Tag: multiple sclerosis

Nuerogenic bladder nightwalker

🙋 Hi, my name is Vix & I’m a nightly pee-a’holic 🙊🚾

Ha, yeah, my bladder woke my brain up! 

This is why I so easily, randomly, fall asleep in the day time! 😴

From the occasion night walker 😉

🔅🔅🔆🔆🔅🔅🔅🔅🔅.

Meme shared via Instagram

MS people are some strong mother fkers

5:45am and I’ve already been fully awake for an hour and half, to say I #slept much last night would be an #overstatement! 

#Coughing, #spluttering, #sneezing, #backfiring, it was all going on! At 2am I thought it was 5am! 4am Deb asked if I wanted a #drink, I declined as I had already decided to move my body to the lounge! Poor Deb needs her #sleep and so I left her in #peace!
Thanks to my #MS, sleep just isn’t working so well lately! I don’t remember the last time I slept past 5am without unbroken sleep, and many trips to the #toilet! More of that coming up in my latest #blog! 
If its not my #MSbladder playing up, its a #headcold & a nasty one at that! 

#Grittyeyes, #burningfizzingnose, #leakingnose, #razorblades in my throat, #tonsils that feel the size of #golfballs and my #chest is on fire every time I attempt to #cough! 
I remember when a #cold was just a cold but now they take a whole new meaning and deserve a name far worse! 

Its understandable why they are so much worse for us when our (MSrs) #immunesystem #attacks itself on a daily basis! Its like it has far better things to do than fight off a pesky cold, like attack the protective #coating that covers our #nervefibres, causing signals sent from your #brain through our #bodies to be incorrect! 
•💚•

Picture shared via Pinterest, words are my own

​Illuminated soul. 

This resonates! 
*Meme shared via Pinterest, words below are my own*
This journey is taking me down some interesting paths, ones that I wouldn’t have had the courage to walk before! My eyes have been opened, its like I can see in the dark, I can see where the monsters hide! 
I can see you!
I’m not afraid anymore, I see my way by my own light! Getting ready to spread my wings to show you all where your monsters hide! 
I know all these changes in me is because of yoga! Its not just the physical, its the spiritual! 

MS effecting my speech…

​Another referral due to my MS! 

Its crazy how much of ‘you’ MS affects! 

My voice hasn’t sounded the same for around 4 years! 

Nothing major, I just constantly sound as though I have a cold! 
The most annoying thing now is the amount of times I get asked to repeat myself! 

I can’t tell what volume I should be using so can occasionally speak very loud!

The worst is when my voice becomes a whisper and I slurr my words! 

All because MS has affected my swallow! 

When I used to get asked if my swallow was okay at routine check ups, I always thought the consultant meant ‘do I choke often’ 

Answer: “occasionally”
I never linked the question to the problems I have with my voice! And yet it makes total sense! 

Doh!!! 👅😝 

Breathe!

1-1 Yoga! 

Today I will try to remember that where ever I get to in my practice is ok!

I will remember that not only have I completely stopped one of my MS nerve pain meds but I have also halved the main one as well!

Today I will remember not to be hard on myself because this is going to hurt & there’s a reason for it! 
I have to overcome the pain and not let it overcome me! I am in charge of own thoughts! 

It is with my mind and the breath alone that will get me through this! 


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Any comments are also always welcome! 

Thanks, Vix