Category: Constraints of my MS

Happiness is…

A moment in the garden tidying & now were both walking like 90 year olds! 

Thought I’d have a bath to ease my aches and pains, forgot just how much the heat and humidity effects my MS! 

It was more like bathing in cement when I tried to move! 
Sooooooo, PJs are on! Hot water bottle on our backs & a takeaway ordered! 

All about balance! 

Meme shared via pinterest, words are my own

Its ok not to be okay!

Its ok not to be 100% 

Its ok not to be any%

Just as long as you remember 

You are doing your best

And are making the best choices

For yourself in this moment!
Oh and of course, you are magical as f**k!
I don’t know if it was naive of me, but I really didn’t expect that this beautiful tattoo, could take such a lot out of me! 

Maybe its not just the tattoo! 

Having yet another bladder infection probably has a lot to do with it! 

You just don’t expect to have to take so much into consideration when it comes to having MS and Fibromyalgia! 

Taking it easy and trying my best not to feel guilty about it! ✨✨✨

Meme shared via instagram, words are my own

Tattooing 27/4/17

This week is MS awareness week in the UK, something I am very aware of everyday as you can imagine! 
MS has changed my life! I learn new things about my-self every day because of it. Some things I’m not keen on which is ok because at least I can spend time reflecting on the things I don’t like, as long as I’m not spending too much time on one thing because then it becomes unhealthy! 
Its taken me along time to get to this point of acceptance, there is no end point to it though, something people may not know is how much MS can change from day to day, meaning everyday we may have to adapt and accept something new or even the return of an old symptom! 

Our lives are never boring! 
Yesterday was an amazing day! A day that I had been planning and working on for a long time! 

Yesterday I took myself into the city of Coventry, its only just over 10 miles away, but for someone with extreme anxiety, this is an amazing thing to do! 
I went to see this beautiful, kind & gentle soul, Holly Marie. So she could get creative and mark me with a beautiful image, that would forever remind me of what an incredible journey I am on. 

The point I am at in my life now, feels so right! I feel as though, with the guidance of so many over the last 7 years (and more, even before my MS) I have started To unveil the real me and like a Lotus flower, I am blossoming!
What an epic LifeJourney! 

Thank you for treating me so well yesterday Holly and I’ll see you in 2 weeks for my next symbolic image! 

Picture is my own, as are words. Permission to use image of tattooist was granted 27/4/17

Tattooing 27/4/17

This week is MS awareness week in the UK, something I am very aware of everyday as you can imagine! 
MS has changed my life! I learn new things about my-self every day because of it. Some things I’m not keen on which is ok because at least I can spend time reflecting on the things I don’t like, as long as I’m not spending too much time on one thing because then it becomes unhealthy! 
Its taken me along time to get to this point of acceptance, there is no end point to it though, something people may not know is how much MS can change from day to day, meaning everyday we may have to adapt and accept something new or even the return of an old symptom! 

Our lives are never boring! 
Yesterday was an amazing day! A day that I had been planning and working on for a long time! 

Yesterday I took myself into the city of Coventry, its only just over 10 miles away, but for someone with extreme anxiety, this is an amazing thing to do! 
I went to see this beautiful, kind & gentle soul, Holly Marie. So she could get creative and mark me with a beautiful image, that would forever remind me of what an incredible journey I am on. 

The point I am at in my life now, feels so right! I feel as though, with the guidance of so many over the last 7 years (and more, even before my MS) I have started To unveil the real me and like a Lotus flower, I am blossoming!
What an epic LifeJourney! 

Thank you for treating me so well yesterday Holly and I’ll see you in 2 weeks for my next symbolic image! 

Picture is my own, as are words. Permission to use image of tattooist was granted 27/4/17

How do I stay positive?

“When people ask me why am I so positive, I simply reply why not?” – Vix Edwards

  • I try to lift weights once a week
  • I try to practice Pilates 3 times a week
  • I try to practice Yoga almost everyday

I also have ms every single day but i don’t have to try with that one!
MS isn’t easy, there’s something different every day, but this doesn’t stop me living my life the fullest that I can!
I do my best to stay positive, which is where my exercise comes into play. 

Negativity is soul draining and exceptionally hard for me to get out of when it has me! I should imagine this is the same for anyone that has ever had a low mood day!
Imagine a tree, at the top of it is where the positivity is & this is where I aim to start my day! 

Lets say I wake up and its a beautiful day, sun shining, birds are singing, and I’m at the highest point of my positivity.

I sit up in bed and as I move my legs, my right leg is a little stiff. Hmm, that’s ok, I can handle that, except for when I start to walk out of the bedroom and I have to drag my leg, this knocks me down in my positivity.

So now, I’m no longer at the top of the tree. Now I’m on the branch below where I started, but thats ok, because I was at the top when I started my day, I am still closer to being at my most positive than my most negative & because I try to always see the positive in things, I should be able to get back to the top fairly quickly.
Remember though, I said this isn’t easy! Sometimes we come across things in life that will test us, sometimes we think we are going to break and never be the same person ever again. I’ve been there! Not just with my health, so I know how hard positivity can be, I’m not the same person, no, I use these experience’s as lessons and I grow from them!

When there’s only 2 choice’s, positivity & negaticity, I know which one I’d rather make! 

“Train your mind to see the good in everything. Positivity is a choice. The happiness of your life depends on your thoughts.” – Marcandangel 

Photo is by myself as are the words!

All the yums!

All the yums! 🍽🍅🍆🌽🌶🍄
The difference in my lunch choice when I don’t go to Yoga, Pilates classes in the morning is immense! 

My fatigue is still bad but far less than when I’ve exercised! 

I can think a little clearer & listen to my body, so I can make better choices of what to have & what my body wants! 
I know its appears to be a simple salad, but nothing is simple when you have 2 chronic illnesses! 

I could have had some mixed beans with my salad but unfortunately, I have only just remembered them & my lunch is now in my tummy! 🤗
This lunch is nothing compared to when my DebbieRahRah is here, but it makes me proud to know that I created it on my own! 
💚💚💚

Photo is my own as is the writing

 

Yoga is back! 

So happy that my confidence is back with my Yoga practice!
Thanks to that of my Yoga bestie for helping me even when she doesn’t know that she has!
And thanks to yoga for teaching me how to still my mind, how to open my heart, for teaching me how to be brave and how to see light in every dark situation.
And so, the journey continues! 
🙏💗💁

Photo shared via Instagram. Words are my own

My agony weekend *Monday*

Wifey has been such a star all weekend, giving me the strength and courage to eat! 

Look at what she made me today, an open top chicken salad sandwich, with gluten free bread! 
I know it may sound odd that she’s giving me strength and courage to eat, but when you’ve been in as much pain when ur stomach is trying to digest food, sometimes it seems easier to not eat! 
That’s what happened to me 15 years ago! The exact same symptoms, except I didn’t eat for 6 weeks? I was so shocked when they told me I had a stomach ulcer, even though test results were in conclusive! 
I’m still not right but at least I’m eating & its good food! 

I’m not in as much pain as I was either! That’s the best part for me! 

Going to carry on taking it easy, unfortunately that means I haven’t had my endorphin fix since Friday, but I’ll get over it! 
I do still plan on a nice Chi Yoga class on Wednesday then resting again! 

Onwards and Upwards! I have got this, I may not have control over my health but I have control over how I handle it! 
🙏