I miss my friends

I recently wrote a post on a Facebook page, that I haven’t visited for a very long time!…

So, I used to come here a lot. A day wouldn’t go by without me posting!
So grateful to this page and every one involved for helping me through my tough times!

I had to cut out such a lot of social media because it is far to tiring for me. My fatigue is so hard to handle and social media is top of the list for making it worse!

Trouble is, I feel as though I’ve totally isolated myself because of it and by complete accident!

Going from someone who has such a lot of friends to someone that never hears from them is so hard!

This isn’t a pitty plea and I don’t even know if I should post this or not, but if I’m right, this is a safe space?

I feel so alone, in a world where there are so many people, I feel alone!
I have a beautiful wife, and carers that come every day to help me/us and I still feel alone.

I know how lucky I am, because I do see people. But if I didnt pay for them, how much contact would I have from people other than my wife who I love dearly!

Does anyone else feel like this?

That moment when you just have to sit down!

You have to laugh don’t you! I started writing this¬†last week during the heatwave & completely forgot all about it!

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That moment when you just have to sit down

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My MS really doesn’t like this English weather!

It’s been another beautiful day and I’ve unfortunately been a very busy girly again!
It would have been so nice to have sat in my egg chair and enjoyed the sun especially as the humidity wasn’t too bad this morning!

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That wasn’t planned for me today though!
I knew I wouldn’t be able to go back to Pilates just yet after passing out during Wednesdays class! So I had booked our 12 year old Labrador Olivia (Ollie for short) in at the vets for further investigation into a lingering UTI (Urinary tract infection)
At least by booking this appointment I knew I definitely couldn’t go to pilates, this was a very important appointment!

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I also had to go into town today to collect some clothes Deb had ordered & pay money into the bank. No worries, in & out in no time

Famous last words! The que in the bank was horrendous, I knew I wouldn’t be able to stand for too long and so as usual I managed to find something solid I could lean on whilst I waited.
It was so warm in there though! I could feel my temperature rising so I grabbed my little fan out of my bag! That did the job! I love the summer but I wish my MS did too!

Off to collect Debs clothes, the shop in needed is in a Shopping Mall, oh no!  The Shopping Mall has a glass rough! I knew just what that meant!
I could feel the heat from the sun beaming down on me through the glass! The more I walked & the weaker my legs felt!

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Oh here it comes! It’s ‘the’ MS walk, you know the one that leaves people wondering if you’ve had one to many Brandys!

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Weaker & weaker, I’ll be crawling soon! I’ve passed the benches & the cafe’s! The shop I need is closer than turning back! Come on legs, don’t let me down!


The automatic doors open & I could feel the coolness from the AC!

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The shop assistant welcomed me & I explained I was there for a collection but I also wanted to browse. I grabbed a handful of clothes & headed to the changing room! I knew this place well & knew there would be a seat in that changing room! That’s all I wanted, to sit down!

So much better! I smiled & realised the clothes I had grabbed were actually a size too small!
Then I remembered what I received last night!…

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