Tag: MS nurses

You know Vix has had steroids when this comes out!

Having a very sensitive stomach means that I react badly to steroids.
I already take Omeprazole as a regular medication, this is a drug that is prescribed to protect the stomach. The amount that I take is double what is given to most Multiple sclerosis patients on steroids so I don’t get to have more when it’s my turn for the nasty S word!

I took my last steroids on Tuesday which was 4 days ago and yet it isn’t until now that I am really starting to feel the effects they have had on my stomach!
I have felt ‘unwell’ from these steroids since the 2nd day that I took them (6 days ago)
I remember every time I have steroids on around day 7 (now) the reason I say never again! But why do I always give in and still take them! Because it’s in the medical profession that we rely on, we put our trust in them that they are doing the correct thing for US!

Knowing right now that I took these latest steroids for no reason makes me angry!
When I was seen by the Neurologist on Wednesday he confirmed that in fact I am not having a relapse which is great news, but I was prescribed steroids by my GP and for no reason!

I am left quite literally with a bitter taste in my mouth because of this! Had the MS nurse returned my call sooner than the 3 weeks it took them maybe just maybe I wouldn’t have been prescribed the Steroids!

This now leaves me wondering, what is happening to our MS nurses?

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The things I’m grateful for that may seem odd to others

The things I’m grateful for that may seem odd to others

  • I’m grateful to my MS Nurses even though they still haven’t returned my calls 2.5 weeks later
  • I’m grateful to my GP even though ‘he’ was the one that compared me to another MS patient regarding my inability to work AND has just prescribed me what I like to call ‘Satans Smarties’ aka Methylprednisolone – Steroids
  • I’m grateful for all my wonderful friends & family that notice when i start to walk a bit ‘odd’ – actually I’ll correct that, very ‘odd’ even when i don’t notice it myself! If it wasn’t for you guys I’d still be happily walking along like I’ve lost my horse or had a very unfortunate accident in my underwear!
  • I’m also very grateful for all my wonderful friends/family that will have to endure me for the next week or so as I begin my course of Oral steroids! (yes, I said Oral! Who sniggered?)
  • I WILL be grateful if all of my wonderful friends/family could resist the temptation to bring cakes, biscuits, sweets & most importantly chocolate round if you come to visit whilst I’m resting at home. No matter how many times I beg, plead or even if I bribe you to bring me treats, please resist!

Thanking you kindly, Vix