ms sucks – Living life the MegaSpecial way!

My agony weekend Friday

When ur in so much pain, only lying flat is on option & even the tiny weight of Walter the Whippets head on ur stomach area makes u feel like u’ll pass out! 😪

Come home DebbieRahRah 😫

Photo is my own as are the words used in post

Frustration overload continued…

This may seem a contradiction to last nights post but, it has been planned for a while, I’m off to a new (to me) yoga class with my yoga bestie!

I won’t stop my yoga practice, I just won’t be attending classes for a while (after today!)

This means I’ll have to mentally work harder to make sure I do continue with my own practice! I’m sure you can imagine, how much easier it is to sit on the sofa, rather than rolling out your mat!

I’m not quitting, its not my nature, I’m just listening to my body and preserving my emotional state!

MS anxiety & depression is so hard to stay on top of!

🙏

Frustration overload

This is so true!

But the sadness in me is too much for me to bear.

There are so many reasons why I have loved attending yoga classes.

But there are more reasons why I have to stop attending them!

I do know this, I can’t continue to feel the way I do whilst participating in classes and after.
I won’t stop my own practice, I hope I have the strength to continue it anyway! Only time will tell.

MS people are some strong mother fkers

5:45am and I’ve already been fully awake for an hour and half, to say I #slept much last night would be an #overstatement!

#Coughing, #spluttering, #sneezing, #backfiring, it was all going on! At 2am I thought it was 5am! 4am Deb asked if I wanted a #drink, I declined as I had already decided to move my body to the lounge! Poor Deb needs her #sleep and so I left her in #peace!
Thanks to my #MS, sleep just isn’t working so well lately! I don’t remember the last time I slept past 5am without unbroken sleep, and many trips to the #toilet! More of that coming up in my latest #blog!
If its not my #MSbladder playing up, its a #headcold & a nasty one at that!

#Grittyeyes, #burningfizzingnose, #leakingnose, #razorblades in my throat, #tonsils that feel the size of #golfballs and my #chest is on fire every time I attempt to #cough!
I remember when a #cold was just a cold but now they take a whole new meaning and deserve a name far worse!

Its understandable why they are so much worse for us when our (MSrs) #immunesystem #attacks itself on a daily basis! Its like it has far better things to do than fight off a pesky cold, like attack the protective #coating that covers our #nervefibres, causing signals sent from your #brain through our #bodies to be incorrect!
•💚•

Picture shared via Pinterest, words are my own

Having a head cold when your immune system is already attacking itself!

Its a Pajamas all day and Netflix kinda day!
Thoughts come before action, but this time my body has to come first!
Yoga is teaching me to take better care of myself! Even if it means cancelling favourite classes because I need to reserve my energy!

I always forget that even the tiniest head cold can have major impact when you have a chronic illness where your immune system attacks itself on a daily basis!
Hoping the more I rest, the quicker I can shift this head cold. Woke up this morning feeling like my tonsils have taken over my throat!
Looking forward to my poorly wifey getting home from work so we can netflix and chill together until Tuesday! 😍

PJ & Netflix kinda day — Picture shared via Pinterest, words are my own

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You are something magical

”You are something magical”
Remembering this today, especially after receiving 2 letters from my neurologist via my GP

The letters are from my latest routine #appointment with #neuro for my #ms review which was back in September.
The letters speak briefly about my MS but mainly about my weight gain

I know this is part of a medical practitioners job but I could have cried whilst reading it!
He says about how we discussed my increase in antidepressant which I also use for pain relief and the possibility of this being a reason for the rapid increase in weight.
Well Mr hoity toity, I’m doing the best I can right now & I’m happy with that!
Looking forward to my lovely Yoga teachers return from her jollies so we can make a start on me being one of her health coach case studies.

MS, you took my speech!?

Cog fog! (Cognitive function)

Speech! Say no more!

Major frustration when your constantly asked to repeat yourself because you having a massive sensory overload!

Feel for my Mum, must be upsetting to have to keep asking all the time!

She’s not used to hearing me like this as she lives in a different country to me! 😥

Damn you MS! Give me back my speech!

September sun

True story!

20°c is always going to be tropical to me!

Don’t get me wrong, I love to see the sun! Who doesn’t! Its one of those enigmas in life, people are happier when its sunny (unless your a vampire, then that’s just unfortunate! Move to Forks, Washington,USA! I hear its nearly always cloudy there!)

Like i was saying, I’m happy to see the sun, as long as i can stay cool & its not humid! It’s the humidity that’s the hardest to combat for us MSrs, staying cool can be achieved a number of ways but how do you combat humidity? Answers on a postcard 🤔😉