Day 4/7 Steroids for possible MS relapse

20 tablets down, 15 to collect today! Another 3 days left!

Oh please, let there be a miss calculation somewhere!

I’m sure its only normally 5 tablets all together in the morning for 5 days!

Chakra healing meditation

If anyone has ever thought about meditating but unsure where to begin….

A great way to start is with ‘guided meditation’ This is a brilliant way for me to meditate, it keeps me connected, especially when I’m feeling as tired as I am while on Steroids!

A brilliant app that I use is called ‘insight timer’ which is where I had this mornings meditation from.

Its a free app, in app purchases can be made for ‘classes’ which are fantastic, or you can just still to using it for free, which is what I tend to do.

So, I’m meditated, medicated & ready for Steph to pick me up!

Tysabri infusion number 100! Bring it on! And then an afternoon of sleep!

Day 3 of 7 Steroids for MS relapse!

Breakfast of champions!

Well, that’s supposed to be porridge to eat before I wash my steroids down with a nice cup of decaf coffee, in my favourite mug!

Melt down…

Last night the low mood hit me hard! I had such a vile attitude towards my DebbieRahRah! I know what you think, she’s amazing, why would I be like that!?

I don’t think even I can answer that! Its like not being the same person in your own head! My thoughts don’t even sound like mine! Snappy! Ok, maybe this was the old me, but not for long time!

I know the answer! Meditation! It helps me, so I need to concentrate more on that!

I miss my Yoga! Since the last class of the foundation course, its like I have lost the confidence! During the last part of 2018 & the first part of this year, I attended a foundation course in yoga ‘Diving deeper’ it was everything I wanted! All the philosophy, meditation, we discussed different types of yoga. All in a wonderful environment & we started to put our own practice together, surrounded by like minded people & no mobile devices! So no photos of anyone doing ‘the best yoga for their instagram account’

It was truly wonderful! I had a few melt downs when it came to doing the homework. Describing how to get into different postures! If I couldn’t physically get into the posture myself how could I describe it!?

That was until my teacher told me, it was only for myself, so write down how I would get into the pose! If I had to use props to get into a pose, then that’s what I had to write! If there was modification I could do that was different to what I already do, then that’s what I put in the box for modification.

I will always remember my teacher saying to me ‘Its only yoga! Don’t get so stressed about it!’

But to me it was more than that, it was a reminder of how different my style of yoga was to so many of the wonderful people in that class!

The final posture class was all the postures that I just couldn’t do! Even the modifications were near impossible because of the pain I have in my shoulders!

That day, I had an epic meltdown! One that I will never forget!

Truthfully, I felt as though I shouldn’t have been there! As though I didn’t belong there!

And ever since, thing’s just haven’t been the same! No personal, private yoga. My meditation has even taken a back seat! That brings me back round to where I started this post!

Last nights meltdown has made me remember a conversation I had with my Carer, Steph last week. While I was trying to get on top of my fatigue management, I came to the conclusion that I needed to continue with only one exercise class a week, but to change from week to week which class I do.

That way, I still get to do all my classes, which I haven’t been doing. Just spread out over time.

Steph asked me about my meditation and was I managing to do it every day? Did I have enough time in the morning to meditate before she arrived to start her day?

The answer, truthfully, was no! Yes, I have the time, but I just haven’t been sticking to it. I have found other things to do, that hasn’t been as important as my mind health, my meditation!

So that’s it… That’s why I’m not handling thing’s well!

26th July 2017 Oxygen Therapy #16

The intensive Oxygen therapy course I started on June 20th 2017 is finally finished! 
I attended my last intensive session today & I’m so proud of myself! 16 sessions of oxygen, driving myself there and back, making sure I’m there on time & only missing one session – I got the time wrong! Overcoming not only my anxiety of new places & people – also driving to places I am unfamiliar with – and overcoming the anxiety of being locked in a small metal tank! 
Dang, I did sooooo good! I feel like a new woman just from beating all that anxiety! And that’s before I tell you how the oxygen has helped my MS and my Fibromyalgia! 

Ill talk more about how it has helped me in my next blog!

First I want to thank every single one of you that donated money towards my oxygen mask! 

This really is going to make sitting in the oxygen chamber much more comfortable for me!

Styled in the video below! And for reference, I didn’t do my usual & discombobulate the mask, watch the video, it will make sense! 

