Always a reason to smile! Happy Monday folks!
megaspecial.co.uk
Finally I feel like I’m joining earth again after my 2 month burn out!
I’m still not back to my ‘MegaSpecial’ standard but getting there.
I wasn’t just tired, I was exhausted which meant I found it so hard to ‘cope’ with my pain!
I haven’t been able to go to Pilates classes as much as I used to and, I can’t remember the last time I went into the gym!
I really miss the gym and how incredible it made me feel afterwards! I haven’t had that feeling when I’ve been to the gym for a long time. I guess because I was so low on my energy resources!
Well now it’s time to recoup them but in a balanced way, using exercise to help build my energy.
This week has gotten off to a great start! Unlike last week I’m planning my days better and sticking to my plans!
Even though my pain in my back is gradually getting worse, making my cognition or Cog Fog incredibly bad I’m able to stick to appointment times now. I couldn’t even do that last week! I only made it to one Pilates class on time and that was because I didn’t go alone!
Yesterday’s Pilates was brilliant, just what I needed to help stretch out my back.
I spoke to the instructor ‘Lisa Perry’ before the class started and explained my problems with my back. She then adapted the class to suit the lower. . back with nice stretches and exercises to strengthen it too. That’s what it needs, strength.
Today’s class was even better than yesterday, I felt totally focused and more in control of every muscle! I feel like I’m getting stronger again. Remembering how I felt nearly 2 months ago when I was taking steroids, I’m definitely on my way back!
I even managed to hold ‘Plank’ for a short time, probably about 15 seconds which doesn’t sound much but have you tried it?
Plank
Plank, or front support in Pilates, is a well-known exercise. It is one of the most popular exercises for developing core strength and stability.
While Plank really targets the abdominals and shoulder stability, you will find that plank is an excellent way to get a full body challenge. In order to do Plank properly there must be integration of all the core stabilization muscles. The arms, glutes, and legs are active as well.
Plank can look like the up part of a regular push up. But, in most cases, a regular push up entails much more strain in the upper body — especially in the shoulders and neck — than plank in Pilates or yoga.

I was more like the second from the bottom in the above picture, for the short time I held it & then I definitely looked like the one that says ‘FAIL’ even though it was more ‘success’ than fail!
Then we did ‘Downward dog’ which is practised in both Yoga and Pilates.
Downward dog
One of the most recognized yoga poses in the West, Downward-Facing Dog — Adho Mukha Svanasana (Ah-doh MOO-kuh shvan-AHS-uh-nuh) — is a standing pose and mild inversion that builds strength while stretching the whole body. It’s named after the way dogs naturally stretch their entire bodies! Downward-Facing Dog (also sometimes called “Downward Dog” or just “Down Dog”) is an essential component of Sun Salutations and is often done many times during a yoga class. It can be used as a transitional pose, a resting pose, and a strength-builder.
Benefits of Downward-Facing Dog
If you struggle with Down Dog, be compassionate and patient with yourself; you are not the first person with tight hamstrings or weak arms. On the other hand, be diligent. Ultimately, Down Dog will start to feel so good that you will really empathize with the full-body joy that dogs display while doing the pose.
Shiva ReaDownward-Facing Dog energizes and rejuvenates the entire body. It deeply stretches your hamstrings, shoulders, calves, arches, hands, and spine while building strength in your arms, shoulders, and legs. Because your heart is higher than your head in this pose, it is considered a mild inversion (less strenuous than other inversions, such as Headstand) and holds all the benefits of inversions: Relief from headaches, insomnia, fatigue, and mild depression. The flow of blood to the brain also calms the nervous system, improves memory and concentration, and relieves stress.
Regular practice of this pose can improve digestion, relieve back pain, and help prevent osteoporosis. It is also known to be therapeutic for sinusitis, asthma, flat feet, and for the symptoms of menopause.

Now I have only ever done ‘Downward dog’ once before in another of Lisa’s class so, I’m not 100% sure if I did it correct. All i know is that it felt really good and I got the thumbs up from Lisa so that’s all that matters!
Knowing Lisa, she would have corrected me if I was doing it incorrectly.
