your E Newsletter is now ready to be viewed online“
“Your now due your next eye examination “
How exciting is it to hear the letter box rattle, knowing that someone somewhere has thought of you! Either that or its a flyer from the local takeaway! No thank you! We don’t want those here!
Off I go to collect my mail, I sit down with whatever hot drink I’m partial to that day, post on the table in front of me & then I remember!
Oh no, my hands aren’t working today! I can’t keep a tight grip of the letter & coordinate my other hand to work at the same time! Oh, oh…. no! I’ve torn it! I hope it’s still readable!
Yes there is such a thing as ‘letter openers’ I’m just not sure it’s a good thing on days like these for me to be holding something with a pointy end!
Imagine, gawd forbid if I ended up at A&E with a puncture wound somewhere on my body & having to explain to the nurse how I did it! I’m sure they’ve heard worse!
“It was because of the letter & a letter opener, actually nurse, the letter opener is still in my tummy”
Now please don’t stop sending me good old fashioned snail mail because I may not open it to perfection, where there’s a will there’s a way!
megaspecial.me
megaspecial.co.uk
#MyInvisibleFight #invisibleillness #invisiblefight #iiwk15
*THIS IS IN NO WAY A ‘PITY PLEA’ AND I’M NOT BEING NEGATIVE, I JUST WANT PEOPLE TO BE AWARE OF HOW HARD IT CAN BE FOR PEOPLE WITH INVISIBLE ILLNESSES*
After seeing the post on Facebook (shown above) I have decided I shall take part & so every time I see a photo opportunity of #MyInvisibleFight I shall post the picture on instagram & here on my blog site which will then share to Facebook & twitter!
If you know me, are close to me & think this will be too upsetting for you then stop reading now.
My intention isn’t to upset people, nor is it to make people feel sorry for me or others with Invisible illnesses. We don’t need a ‘Pity party’ we just want people to understand & realise how hard it can be for us! How incredible we are! How strong we have to be!
To be honest, this is quite a good ‘pick me up’ for me as I often forget the challenges I have & still do overcome!
My first photo is about Pain! We have all felt pain at some point in our lives but most have the pleasure, yes pleasure of that pain being short lived! Have you ever seen pain?
This is the first of #MyInvisibleFight I am never pain free! Some days I ‘cope’ with the pain better than others but that doesn’t mean I’m in less pain! The pain is still the same, it still grinds me down. Like I said, the difference is how I cope with it!
I wake up, I hurt! I need to move, how much will it hurt me to swing my legs out of the bed & sit myself on the edge?
I have to do it, deep breath!
Yeah that hurts! My whole body! Is this what it feels like to have full blown flu? No, it’s worse!
Okay so I’m up & I’m ready
I’m still in as much pain if not more from all of the moving around I’ve been doing but now I’m really focused! It’s time for Pilates! #addict!
It doesn’t end there, when my partner is home from work we then go to the gym for a 30 minute workout!
My pain eases when I exercise! I push myself everyday to do these things because I know that whilst I’m doing them my pain decreases about 10% and afterwards for about 3/4 hours I’m in 50% less pain!
That might not seem much but you tell me when u suffer with chronic pain all day every day if it is worth the push!
The picture below shows it is! Pic to the left was last year…Before pilates, pic to the right was yesterday, 7 months at pilates
I’m sure it is because it’s National Fibromyalgia awareness week that I’m in more pain!
Fibro is definitely making me aware! 😝
I still wear my smile with pride! 😄
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Living life the MegaSpecial way! 