The mask is fine! All pieces are there as should be! No mask was harmed in the unscrewing of pipes after my oxygen session today! 🙈
In fact, the mask is better than fine! Its perfect & fits every time I wear it! I know I only collected it today, I have however, tried it on several times! Would you expect any different from me! 😂
As always, questions & comments are welcome! 


Vix ❤

Photo is my own
Massive thanks to all that donated to help me get my own mask!

Pipes screw on either side of the mask. One side Oxygen in & other side air out

Pipes screw on either side of the mask. One side Oxygen in & other side air out

25th July 2017 Oxygen Therapy #15

Wow! Nearly nearly nearly done it! 

Number 15 of 16 intensive oxygen therapy sessions was today! I’ve so got this! Quite look forward to it now if I’m honest! I think its the ‘me’ time I look forward to, and it’s lovely to be able to get out and see different like minded people!

I had a chat with one of the ladies who is there having oxygen therapy for cancer. She is absolutely incredible! Totally inspiring! Infact, she was talking to me today, about how she has changed her diet to help her feel better! 
I explained to her that I had just bought a book, called ‘The Wahls Protocol’ all about how changing your diet can help MS symptoms! 

This is my next book to read! And I finished my current book today, so what good timing was that! 👏
When I go for my session tomorrow, I shall be purchasing my new mask! 

Thanks to everyone who very generously donated to my ‘Go fund me’ page. Not only am I able to buy my own mask, I will also donate the reminding money to Mercia MS Therapy Centre, the fundraising manager has said that for every £45 raised I can have one treatment, whether it be for Oxygen Therapy or any from below…
Well done to Kerrie-Ann today for getting fitting of my mask perfect today! Gold star! ⭐

Treatments offered at Mercia MS Therapy Centre, Coventry, UK
Photo taken from outside Mercia MS Therapy Centre, Coventry, UK
Me after session 15 Oxygen Therapy

Love yourself, all of yourself! 

If someone loves you for ALL that you are, why shouldn’t you love ALL of yourself! 

We are made to believe that we should all look and behave a certain way, to be accepted in society. 

I have never been one to follow the crowd, or to be put in a box.

Yet for so many years, since the very young age of around 10 or 11 (when I started developing my extra parts that define me as a lady, my #babylons and child bearing #hips 😉👙) I was always made to feel like I was fat, my shoulders were too broad, my hips too wide & my #booty too big! 

It was children the same age as me that went to the same school, they were the ones doing the name calling! 

It has taken me until the age of 36 to realise how I have, for so many years, spoken to my body in such a cruel way! I have spoken to her the same as all the children that called me fat at school! How sad is that! 

– 

My body has for those 36 years treated me, with nothing but care and dignity! She’s showed up for me every time I’ve needed her, despite how badly I may have treated her at times! She’s always been there, curves and all! 

– 

They’re amazing thing these bodies of ours! Lets start treating them better! Stop speaking badly of yours next time you look in the mirror. Speak to her how you would to your most beautiful friend! 

💚🙏💚

Meme shared via Pinterest, write up is my own, Vix

20th July 2017 Oxygen Therapy #14

I’m so happy! I’ve just been for my 14th session in my intensive oxygen therapy.
Whilst I was at the centre, I spoke to Mandy the fundraising manager, about raising funds for my oxygen mask. I explained that, because I had already raised enough money for my oxygen mask, I wanted to donate the rest to the therapy centre.
Mandy explained to me that for every £45 that I raise (over the cost of my mask) I could have one oxygen treatment or any other that they offer there!
So, if people keep donating for this amazing cause, you will also be helping me to continue having treatment!

Thank you again, keep sharing this & lets see how much we can raise!
Click here ⬇

Help me raise more funds for Mercia MS Therapy Centre
Vix

 

 

I’m pushing past my goal! 

I’m amazed at all your generosity! Thank you all so much for donating.
Because of how quickly donations have come in, I have now made the decision, to donate any money raised OVER the amount needed for my oxygen mask, to Mercia MS Therapy Centre (Kerri-Anne Browne), where I have been having my Oxygen therapy.
The centre is only able to run because of the generosity of the public and their donations. 
Thank you so much! Vix
⬇ Click her to donate ⬇

The Power of Oxygen
🌫