It was an excellent Pilates class today, my back felt good after which was wonderful!
I felt really proud of myself for doing so well!
When I got home I decided to treat myself to my old winter favourite, Galaxy frothy top – hot chocolate & decaf coffee! So yummy, I thought I deserved a treat! It may not be good for the waist but according to the recent news it would be good for my debilitating MS fatigue!
Just incase anyone missed the wonderful news about chocolate and MS fatigue… http://mssoc.uk/1NDk5BX

I’m ok with that news!
Then to make the day even better in an odd way I declined going to the gym with Deb and our friend Adam! My reason, because I was just so awesome in my Pilates class that I needed to relax for the rest of the day and evening!
Such a shame I couldn’t go because I was really looking forward to lifting some weights with Adam! My thoughts, there’s no rush!
Plans for the rest of the week… dentist check up tomorrow! Eik!
megaspecial.co.uk
Pilates is my happy hour!
So true!
For the time I’m in a pilates class I am that focused I am able to exercise through the pain!
Stretch it out!
My pain is so bad again!
Roll on pain clinic 4th January! Fingers crossed for a cancellation because I don’t know how I’ll manage with this pain just getting worse!
It’s hard to stay positive when your in pain but I try my best!
MS is my Kryptonite & I am Supergirl!
megaspecial.co.uk
However, its not just any Monday!
No, it’s drug day! *courtesy of the NHS*
So, every 28 days I go into hospital and sit hooked up to a machine! I’m there from the hours of 8am until anywhere between 11am & 1pm!
That’s right, tomorrow is day 28!
Thank goodness for the wonderful monoclonal antibody that affects the actions of the body’s immune system.
*Monoclonal antibodies are made to target and destroy only certain cells in the body. This may help to protect healthy cells from damage*
Thank goodness for this wonderful drug that keeps my relapses at bay and is helping me live as much of a normal life as is possible with Relapsing Remitting Secondary Progressive Multiple Sclerosis
*Secondary-progressive MS: People who get this type usually start with relapsing-remitting MS. Over time, symptoms stop coming and going and begin getting steadily worse. The change may happen shortly after MS symptoms appear, or it may take years or decades*
But I still have relapses, or at least I did until I started…
2.3 Natalizumab (Tysabri) is administered by intravenous infusion; the recommended dose is 300 mg every 28 days. Natalizumab costs £1130 per 300 mg vial (according to the manufacturer’s submission), so over a year the cost of the drug is approximately £14,730 per patient.
Multiple sclerosis – NICE
It’s not walk in the park but I’ m ready!
Bring on the drugs!
megaspecial.co.uk
Tuesday was my first day back to the workout I love so much, the one I am most passionate about, Pilates*
*Pilates aims to strengthen the body in an even way, with particular emphasis on core strength to improve general fitness and wellbeing.
It has been 6 weeks since I noticed my legs were much weaker than normal, since I went numb from my torso down to my feet, since my balance disappeared and I started walking with my feet wider apart making it a little easier to stay upright.
It has been 4 weeks since I saw my GP and was prescribed Steroids for a possible relapse!
It has been 3 weeks since I had an appointment with the Neurologist that was so rude to me and made me cry! The Neurologist that told me I’ll be feeling better in the spring, that I don’t have Drop Foot even though my Neuro Physiotherapist referred me to be assessed for FES (Functional electrical stimulation *FES* is a treatment that uses the application of small electrical charges to improve mobility. It is particularly used as a treatment for foot drop.) He told me I don’t need the ‘Foot-ups’ or also known as ‘ankle splints’ that my Neuro Physio gave me. I have been told to use these on both legs all the time to help with my ‘drop foot’, because if I don’t I trip and fall! Yeah, I’m to throw those in the bin! And he said I don’t need the 2 crutches I was using that day (because the steroids I was taking make me feel weak!) His reply was that steroids don’t make you weak they make you strong and that is why athletes take them!
Now I understand that not everyone will know this but, from experience of taking steroids and understanding them in great detail I am aware that there are different types of ‘steroids’ and they are used for different things!
