Just too tired for anything today!
Thinking, blinking, talking , walking, its all too much!
Too tired for contact lenses, too tired for makeup & too tired for a filter!
This is how heat affects my MS! Its 19Β°c and I’m having trouble with everything cognitive!
Β
My ‘after’ photo! ‘After’ my visit to the hospital for my monthly MS medication top up!
and ‘After’ sleeping the ‘after’noon away, because it really is extremely tiring for me during my medication infusion (basically sitting with a drip next to me with the medication being pumped straight into a vein!)
Give me a couple of days & I’ll be back to me’ ππ
*Taken on my iPhone, no filter, no makeup! Just me!*
Time to rise, shine & set your soul on fire! Have a fab weekend bloggers!
πππ
Had a lovely morning today with a spot of hot sweaty Pilates! Might seem odd to some but that statement makes me feel so proud, being able to push myself to exercise in the heat & humidity without any air conditioning!
For anyone that isn’t familiar with heat/humidity & the effects on MSrs: It can & does (for me) bring on all of my MS symptoms I have experienced to date, normally tenfold!
I’ve finally found a way to manage this & continue to exercise.
Shit man! My legs today after Thursday’s Body Pump (weights) Just crazy man, hurt so much but it feels so good! I’d rather the pain of leg day than MS! Although it has kicked off the MS burn! Hey ho, can’t have it every way!
Do you know those days that you have when they just turn out to be so much fun? That was our morning/afternoon when Sarah & I went along to my most favourite Pilates instructor Kate’s class, followed by a lovely pot of tea & a spot of lunch at our favourite eatery with Kate. What made it even more special was DebbieRahRah & the kids being there!
This is what life is about, making memories & capturing them so that if my MS continues to steal my memory I will always have these photos to look back on!
We all have such busy lives, sometimes we just need to take a moment, forget about the dirty dishes, get with your peoples and remember what we are living for!
For me it’s laughter, good food and wonderful people!
When I was diagnosed with MS I never believed I would feel as happy as I do 6 years on!
I feel proud of who I’ve become & who I am becoming!
Baby steps, many more to take and lessons to learn along the way!
I really am loving this journey even as hard as it is!
Happy World MS Day 2016!
Thank you to all my friends & family for your support & inspiration!
Also thanks to:
Mel Wells – my food & well being influencer
Louise Aviles – my yoga instructor, yoga influencer & good friend
This is an emotional, heart string pulling post but is such a good reminder for me and an excellent peace of advice for everyone!…
No matter what you are going through right now, remember, you are never alone!
Find yourself people that are in the same situation as you! This post explains how I did just that and by doing it I realised I wasn’t alone & by being with these amazing people I found that I could feel normal! I was no longer the odd one out!
I found people that spoke the same MeSsy language as me!
Find yourself a person or find your people!
I found mine!
This picture popped up on my facebook memories! Gulp! Deep breath!
Facebook is great for helping me remember past events, even when they have a massive effect on the current day! This photo was taken 4 years ago at my 2nd Ladies with Lesions meet.
How sad that a lady in this picture is no longer with us π
π₯ Tanya (in the middle at the back) founder member of the group for women with MS ‘Ladies with Lesions’
Being a member of this group brought me my incredible friends & showed me I wasn’t the only person with MS, it’s a very lonely time when u find out you have a life long illness (disease)
I honestly believe that being a member of this group (LWL) helped to shape the person I am today!
For this I will be forever thankful to Tanya! Forever missed and never forgotten! Rest in peace lovely! 😭
I may not be the strongest
I may not be the fastest
But I’ll be damned if I’m not trying my hardest!
I may not be able to go to every exercise class I book, working hard in classes tests me the next day!
Hard choice but sometimes I just have to say to myself, I’m being kinder by letting my body rest, for now!
Some people may think it’s quitting, I know different!
HAPPY MS AWARENESS WEEK!
Yesterday I had a very productive day! Managed to get out in the garden 1st thing and gave it a quick spruce around, on form in pilates and then shopping after!
I’m so on it today!
Time for a rest before body combat class later! I’m not saying I’ll do all of it but being there is better than not! Right!
Yes I have MS, yes I do all of these things to the best of my ability because by doing these things I am looking after myself!
Happy MS awareness week!
Living life the MegaSpecial way! 