NHS – Living life the MegaSpecial way!

Failed by National Health Service

Reminder to myself and every other person who like me suffers from mental illness!

This week I had my monthly Tysabri infusion, not the nicest of things to have to go through but because we are warriors, everyone of us does our best to make it a light hearted day.

This month was the worst each of us in the group has ever experienced though!

I will be sharing what happened at the hospital on my blog as soon as I have got my head around it.

To say that we go to hospitals fir treatment and put all our faith in the staff there, the drs, nurses and others, to look after us.

But what do you do if the system fails you!? What if someone’s bad day becomes your problem because they couldn’t handle it quietly to themselves.

What if the man inserting the cannula into your veins doesn’t back off when you ask him to because on the 9th attempt he still hadn’t done it.

What if you can’t cope with all of this because of things that have happened in your past.

What if all of this exasperates your MS.
What do you do then?

Tysabri (natalizumab)

Monday already and the alarm is set to wake me up in less than five hours!

Its been four weeks since my last infusion so that can only mean one thing… Time for some more of the good stuff when daylight breaks!
This is my super juice! My drug not so much of choice because, come on, really who chooses to pump chemicals like this through their veins without getting a ‘high’ afterwards!

Actually, thinking about it, yes, I choose! I choose this over monthly relapses, over loosing my vision, over being wheelchair bound!

And there is a high, eventually, after the initial feeling like crap! The high is in the knowing that I have been relapse free and steroid free for a whole year now! Knowing that the relapse I know i had last year was minimal in comparison to before I was put on to Tysabri!
So heres to you NHS! I salute you for the service you provide for me & my MS family and anyone else that calls upon you!

Eternally grateful, me!