It doesn’t take a degree to work out which ones are taken by athletes to make them perform better!
Looking at the huge list of side effects that come with Corticosteroids (the type of steroids I was prescribed by my GP) Methylprednisolone in particular, you will notice it states that Muscle weakness is one of them!
All that information on Steroids is found here What is the difference between Corticosteroids and Anabolic steroids?
I was told that I didn’t have a relapse which is fantastic news! If I had then they would have taken me off my monthly drug ‘Tysabri’ that helps to stop relapses. I’m so grateful that my MS team are happy for me to stay on Tysabri! I’ve been on it for 3 years now and in that time this last ‘flare up’ has been the closest I’ve felt to relapsing. Before Tysabri I was relapsing every month so I’d rather stay on it!
There’s always a first for everything! For the first time I actually gave myself time to recover from my flare up, I didn’t go to a Pilates class until I felt completely ready! I didn’t think it would be as long as six weeks though! Another first is that I am taking it steady as well, I’m not going to over do it because my body isn’t what it used to be. It’s the only one I have and I need to take care of it!
Tuesday was my first day back to a Pilates class, it was so much harder than I remember which is proof that I do need to take it steady. It was amazing and yet frustrating at the same time. One thing that isn’t a first for me is ‘beating my self up’ I get so annoyed with myself when I can’t do all the stretches properly. The new Pilates instructor Lisa Perry kept telling me how well I was doing. I took the compliment and had a little chat with myself, I have nothing to prove to anyone, not even myself! For someone of my limited mobility I’m doing pretty amazing! That feeling after when my muscles had woken up was brilliant. Lisa’s classes are such good fun. The stretches she teaches are great, I’m sure she adds in a few Yoga posses which are hard but feel incredible! I’d like to learn Yoga but definitely one thing at a time!
Yesterday was my second time back at Pilates, a different type of class with Hannah Bailey. Fantastic! Hannah’s energy is amazing, she puts every ounce of it into her classes and really pushes you to reach your ultimate! Her classes are fast, she qualified to teach PiYo* earlier this year, I’m sure she is throwing in a few PiYo exercises into the Pilates class. If she is then I’m up for it but I must take it steady!
*PiYo combines the muscle-sculpting, core-firming benefits of Pilates with the strength and flexibility advantages of yoga. Piyo cranks up the speed to deliver a true fat-burning, low-impact workout that leaves your body looking long, lean, and incredibly defined.

megaspecial.co.uk
This is the week I’m going to make all the difference!
Remember it’s not ‘why me’ it’s ‘TRY ME!’
My alarm is set for gym o’clock! #thisgirlcan
Best thing I’ve ever done and believe me it still isn’t easy! I make myself look at me in a mirror 3 times a week! Why? Because I love pilates!
This is so true!…
Had enough of what I saw in that mirror!
No stopping me now until I like what I see again!
#ishapeme
If you can’t stop thinking about it, don’t stop reaching for it and I don’t mean the biscuit tin! 😂
megaspecial.me
megaspecial.co.uk
Take a look at @MSUK6’s Tweet: https://twitter.com/MSUK6/status/647043872938442752?s=09
Another plug from Anna, MS-UK’s fundraising administrator.
She also mentions Shelley’s family fun day that was held at the Weavers Arms, Fillongley last weekend. I shall be sharing picture’s from this wonderful day very soon!
megaspecial.me
megaspecial.co.uk
Happy funtastic Friday peeps! This is where it begins!
TODAY
•Back to basics Pilates class with Kate King = Love!
•Collecting MegaSpecial Sistaaah Sarah Hickman & nephew Lewis from train station = More love
•Rugby World Cup starts = Happy
•England v Fiji = Adrenalin
TOMORROW
•Shelley’s family fun day at The Weavers Arms, Fillongley in aid of MS-UK = FUN
•Me in the stocks at the event = Arghhhh
•A group of MegaSpecials (MSrs) all meeting together at event = Amazing & dream come true!
•Adam’s 35th birthday party in evening = Shattered me, Sare & Sista Rosemary plus more fun!
SUNDAY
•Recover! 😜
megaspecial.me
megaspecial.co.uk