Invisible veins?

This technology would be great for when I have my medication every month for my MS!

#ms #multiplesclerosis #spms #strongerthanMS #MegaSpecial #medication #tysabri #veins

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I’m so speshul!… Sunday dinner…

“Pork for Sunday dinner” I discussed with DebbieRahRah
“I’ll get some pork out of the freezer” I told DebbieRahRah
I put the already split and bagged pork in a plastic tub still in its bag & put the tub in a bowl of water for rapid defrosting!..

8 hours later when DebbieRahRah starts preparing dinner, chopping carrots, parsnips, potatoes etc etc, you know, the norm for a Sunday dinner. I hear a voice from the kitchen
“Oh! These are sausages! Not pork for dinner then!”

“Hmmm, I thought the pork looked like it was thin strips!” I shouted back!

Oh the things we do!

megaspecial.co.uk

A look through a dyslexics eyes

This is so fascinating!

I am not dyslexic but DebbieRahRah is. I clicked on the link to have a read, I always like to try and understand what it’s like to be in her world!

I wasn’t prepared for what I saw! Like I said, I’m not dyslexic but, what I saw is exactly what I see every time I read/write for the past 5 years!

This makes me then question, is this a part of my cognitive problems from my MS & Fibromyalgia!?

I am interested in knowing if anyone else has experienced this due to their MS, Fibro or any other?

Click here to see what happens

megaspecial.co.uk

My fight with ‘Fight Klub’ and Multiple Sclerosis

Please understand, before reading any further. This is a very raw, straight from the heart, honest blog!

There is also some rude language right at the end of this piece which I shall not appologise for as it’s how I feel!

I feel so angry!
It’s so unfair!
I just want to better myself!
I found something I love… Fight Klub!
It’s extremely hard core!
I love it!

Every time I do it I over heat
My core temperature rises so high
And I can’t control it!
I have extreme sensitivity to heat!

I’m trying different ways to keep my temperature down but nothing has worked yet.
Even after the class finishes my temperature continues to rise!
I have to finish the class before everyone else, to try and lower my core temperature enough to get to the car!

After the class my daily MS symptoms are worse, every single one!
My legs are weaker and give way under me
My vision blurs in my right eye to the point of not being able to see much
My hearing starts to fade and all the noises around me sound muffled
My MS fatigue is worse than ever
My speech slurs
I find it hard to catch my breath!
I can’t talk, if I do I loose my breath

I even get old symptoms reoccur!
My vertigo comes back
Last night I had the MS Hug again! Thats been a while! This is really not something you want when your already so out of breath you think you might pass out!

The MS hug is a symptom of multiple sclerosis where you feel as if you have a tight band around your chest or ribs or it can be pressure on just one side of your torso. Some people find that it is painful to breathe.

Last weak I fell after a fight klub class!
I hadn’t realised the change in floor height as I walked out of the room and ended up in a heap on the floor feeling sorry for myself!
Thanks to Hannah the instructor for speaking sense to me, I pulled myself together with only my pride bruised!

Last night’s class was one of my best classes! There’s no in between for me, I’m either all in or all out! I had it together, throwing my punches but not to hard, it is shadow boxing after all!

After the class last night my legs were weaker than normal and I was extremely hot!
It was during the journey home that it happened, a friend had taken us that night, we often take it in turns to drive. I say we when I really mean my partner and our friend take it in turns to drive! As if i could drive after that class!
I must look an absolute state afterwards, but that only reflects how hard I’ve worked!

I think it can be quite a shock for people to see me like that! I know it must be upsetting when it is out of your control and there is litterally nothing you can do to put me right.
Why do I do it to myself? Because I have found something that is just perfect for me to let out my anger, my frustration! I just need to learn more self control and not put every ounce of energy I have into it because of course, I still have to be able to walk back to the car afterwards, oh and then there’s the walking from the car to my home when we return!
Being carried to the bungalow is not going to be an option! Not again!

It was years ago that exercising was a big no no if u have ms but then they learnt, the symptoms that come during and after exercising are short lived and with no lasting damage!
As long as I can cope with these symptoms I’ll be ok, thats what I’m trying to do, find a way of coping so I can continue to do something tht I love so very much!

So here are my words for today, tomorrow and as long as I have MS (obviously this is for life or until they find a cure!)…
Know this, I will always stand up to it! I will never give in because like Fight Klub, I’m either all in or I’m all out! There’s only one way to be, I will never stop fighting

#fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms #fuckms

megaspecial.co.uk

When u forget things work because of #msfatigue

Charging my phone wondering where the USB end of the lead fits into my phone!
I’ve charged my phone millions of times! Where does it go?

The realisation that the USB end goes into a plug or in this case my lap top & the MINI USB goes into the bottom of my phone!

This is MS fatigue! Oh my MegaSpecial life! It’s never dull! 😜

megaspecial.co.uk

Practicing Pilates at home can have its downsides #pilates #pilates4ms #pilateslovers #ms #spms #multiplesclerosis #thisgirlcan #ishapeme

Today I did my best ever Pilates ‘100’ (top pic) every time I seem to be getting better especially when I do it ‘Hannah style’ (one of my Pilates instructors)
Beating away trying my best to keep count on my last set & our dog decided she wanted a drink, anyone that knows Ollie will also know that she has got to be the messiest dog when it comes to drinking!
I knew it was going to happen, I don’t know why I didn’t move sooner! There I am lying on the kitchen floor, Ollie has a drink of water, walks over to me a drips it all on my face! 😨

Next was ‘The Plank’ (bottom picture) nothing quite as disgusting as above but really annoying for me!
My most impressive FULL Plank ever, yes… FULL PLANK and neither Deb nor me counted how long I held it for!
I’m not talking a record time or anything like that but surely something in the region of a minute which let me tell u, seriously impressive for me!
NEXT TIME I SET MY WATCH!
*pictures courtesy of google*

megaspecial.co.uk

Rock, roll & wide awake!

Well, my wifey fell asleep on the sofa at 8:15pm! I had to sort the kids (🐕🐕) believe me, that’s a mission! Make sure said wife took her meds after I found her catching flies slumped on one of the tub chairs in the kithen! Help her out of her onesie, never an easy mission!
Go round the bungalow making sure it’s all locked up, go around once more… u never know!
Sort myself out, meds, pjs etc. Check the doors where locked, I’d forgotten I’d already done it twice!
In bed before 9pm… BOOM! Rock, roll & wide awake!

Now who’s the one with MS! 😜

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